Lost employment potential and supporting people with Parkinson’s to stay in work: insights from a Pan European cross-sectional survey

Collett, Johnny; Brusco, Natasha K.; Cordell, Nikki; Cockroft, A; Lawrie, Sophie; Coe, Shelly; Reed, Alex; Dawes, Helen

doi:10.1080/09638288.2022.2043460

Cited by 6 publications

(4 citation statements)

References 25 publications

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“…Previous studies have found the time to loss of employment in workforce active persons with PD to be a median of 7 (95% CI: 4.8–9.2) years 9 , a median of 6 (95% CI: 5.4–6.6) years 8 , or a mean of 4.2 ± 4.4 years 6 . In our study, there were significant differences in median workforce survival depending on the age of diagnosis.…”

Section: Discussionmentioning

confidence: 99%

“…Improved general health predisposes for later retirement at the population level 3 , which paradoxically increases the risk of interference of PD on the ability to work 4 , 5 . It is evident from PD-related research on workforce participation that not only worsened manual dexterity, but also anxiety, sleeping difficulties, and difficulties eating or drinking are factors that contribute to leaving work early 6 . The results point to fatigue 7 , rigidity/bradykinesia, and stress intolerance as particularly detrimental to the working ability 2 .…”

Section: Introductionmentioning

confidence: 99%

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Time to workforce exit after a Parkinson’s disease diagnosis

Timpka

Dahlström

Nilsson

et al. 2023

npj Parkinsons Dis.

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The impact of Parkinson’s disease (PD) on workforce participation has received little attention even though demographic, lifestyle, and political changes together will result in an increased burden of PD on the working-age population. In this study, we investigate workforce survival after a PD diagnosis, as well as what demographic factors that are associated with workforce survival. As an exploratory outcome, we investigate workforce survival in persons with and without device-aided treatment (DAT). This is a nested case-cohort study based on Swedish national data from 2001–2016. Controls were matched on year of birth, sex, and municipality of residence. The used registers contain data on demographics, social insurance, in- and outpatient visits, filled drug prescriptions, and cause of death on the person-level. A total of 4781 persons with PD and 23,905 controls were included. The median survival until all-cause workforce exit was 43 months among persons that were workforce-active at the time of PD diagnosis, compared to 66 months in non-PD controls. Being female, ≥50 years old at diagnosis, or having a lower education were contributing factors to health-related workforce exit. Persons receiving DAT during follow-up exhibited shorter workforce survival than controls. However, this needs further investigation, particularly as patients have generally already left the workforce at the time for start of DAT. It is evident that PD has grave negative effects on workforce participation. Thus, supportive measures need to start at an early stage after diagnosis, and the development of new interventions is urgently needed.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Time to workforce exit after a Parkinson’s disease diagnosis

Timpka

Dahlström

Nilsson

et al. 2023

npj Parkinsons Dis.

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“…A recent survey of those in work at diagnosis, reported that only 22% received an early intervention to support self-management and that symptoms and required support may differ in those diagnosed younger. 35 It is fundamental to the context of this report that the evaluation took place before the COVID-19 pandemic. During the pandemic First Steps moved to online delivery, which has endured to date.…”

Section: Discussionmentioning

confidence: 99%

A programme evaluation of ‘First Steps’: A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis

Collett,

Lawrie,

Bromley

et al. 2023

Clin Rehabil

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Objective A diagnosis of Parkinson's often leads to uncertainty about the future and loss of perceived control. Peer support may offer a means to address these concerns and promote self-management. Design A programme evaluation of the feasibility and potential effects of ‘First Steps’, utilising a pragmatic step wedge approach. Comparing First Steps (intervention) to (control) conditions. Setting: In the community at four sites in southern England. Participants: Newly diagnosed (≤ 12months) people with Parkinson's. Intervention: First Steps was a 2-day peer-conceived, developed and led intervention to support self-management. Main measures: At 0, 12 and 24 weeks anxiety and depression (Hospital, Anxiety and Depression Scale, HADS), daily functioning (World Health Organisation Disability Assessment Schedule, WHODAS), physical activity, quality of life (EQ5D), carer strain and service utilisation were assessed. Results Between February 2018 and July 2019, 36 participants were enrolled into intervention and 21 to control conditions, all were included in statistical analysis. Lost to follow up was n = 1 (intervention) and n = 1 adverse event was reported (control, unrelated). Of the 36 allocated to the intervention n = 22 participants completed both days of First Steps during the study period. Completion of outcome measures was >95% at 24 weeks. Small effects favouring the intervention were found for HADS (odds ratio (OR) = 2.06, 95% confidence interval (CI) 0.24:17.84), Carer Strain Index (OR = 2.22, 95% CI 0.5:9.76) and vigorous ( d = 0.42, 95% CI −0.12:0.97) and total physical activity ( d = 0.41, 95% CI −0.13:0.95). EQ5D, WHOSDAS and service utilisation, was similar between groups. Conclusions First Steps was feasible and safe and we found potential to benefit physical activity, mental health and carer strain. Further research with longer-term follow up is warranted.

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“…Participation in employment as a meaningful occupation leads to sustained mental and physical health, quality of life, and life satisfaction for people with Parkinson's disease (PwPD; Gustafsson et al, 2015;Murphy et al, 2013). However, PwPD experience progressive changes to their work performance and often do not receive employment-related services until job loss is imminent; thus, they ultimately leave the workforce on several years earlier than those without Parkinson's disease (PD; Collett et al, 2023;Koerts et al, 2016;Murphy et al, 2013;Schrag & Banks, 2006). Early, comprehensive employment intervention, as a component of integrated health care, is essential for supporting PwPD to maintain meaningful participation in employment and sustain their quality of life.…”

Section: Introductionmentioning

confidence: 99%

Applying PEOP to Develop an Intervention Framework for Employment in Parkinson’s Disease

Munsell,

Bines,

Foster

et al. 2024

OTJR: Occupational Therapy Journal of Research

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Employment intervention is essential for supporting people with Parkinson’s disease (PwPD), who leave the workforce on average 5 years earlier than those without Parkinson’s disease (PD). We developed a framework for occupational therapists (OTs) to address employment for PwPD. Our qualitative analysis employed data source triangulation of environmental scan of resources and publications, electronic medical records data, and focus groups with clinicians and PwPD. The framework underwent expert panel review by OTs and researchers who are knowledgeable of current evidence-based practices for PD. The framework is based on the Person-Environment-Occupation-Performance (PEOP) Model and PEOP Occupational Therapy Process and comprised of four parts: PEOP features of PD relevant to employment, performance changes experienced by PwPD, a process to evaluate and address employment, and intervention ideas. This framework serves as an impetus to explore evidence-based, scalable, proactive intervention approaches to address employment in PwPD.

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Lost employment potential and supporting people with Parkinson’s to stay in work: insights from a Pan European cross-sectional survey

Cited by 6 publications

References 25 publications

Time to workforce exit after a Parkinson’s disease diagnosis

Time to workforce exit after a Parkinson’s disease diagnosis

A programme evaluation of ‘First Steps’: A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis

Applying PEOP to Develop an Intervention Framework for Employment in Parkinson’s Disease

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