‘Making it better’: Self-perceived roles of family caregivers of older people living in care homes: A qualitative study

Davies, Sue; Nolan, Mike

doi:10.1016/j.ijnurstu.2005.04.009

Cited by 143 publications

(198 citation statements)

References 21 publications

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“…Pårørendes involvering er sammensatt av alt fra besøk, sosio-emosjonell støtte, å vaere talsperson, til å gi personlig omsorg (Davies & Nolan, 2006). Pårørende bidrar til å ivareta beboernes livskvalitet, og det kan se ut som pårørendes involvering også er positivt for kvaliteten på pleien i sykehjemmene (Gaugler, 2005;Grabowski & Mitchell, 2009).…”

Section: Bakgrunnunclassified

“…Lav tilfredshet med kontakten med personalet, liten innflytelse på pleien og lite meningsfull aktivisering av beboerne var funn i Berglunds studie (Berglund, 2007). Studier tyder på at flere pårørende ønsker å bidra ved å gi informasjon og sørge for kontinuitet, følge opp kvalitet i pleien og bidra til at hele gruppen beboere får det bedre (Bern-Klug & Forbes-Thompson, 2008;Davies & Nolan, 2006;Rognstad, Sagbakken & Nåden, 2015;Sandberg, Lundh & Nolan, 2001). Mange pårørende opplever likevel mangel på spesifikk og profesjonell informasjon basert på individuelle behov, og at det er pårørende selv som må ta initiativ til dette (Hertzberg et al, 2001;Norheim & Sommerseth, 2014).…”

Section: Bakgrunnunclassified

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Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Nakrem¹,

Hynne²

2017

TFO

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Family members often have roles as advocates and provide care for nursing home residents.Collaboration with families is an important part of a person-centred care and may increase the quality of care. The purpose of this study was to explore the experiences of long-term care residents' next-of-kin and how to encounter and support the relatives as collaborative partners and resources, in light of a person-centred care model. Qualitative method was used. Sixteen relatives were interviewed in three different focus groups. The findings indicate that the relatives had mixed feelings toward the nursing home and the role as next-of-kin. They felt a relief when the needs of their loved ones were taken care of, and had great confidence in the service when everything went well. However, they often felt insecurity when they experienced that quality of service was not good enough. This led to increased time spent in the nursing home and follow-up on care. Relatives experienced that they were either included and involved, or excluded and as outsiders. There is an interdependence between strengthening and involving families, and care that is person-centred and promotes residents' health in nursing homes.

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Section: Bakgrunnunclassified

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Nakrem¹,

Hynne²

2017

TFO

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“…The three central aspects to their new role include (a) maintaining continuity; (b) keeping an eye; and (c) contributing to community (Davies & Nolan, 2006). Maintaining continuity involves helping the older person maintain their identity via family relationships and through helping staff to get to know the resident as an individual.…”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

“…They also provide feedback to staff and fill any gaps in their relative's 'case'. Former carers contribute to the community by providing a link to the world outside the nursing home and by interacting with other people in the care facility (Davies & Nolan, 2006).…”

Section: Theoretical Models Of Caring Transitionsmentioning

confidence: 99%

Between worlds: the experiences and needs of former family carers

Cronin

Hynes

Breen

et al. 2014

Health Soc Care Community

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While the financial, physical and psycho‐social burden for caregivers is recorded, less is known about the post‐caring experience. The purpose of this qualitative descriptive study was to explore the experiences and needs of Irish former family carers in the post‐caring/care transitions period. Former family carers were defined as family members who provided physical and/or social care to a family member with an illness or disability in the home for at least 6 months prior to nursing home/hospice placement or death. A total of 40 family carers were recruited from members of or known to voluntary care groups/associations in Ireland. Fourteen participants took part in a focus group discussion and 26 participated in one‐to‐one, semi‐structured interviews, all of which were undertaken in 2010. The focus group discussion focused on gaining a broad understanding of the participants' post‐caring experiences and the emergent themes formed the basis for the development of a semi‐structured interview guide. Data from the focus group were analysed inductively using Creswell's qualitative analysis framework, while template analysis was the method of analysis for the 26 individual interviews. For the participants in this study, post‐caring was a transition that comprised three, interrelated, non‐linear, iterative themes that were represented as ‘loss of the caring world’, ‘living in loss’ and ‘moving on’ and symbolised as being ‘between worlds’. Transition was a complex interplay of emotions overlaid with economic and social concerns that had implications for their sense of health and well‐being. This exploratory study begins to address the dearth of data on post‐caring/care experiences, but further research is needed to inform support interventions to enable former family carers to ‘move on’.

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“…Although family and spousal involvement in nursing homes is well-researched in Scandinavian and international literature, the majority of these studies are based on only one person's transition to residential care, whose family continues to live in the community (Davies and Nolan 2006;Førsund et al 2016;Kellett 1998;Milligan and Wiles 2010;Sandberg et al 2001). Accordingly, a critique of the caregiving literature is that family roles in nursing homes are often limited to that of "visitors," although frequent and highly engaged ones (Baumbusch and Phinney 2014).…”

Section: Introductionmentioning

confidence: 99%

Whose Right to a “Reasonable Level of Living”? Spouses with Differing Care Needs in Swedish Nursing Homes

Torgé¹

2018

The Journal of Aging and Social Change

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‘Making it better’: Self-perceived roles of family caregivers of older people living in care homes: A qualitative study

Cited by 143 publications

References 21 publications

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Between worlds: the experiences and needs of former family carers

Whose Right to a “Reasonable Level of Living”? Spouses with Differing Care Needs in Swedish Nursing Homes

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