Managing a Medically and Socially Complex Life: Women Living With Lupus

Mendelson, Cindy

doi:10.1177/1049732306290132

Cited by 54 publications

(67 citation statements)

References 22 publications

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“…SLE patients' demonstrated higher depressive symptoms and distressed mood states. Mendelson (2006) studied the daily lives of women living with SLE. Seven women with Lupus participated in three interviews, each separated by 1 month.…”

Section: Literature Reviewmentioning

confidence: 99%

“…There has been little empirical research identifying the psychosocial experiences and needs of those living with SLE in the United States (Giffords, 2003;Mendelson, 2006). The comprehensive literature review authored by Seawell and Danoff-Burg (2004) cited seven empirical studies that investigated behavioral interventions used in SLE management but only two quantitative studies about the psychosocial challenges and needs of patients living with SLE (Danoff-Burg & Friedberg, 2009;Seawell & Danoff-Burg, 2005).…”

Section: Introductionmentioning

confidence: 99%

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Living With Lupus: A Qualitative Report

Beckerman

2011

Social Work in Health Care

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This article reports on the findings of a qualitative study based on three focus-groups of individuals (N = 32) living with Systemic Lupus Erythematosus (SLE). The themes that emerged indicated a high vulnerability for self-reported feelings of depression. The four key challenges included: (1) feeling depressed that they are not who they used to be, (2) feelings of depression and anxiety related to coping with the uncertainty of the illness, (3) physical and emotional fatigue of living with a chronic illness, and (4) coping with the financial strain of the illness. These psychosocial challenges should be considered in screening, assessment, and treatment planning for social work service with this population.

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Section: Literature Reviewmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Living With Lupus: A Qualitative Report

Beckerman

2011

Social Work in Health Care

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“…Several studies have examined these coping strategies through qualitative interviews [5][6][7][8][9] or quantitative analysis [4,[9][10][11][12][13][14][15][16][17][18][19].…”

Section: Introductionmentioning

confidence: 99%

Relationship between catastrophic health expenditures and household incomes and expenditure patterns in South Korea

Kim¹,

Yang²

2011

Health Policy

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“…This includes feelings of fear and anxiety in relation to over-exertion, recurrence and hyper-vigilance for symptoms, as well as sadness and grief in relation to a perceived loss of independence and physical activity (White et al, 2007). Moreover, women experienced feelings of vulnerability due to the unpredictability of outbursts and remission of their illness, and feelings of distress because of changes to their appearance (Mendelson, 2006). Women also expressed feeling a lack of energy and strength due to their illness, which interfered with their work life, social life, and family life (Soderburg & Lundman, 2001).…”

Section: Exacerbation and Remission Of Chronic Illnessmentioning

confidence: 99%

Chronic low back pain and the construction of illness identities in women from Kuwait

Abdal¹

2016

Manual Therapy

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Chronic low back pain (CLBP) has been identified as a prominent health problem and a major cause of disability. Recent research has focussed on providing a better understanding of subjective experiences of people with CLBP; however, emphasis continues to be geared towards the physical restrictions associated with CLBP. There is a scarcity of literature that considers the relation between self and identity, and people"s experiences with CLBP. Moreover, studies have concentrated on the experiences of people in Western contexts; to date, no studies have been carried out in Middle Eastern sociocultural contexts including Kuwait. Finally, there is a deficiency of studies that focus on the particularity of the experiences of women with CLBP and the impact on identity. This is the first study that investigates how women with CLBP construct illness identities in Kuwait.This study adopted a constructivist grounded theory methodology using dimensional analysis. In line with the grounded theory (GT) approach, data collection and analysis took place concurrently. A longitudinal study design was adopted. Semi-structured interviews were used to investigate women"s perspectives on their experiences with CLBP in relation to their socio-political and cultural context. Eleven women were recruited from three musculoskeletal outpatient clinics in Kuwait. Initially, five women were purposively sampled. A follow up interview was conducted with four of those women one year after the initial interview to investigate any changes in their experiences. Subsequently, six women were theoretically sampled with the aim of comparing the influence of age, educational level, marital status, socioeconomic status and time on women"s illness experiences.The findings of this study offer the first explanatory theory of the construction of illness identities of women with CLBP in Kuwait. Women"s identities can be seen as part of a continuum from oppressed at one end to liberated at the other. Salience of oppressed identities was associated with periods of exacerbation of CLBP and passive coping behaviours. Appearance of liberated identities was accompanied with episodes of remission of CLBP and active coping approaches. Changes in women"s social circumstances, thoughts and feelings over time were related to changes in the identities they portrayed, and changes in their manifestation of CLBP and illness experiences. The substantive theory developed through this study has implications for clinical practice, education and research, and may inform physiotherapy professional development activities in Kuwait.

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Managing a Medically and Socially Complex Life: Women Living With Lupus

Cited by 54 publications

References 22 publications

Living With Lupus: A Qualitative Report

Living With Lupus: A Qualitative Report

Relationship between catastrophic health expenditures and household incomes and expenditure patterns in South Korea

Chronic low back pain and the construction of illness identities in women from Kuwait

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