Making activities visible: a way to patient empowerment

Çarçani, Klaudia; Herstad, Jo; Holone, Harald

doi:10.1145/3363384.3363482

Cited by 1 publication

(1 citation statement)

References 147 publications

(243 reference statements)

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“…In PD, extensive research has been conducted in user groups with more severe cognitive impairments. For example, dementia (Hendriks et al, 2013), aphasia (McGrenere et al, 2002, amnesia (Wu et al, 2004), children with autism spectrum (Herstad and Holone, 2012), and older adults (Joshi and Bratteteig, 2016;Bråthen et al, 2019), and less focus has been given to MACI patients (Çarçani and Holone, 2019), despite the challenges they face in everyday life.…”

Section: Maci People and Their Involvement In Pdmentioning

confidence: 99%

EquiP: A Method to Co-Design for Cooperation

Çarçani

Bratteteig

Holone

et al. 2023

Comput Supported Coop Work

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In Participatory Design (PD), the design of a cooperative digital solution should involve all stakeholders in the co-design. When one stakeholder’s position is weaker due to socio-cultural structures or differences in knowledge or abilities, PD methods should help designers balance the power in the design process at both the macro and micro levels. We present a PD method that addresses the power relations arising during the design process and draws on theories about participation and power in the design and organisation of change processes. We contribute to Computer Supported Cooperative Work (CSCW) by using the PD method to design computer support for cooperation on cognitive rehabilitation between people with Mild Acquired Brain Injuries (MACI) and their healthcare professionals, where strengthening the cooperation is considered an element of patient empowerment. This method is presented as a contribution to the intersection between PD and CSCW. The discussion of power in PD contributes to the discussion of cooperation in CSCW. We found that EquiP supported the creation of choices, and hence the ‘power to’ influence the design. This method can contribute to a power ‘equilibrium’ and a positive-sum power relation in PD sessions involving all stakeholders.

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Section: Maci People and Their Involvement In Pdmentioning

confidence: 99%