Making collaborative self-management successful in COPD patients with high disease burden

Bourbeau, Jean; Saad, Nathalie; Joubert, Alexandre; Ouellet, Isabelle; Drouin, Isabelle; Lombardo, Celia; Beaucage, Danielle; Lebel, Michel

doi:10.1016/j.rmed.2013.03.003

Cited by 29 publications

(32 citation statements)

References 15 publications

(16 reference statements)

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“…Iterative interactions between patients and healthcare providers and encouragement of patient participation in one's own care are recognised as important components of self‐management interventions . However, as several studies have indicated, the implementation of adequate support of self‐management in COPD remains a challenge . The challenge is, therefore, to understand how to create fruitful interactions that would allow us to identify COPD patients' and their family members' individual experiences, values and preferences.…”

Section: Introductionmentioning

confidence: 99%

Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers – a qualitative longitudinal study

Andersen

Thomsen

Poul

et al. 2018

Scandinavian Caring Sciences

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Section: Introductionmentioning

confidence: 99%

Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers – a qualitative longitudinal study

Andersen

Thomsen

Poul

et al. 2018

Scandinavian Caring Sciences

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“…There has been a substantial increase in the body of literature to suggest the effects of self-management interventions on rehabilitation and recovery across a variety of chronic conditions such as stroke (Jones et al, 2009), lymphoedema (McGowan et al, 2013), chronic obstructive pulmonary disease (Fairbrother et al, 2013;Bourbeau et al, 2013) and vascular risk reduction (Sol et al, 2005;Sol et al, 2008;Mead et al, 2010;Maitland and Chalmers, 2010).…”

Section: Introductionmentioning

confidence: 99%

The effectiveness and experience of self-management following acute coronary syndrome: A review of the literature

Guo

Harris

2016

International Journal of Nursing Studies

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Please cite this article as: GUO, P., HARRIS, R.,The effectiveness and experience of self-management following acute coronary syndrome: a review of the literature, International Journal of Nursing Studies (2016), http://dx.doi.org/10. 1016/j.ijnurstu.2016.05.008 This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. Conflicts of interestNone. Funding statementNo external funding.Page 3  Evidence has suggested the effects of self-management interventions on rehabilitation and recovery across a variety of chronic conditions. However, to date less is known about the extent of the literature on self-management for individuals following an acute cardiac event. Despite widespread use of the term 'self-management' and growing interest in the concept, defining how self-management is manifested in terms of observable behaviours remains challenging in the field of health and social care. What this paper adds? Evidence showed varying effects of the self-management interventions among people following acute coronary syndrome when compared with usual care.Most studies in this review were conducted in western countries and quantitative studies were UK centric. Therefore, more research is needed to explore self-management among people following acute coronary syndrome within different health care contexts.

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“…In addition, patients suffering from respiratory disease can be challenged when their need to share their stories about issues related to their coping with illness or existential aspects of their everyday life is not adequately recognized by healthcare professionals during outpatient consultations (Jensen, Brinkjaer, Larsen, & Konradsen, 2015). Such experiences seem to be critical during the transitional period when COPD patients are struggling to stay engaged in their daily self-management, and implementation of effective self-management interventions remains a challenge (Bourbeau et al, 2013; Chen, Chen, Lee, Cho, & Weng, 2008; Chen, Liu, ShyuYea-Ing, & Yeh, 2016; Disler et al, 2016; Disler, Gallagher, & Davidson, 2012; Harrison, Janaudis-Ferreira, Brooks, Desveaux, & Goldstein, 2015; Jolly et al, 2016; Jonkman et al, 2016; Jonsdottir, 2013; Korpershoek et al, 2016; Zwerink et al, 2014). These studies report the experiences of COPD patients related to time-limited settings after an AECOPD.…”

Section: Introductionmentioning

confidence: 99%

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

Andersen

Thomsen

Poul

et al. 2017

International Journal of Qualitative Studies on Health and Well

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Purpose: In healthcare related to hospital discharge and follow-up, it is acknowledged that patient participation can strengthen self-management in patients with chronic obstructive pulmonary disease. However, the meaning of participation in care following a severe acute exacerbation is less described. Therefore, the aim of this part of a larger study was to explore patients’ experiences of participating in their care around discharge and in their subsequent day-to-day care at home. Method: The study was designed as a qualitative, longitudinal study. Data were collected by repeated participant observations and in-depth interviews with 15 patients within a period of 18 months post-discharge. A phenomenological-hermeneutic approach was used to interpret the data. Results: Before discharge, the patients struggled to regain a sense of control in their efforts to build up strength, and acquire sufficient clarity and confidence to face self-management at home. At home, the patients strived to comply with advice and encouragement in a struggle to stay motivated and confident, and to ask for help. Conclusions: With more knowledge about patients’ participation in care, healthcare professionals can encounter patients in ways that are sensitive to their specific care and support needs and, thereby, contribute to the promotion of patients’ health and well‐being.

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Making collaborative self-management successful in COPD patients with high disease burden

Abstract: This study of a real life situation adds to the current body of literature that a more severe COPD patient population can be taught self-management skills in the event of exacerbations, leading to fewer health care visits and hospital admissions.

Cited by 29 publications

References 15 publications

Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers – a qualitative longitudinal study

Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers – a qualitative longitudinal study

The effectiveness and experience of self-management following acute coronary syndrome: A review of the literature

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

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