Lost in Translation: Bibliotherapy and Evidence-based Medicine

Dysart-Gale, Deborah

doi:10.1007/s10912-007-9050-0

Cited by 20 publications

(11 citation statements)

References 20 publications

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“…Medical practice is dominated by evidence-based medicine but decisions about whom or when to treat or how to prevent the disease, cannot be made based on science alone [9]. It is necessary to consider medicine as a profoundly human enterprise and to learn a set of skills and knowledge to land on a suitable decisionmaking process when moral conflicts arise.…”

Section: Discussionmentioning

confidence: 99%

Medical Humanities in Obstetrics: The Uncertainty to be Born

Agostino¹

2017

SOJS

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SOJ SurgeryOpen Access Case Report to suspected premature rupture of the membranes. There was no associated fever, abdominal pain, urinary symptoms, trauma and any history of vaginitis. Her vital signs and blood test were regular. Obstetric examination confirmed clinically rupture of the membranes and ultrasound scan showed single viable fetus with oligohydramnios and no anomalies. Biometry corresponded to 19 weeks and the estimated fetal weight was 340 g. The cervix was closed with normal depth and the uterus was soft, not tender. The patient was given the option to terminate the pregnancy at 19 weeks but she and her husband decided against that, so she was kept in the hospital for conservative management after proper counseling. Prophylactic antibiotic with Amoxicillin was started. The temperature and the bi-weekly complete blood counts and microbiological screening for infections remained normal. Serial ultrasound scans showed the presence of progressive fetal growth despite of persistent oligohydramnios. Suddenly, at 25 weeks, the patient was urged for immediate delivery because of warning signs of intra-amniotic infection. These signs included fever, abdominal pain, vaginal spotting, foul-smelling discharge and rapid heart rate. The patient delivered a live preterm female baby by breech presentation. The baby weighed 750 g and apgar scores were 4 and 6 at 1 and 5 min, respectively. Due to persistent hypotonia and hypo reactivity, signs of respiratory distress, she was intubated and transferred to the Neonatology Intensive Care Unit (NICU). During the period of her stay in NICU, the baby was diagnosed with intraventricular hemorrhage and neonatal sepsis and she was discharged at day 54 of life. The child showed abnormal neurological behavior (agitation, uncontrolled movements, and delayed motor development) at six months of follow up. DiscussionThis case shows the hardships that families and healthcare professionals face when dealing with such situations. pPROM prior to fetal viability is a unique and relatively rare problem that is often difficult to manage. It occurs in less than 0.4% of all pregnancies [3]. Prematurity is the principal risk to the fetus, while infection morbidity and its complications are the primary maternal risks. The available literature suggests that pregnancy AbstractMedical Humanities are a multi-disciplinary field of research that promote increased awareness on the humanistic and cultural dimensions of health care. This discipline research about the profound effects of disease on patients and health professionals offering models and methods for addressing ethical dilemmas. They touch multiple disciplines such as literature, history, philosophy, anthropology, religion and arts. We will describe a case of an extreme preterm premature rupture of membranes, as an example of one of the most sensitive and debated issues in obstetric. The choice is whether to continue the pregnancy or to terminate it, being aware that there are no guarantees regarding the survival and prognosis of the unb...

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Section: Discussionmentioning

confidence: 99%

Medical Humanities in Obstetrics: The Uncertainty to be Born

Agostino¹

2017

SOJS

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“…In her narrative review "Lost in Translation: Bibliotherapy and Evidence-Based Medicine," Dysart-Gale stated that evidence-based medicine cannot evaluate bibliotherapy because it is based on the practice of quantifying subjective language and experience [114], Timm and Jones reviewed reports of government-sponsored programs in the United States, the United Kingdom, and other countries in the first five years of the twenty-first century [1]. In "Information Rx: Prescribing Good Consumerism and Responsible Citizenship," Adams and de Bont pre sented European web-based information prescription programs from both governmental and nongovern mental organizations as "supporting conventional understanding of social norms, such as the role of the medical expert as a primary leader" who encourages patients to be "informed and reflexive consumers" [115], Huber, Shapiro, and Gillaspy presented a similar analysis from the United States, "Top down versus Bottom up: The Social Construc tion of the Health Literacy Movement," in which information prescription programs had only "limited success."…”

Section: Reviewsmentioning

confidence: 99%

Information prescriptions, 1930–2013: an international history and comprehensive review

McKnight

2014

J Med Libr Assoc

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“…In the 1980s and early 1990s, bibliotherapy was a widely used but poorly researched therapeutic modality (Dysart-Gale, 2008). However, numerous randomized controlled trials (RCTs) have documented the positive effects of bibliotherapy for clinical conditions such as deliberate self-harm (Evans et al, 1999), obsessive-compulsive disorder (OCD) (Lovell, Ekers, Fulford, Baguley, & Bradshaw, 2004) and bulimia nervosa (Ghaderi, & Scott, 2003) and insomnia (Morin, Mineault, & Gagne, 1999).…”

Section: Bibliotherapymentioning

confidence: 99%

Patients' and providers' perspectives on bibliotherapy in primary care

McKenna

Hevey

Martin³

2010

Clin Psychology and Psychoth

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Bibliotherapy is a form of self-administered treatment in which structured materials provide a means to alleviate distress. Although the treatment has evidence of effectiveness, evaluations of bibliotherapy have typically focused on outcomes, and the perspectives of both the client and the service provider have been understudied. In the present study, eleven users of a bibliotherapy scheme were interviewed regarding their experiences of bibliotherapy. In addition, five referring practitioners to the scheme were also interviewed. Thematic analyses revealed three super-ordinate themes in the transcripts: participants' personal experiences of the bibliotherapy scheme factors that facilitate change and the influence of the professionals involved. The implications of these findings for bibliotherapy schemes are considered.

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Lost in Translation: Bibliotherapy and Evidence-based Medicine

Cited by 20 publications

References 20 publications

Medical Humanities in Obstetrics: The Uncertainty to be Born

Medical Humanities in Obstetrics: The Uncertainty to be Born

Information prescriptions, 1930–2013: an international history and comprehensive review

Patients' and providers' perspectives on bibliotherapy in primary care

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