Management guidelines for motor neurone disease patients on non-invasive ventilation at home

Eng, Derek

doi:10.1191/0269216306pm1113oa

Cited by 46 publications

(27 citation statements)

References 60 publications

(117 reference statements)

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“…The noninvasiveness of NIV has never been qualitatively established from a patient or proxy perspective. Actually, recommendations have been issued for patients with degenerative neurological diseases in the absence of acute events [52].…”

Section: Position Of Learned Societies Regarding Niv Use In Patients mentioning

confidence: 99%

Palliative noninvasive ventilation in patients with acute respiratory failure

et al. 2011

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Over the last two decades, the increasing use of noninvasive ventilation (NIV) has diminished the need for endotracheal ventilation, thus decreasing the rate of ventilation-induced complications. Thus, NIV has decreased both intubation rates and mortality rates in specific subsets of patients with acute respiratory failure (e.g., patients with hypercapnia, cardiogenic pulmonary edema, immune deficiencies, or post-transplantation acute respiratory failure). NIV is also increasingly used as a palliative strategy when endotracheal ventilation is deemed inappropriate. In this context, palliative NIV can either be administered to offer a chance for survival, or to alleviate the symptoms of respiratory distress in dying patients. The literature provides information from 10 studies published between 1992 and 2006, in which 458 patients received palliative NIV. The technique was feasible, usually well tolerated, and half of the patients survived. The objectives of this review article are to define palliative NIV, to delineate the place for palliative NIV among overall indications of NIV, and to define the contribution of NIV to the palliative strategies available for patients with acute respiratory failure. Potential benefits and harm from NIV in patients who are not eligible for endotracheal ventilation are discussed. The appropriateness of palliative NIV should be reported in a study that relies on both quantitative criteria (rate of palliative NIV use and mortality) and qualitative criteria (patient comfort, end-of-life process, family burden, and health-care provider satisfaction).

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Section: Position Of Learned Societies Regarding Niv Use In Patients mentioning

confidence: 99%

Palliative noninvasive ventilation in patients with acute respiratory failure

et al. 2011

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“…There is scope to further strengthen the links between neurology, respiratory and palliative care services29 and to expand education and training in respiratory aspects of MND for healthcare professionals involved in the care of these patients.…”

Section: Discussionmentioning

confidence: 99%

Non-invasive ventilation in motor neuron disease: an update of current UK practice

O'Neill

Williams

Peel

et al. 2011

J Neurol Neurosurg Psychiatry

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Compared with 2000, there has been a marked increase in the number of patients referred for, and currently using, NIV (2.6 and 3.4-fold, respectively). The proportion successfully established on NIV has also increased, suggesting more appropriate selection and/or improvement in the methods of using NIV in this challenging group of patients. However, monitoring of respiratory function is suboptimal and uncontrolled oxygen is sometimes used inappropriately before the terminal phase.

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“…HMV 적용 환자의 실태 [4], 관련장비의 효용성 [8], 건강상태에 대한 영향요인과 다학제 접근의 효과 [10][11][12][13][14], HMV 적용 환자 에 관한 체계적 고찰과 가이드라인 제시 [15][16][17] 등 다양한 형태 로 많은 연구들이 보고되고 있다. 그러나 국내에서는 HMV 적 용 환자와 관련한 실태조사 [6,18], 삶의 질과 재입원의 영향요 인 [7,19] Table 1).…”

Section: 그동안 Hmv 적용 환자와 관련된 국외 연구를 살펴보면unclassified

Survey on Self Care, Respiratory Difficulty, Sleep Impediment, Anxiety and Depression among Patients with Neuromuscular Disease dependent on Home Mechanical Ventilator

Hwang

Lee

Song

2016

Korean J Adult Nurs

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Purpose: This study aimed to investigate the influencing factors on self care, respiratory difficulty, sleep impediment, anxiety and depression among patients with neuromuscular disease who are dependent on Home Mechanical Ventilator (HMV). Methods: 157 patients were recruited through hospital based home nursing care departments and HMV rental centers. Data were collected by questionnaires. The analytic methods were n (%) / M±SD, x 2 / t-test or ANOVA and multiple linear regression. Results: Patients with Amyotrophic lateral sclerosis were more likely to utilize HMV, had shorter periods of morbidity and the most extended daily use of HMV. As for medical equipment, they had ambu-bag (87.2%) and oxygenator (15.4%). Reports of respiratory difficulty and sleep impediment were low. There were no significant difference. In contrast, reported anxiety and depression were high and showed significant difference between non invasive HMV and invasive HMV. Anxiety contributes to respiratory difficulty (t=3.62, p=.002), sleep impediment (t=2.06, p=.042), and depression (t=7.24, p<.001). However, home nursing care exerts a positive influence in reducing anxiety (t=-2.73, p=.008). Conclusion: Anxiety contributes to respiratory difficulty, sleep impediment, and depression. However, those who use home nursing care reported less anxiety. Home nursing care positively impacts patients dependent on HMV as a practical service and available resource.

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Management guidelines for motor neurone disease patients on non-invasive ventilation at home

Cited by 46 publications

References 60 publications

Palliative noninvasive ventilation in patients with acute respiratory failure

Palliative noninvasive ventilation in patients with acute respiratory failure

Non-invasive ventilation in motor neuron disease: an update of current UK practice

Survey on Self Care, Respiratory Difficulty, Sleep Impediment, Anxiety and Depression among Patients with Neuromuscular Disease dependent on Home Mechanical Ventilator

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