Making “ethical safe space” in the translation of contested knowledge: The role of community debate in defining end-of-life decision ethics

Abstract

Discussion during the forum revealed several benefits of creating ethical safe space. This model of workshop allows space for participation of stakeholders, who might not otherwise be able to interact in the same forum, to articulate their perspectives and debate with other presenters and audience members. Participants at the forum spoke of the creation of ethical safe space as a starting point for more dialogue on the issues raised by the policy statement. The forum was, therefore, seen as a potential starting point for building conversation that would facilitate revising the policy with broader consultation on its legal and ethical validity.

Value‐based issues and policy change: Medical assistance in dying in four narratives

“…Third, this study also adds to media representation studies of the issue (Birenbaum-Carmelia, Banerjeeb, & Taylorcal, 2006;Haller & Ralph, 2001;Marcoux et al, 2007;Worten & Yeatts, 2000;Wright et al, 2015), and, among those, to the very few ones on the framing of MAID specifically (Burlone & Richmond, 2018;Kaufert et al, 2013;Verbakel & Jaspers, 2010). Paying attention to framing allows for policy change processes to be understood differently.…”

“…Additional studies, mostly prescriptive in nature, comparatively assess MAID policy from an ethical perspective (Landry, Foreman, & Kekewich, 2015) or for its potential effects on medical practices (Boivin et al, 2015;Brooks, 2019;Wright, Fishman, Karsoho, Sandham, & Macdonald, 2015) and for social workers (Chamberland, 2011). Other studies examine the issue from an historical and philosophical perspective (Giroux, 2012;Lamarche, 2007), its potential legal implications (Judo, 2013;Marchand, 2011;Meisel, 2003;Schafer, 2013;Steunenberg, 1997;Vachon, 2013), in relation to alternative provision modes (Brock, 2012), with respect to the role of experts' knowledge (Karsoho, Wright, Macdonald, & Fishman, 2017;Kaufert et al, 2013), or from the rationale or narratives behind oppositional stances (Burlone & Richmond, 2018;Haider-Markel & Joslyn, 2004;Joslyn & Haider-Markel, 2002;Preidel & Knill, 2015;Tatalovich, 2019). Research has also been conducted on MAID's costs (Trachtenberg & Manns, 2017), access (Browne & Russell, 2016), and implementation (Silvius, Memon, & Arain, 2019).…”

Knowledge transfer and exchange frameworks in health and their applicability to palliative care: scoping review protocol

“…Tieman () created an automated search filter and an online hub for GPs and primary care workers to provide them with a profession specific content and enable rapid and direct access to relevant resources (Tieman ) and finally Kaufert et al . () applied the theory of ethical safe space to facilitate community debate between policy‐makers, researchers and end point users (Kaufert et al . ).…”

“…() applied the theory of ethical safe space to facilitate community debate between policy‐makers, researchers and end point users (Kaufert et al . ). All four studies considered their results as successful; however, whether their interventions were based on a theoretical framework is unclear as is the possibility of application to other cohorts.…”