Making it Meaningful: Caregiver Goal Selection in Positive Behavioral Support

Gore, Nick J.; McGill, Peter; Hastings, Richard P.

doi:10.1007/s10826-019-01398-5

Cited by 9 publications

(7 citation statements)

References 31 publications

(27 reference statements)

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“…Another explanation is that the focus for non-pharmacological intervention might be more on developing formulations and positive behaviour support plans. In recent years, there has been an added focus on providing positive behaviour support to manage behaviours that challenge (Gore et al , 2013).…”

Section: Discussionmentioning

confidence: 99%

Intellectual disability and autism in adults influence psychological treatments for mental health comorbidities

Mills

Nathan

Soper

et al. 2023

AMHID

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Purpose The purpose of the study was to examine whether there were differences in the provision of non-pharmacological interventions based on the level of intellectual disability and the presence or absence of autism. Mental health conditions are often underdiagnosed in adults with intellectual disability and do not always receive psychological interventions as recommended by the National Institute for Health and Care Excellent guidelines. To realise the national UK programme’s aim of stopping the overuse of medications in people with intellectual disability, it is important that these individuals have access to appropriate non-pharmacological interventions. The authors examined the relationship between an individual’s level of intellectual disability and the presence or absence of autism with access to relevant non-pharmacological interventions from specialist community intellectual disability services. Design/methodology/approach A cross-sectional study of adults accessing four specialist intellectual disability services in North West England in 2019. Findings There was a high prevalence of mental health comorbidity, even higher for autistic adults. However, a relatively small percentage of the study population was receiving psychological interventions. The most frequent non-pharmacological intervention was a positive behaviour support plan, irrespective of comorbid mental illnesses. Research limitations/implications Not having access to psychological interventions for the treatment of mental illness could result in poor health outcomes and increasing health inequalities. The study highlights the need for developing psychological interventions, particularly for those with moderate to severe intellectual disability and for those with associated autism. Originality/value This large sample study examined the relationship between intellectual disability level and the presence of autism with accessing psychological interventions.

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Section: Discussionmentioning

confidence: 99%

Intellectual disability and autism in adults influence psychological treatments for mental health comorbidities

Mills

Nathan

Soper

et al. 2023

AMHID

View full text Add to dashboard Cite

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“…Similarly, this study did not make comparisons to other data or responses obtained from other sources or informants. Related research (i.e., Gore et al 2019) has explored the use of a similar goal-selection tool with family caregivers and so such considerations could be readily investigated in the future. Here it should however, be recognized that differences in the responses of caregivers and children that may be found are not necessarily indications of poor reliability and may rather reflect differences of opinion or experience.…”

Section: Limitations and Future Researchmentioning

confidence: 99%

“…In the case of children, person-centered activities and other PBS procedures should typically involve engagement with family caregivers and professionals who know the child well and whose own behavior may require support as part of a multi-component plan (Gore et al 2013). These practices tend to be highly valued by families, and have been the recent focus of related research in this journal (i.e., Gore et al 2019). Children with IDD themselves are however, very seldom consulted directly within a PBS pathway (Kruger and Northway 2019;Wehmeyer et al 2004) and little behavioral technology has developed to support their inclusion in this way, with two possible exceptions.…”

mentioning

confidence: 99%

Personalized Goals for Positive Behavioral Support: Engaging Directly with Children who have Intellectual and Developmental Disabilities

2021

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Stakeholder involvement is fundamental to Positive Behavioral Support yet research in this area rarely obtains views of children with Intellectual and Developmental Disabilities. This study aimed to develop and demonstrate a means of engaging directly with children to identify personalized goals and priorities for their future support. An augmented communication approach was used to facilitate interviews with children who had a range of disabilities and displayed behavior that challenges. The interviewer asked children about activities, their own behavior, a caregiver’s behavior, and quality of life to focus future potential assessment and intervention. We completed interviews in at least some areas with 9 out of 14 children. Children prioritized goals for future support and evidenced insight into behavior, needs, and preferences. These findings have promising implications for further direct engagement of children with disabilities throughout a support pathway to achieve outcomes rich in social validity.

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“…These ICWs, sometimes known as "key words", are the words which carry the meaning of a sentence. Talking Mats may also to facilitate expressive communication around sensitive health issues even in those people with intellectual disabilities who have fewer communication challenges (Bell and Cameron, 2008), as well being used successfully alongside semi-structured interviews with carers (Gore et al, 2019).…”

Section: Talking Matsv Rmentioning

confidence: 99%

Including people with intellectual disabilities in the development of their own positive behaviour support plans

Breeze

2021

TLDR

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Purpose People with intellectual disabilities are not routinely involved in the assessment of their behaviours that challenge, as this is often completed by a proxy respondent and the health-care professional. This is contrary to guidance stating that everyone should be involved in the planning of their care. This paper aims to show how health-care professionals can support people with intellectual disabilities to engage in the assessment of their behaviours that challenge and the subsequent development of their own positive behaviour support (PBS) plans. Design/methodology/approach A non-systematic review of the existing literature on improving the engagement of people with learning disabilities in health-care planning, and specifically PBS planning, was undertaken. Appropriate papers were included in this paper. Findings There are several evidence-based methods to improve people’s engagement in the assessment of their own behaviours that challenge and then the development of their PBS plans. These methods are discussed in terms of their application to supporting people to communicate and involving them in the process of developing a valid and meaningful PBS plan. This is a relatively new focus within the literature, and further research should focus on increasing engagement in the process, as well as monitoring how co-production affects PBS outcomes. Originality/value This paper summarises some of the approaches used to support people with intellectual disabilities to engage in the assessment of their behaviours that challenge and the development of their own PBS plans. This should encourage health-care professionals to consider how to use alternative and augmentative communication strategies to facilitate co-production in their own clinical practice.

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Making it Meaningful: Caregiver Goal Selection in Positive Behavioral Support

Cited by 9 publications

References 31 publications

Intellectual disability and autism in adults influence psychological treatments for mental health comorbidities

Intellectual disability and autism in adults influence psychological treatments for mental health comorbidities

Personalized Goals for Positive Behavioral Support: Engaging Directly with Children who have Intellectual and Developmental Disabilities

Including people with intellectual disabilities in the development of their own positive behaviour support plans

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