&lt;b&gt;Trajetória de vida de transplantados renais: apreendendo as mudanças ocorridas na vida dos pacientes&lt;/b&gt; DOI: 10.4025/cienccuidsaude.v12i3.16259

Silva, Fernando de Souza; Simpson, Clélia Albino

doi:10.4025/cienccuidsaude.v12i3.16259

Cited by 2 publications

(2 citation statements)

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“…The kidney is my scar disease, and they feel ashamed of the arteriovenous fistulas in their arm or their dialysis catheter. 13 In addition, children and adolescents with CKD may present limitations with regard to height, delay in the development of sexual characteristics, bone deformities, and scars, which arouse the curiosity of others. They may be called out as sick people, which can lead to embarrassing situations and aggravate isolation, even for transplant recipients.…”

Section: Only God Healsmentioning

confidence: 99%

“…They may be called out as sick people, which can lead to embarrassing situations and aggravate isolation, even for transplant recipients. 13 School performance was perceived to be more affected only by caregivers of individuals on hemodialysis, which may reflect differences in patients and caregivers' school expectations. Children and adolescents with chronic conditions, as well as their families, often occupy their time and thoughts on treatment, neglecting other aspects of their lives.…”

Section: Only God Healsmentioning

confidence: 99%

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Emotional Repercussions and Quality of Life in Children and Adolescents Undergoing Hemodialysis or After Kidney Transplantation

Rotella

Nascimento

Camargo

et al. 2020

Rev. paul. pediatr.

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Objective: To investigate the emotional repercussions and quality of life (QOL) associated with end-stage kidney disease (ESKD) in children and adolescents undergoing hemodialysis or a kidney transplant (TX). Methods: We conducted a quantitative-qualitative study. 48 children and adolescents with ESKD were interviewed; half of them underwent hemodialysis treatment, and the other half had a kidney transplantation. Their respective 48 caregivers also participated in the study. The questionnaire involved both the Pediatric Quality of Life Inventory and a thematic story-drawing tool. An analysis of the QOL questionnaire’s results was done by comparing the sum of points between groups and the theme-based story-drawing consisted of interpreting the data contained in the material using Freudian and Lacanian theories. Results: In the QOL questionnaires, the total score was higher in the transplanted patients and in their caregivers, suggesting a perception of better QOL after kidney transplantation. In the specific aspects of the questionnaire, physical capacity was considered superior by children who underwent transplants and their caregivers. There were no differences between the groups in the emotional, social and school aspects. However, the caregivers of the patients who had a transplant perceived a significant difference in QOL in the school aspect. In the thematic story-drawings, emotional suffering in the two analyzed groups was evidenced regardless of the treatment. Conclusions: Despite the questionnaire results suggesting that transplantation does improve some aspects of QOL, there were no differences observed between kidney replacement therapies regarding the emotional repercussion of chronic kidney disease.

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Section: Only God Healsmentioning

confidence: 99%

Section: Only God Healsmentioning

confidence: 99%