Loss of Dignity in Severe Chronic Obstructive Pulmonary Disease

Solomon, Brahm K.; Wilson, Keith G.; Henderson, Peter; Poulin, Patricia A.; Kowal, John; McKim, Douglas

doi:10.1016/j.jpainsymman.2015.11.007

Cited by 18 publications

(22 citation statements)

References 58 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Up to 1 in 10 people with COPD report a loss of dignity; 'the quality or state of being worthy, honoured, or esteemed', which in cross-sectional studies is associated with requiring assistance to self-care, anxiety and depression, and being uncertain about future health care. [42][43][44]…”

Section: Common Experiences Of Advanced Copdmentioning

confidence: 99%

Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

et al. 2017

View full text Add to dashboard Cite

People with advanced chronic obstructive pulmonary disease (COPD) have distressing physical and psychological symptoms, often have limited understanding of their disease, and infrequently discuss end-of-life issues in routine clinical care. These are strong indicators for expert multidisciplinary palliative care, which incorporates assessment and management of symptoms and concerns, patient and caregiver education, and sensitive communication to elicit preferences for care towards the end of life. The unpredictable course of COPD and the difficulty of predicting survival are barriers to timely referral and receipt of palliative care. Early integration of palliative care with respiratory, primary care, and rehabilitation services, with referral on the basis of the complexity of symptoms and concerns, rather than prognosis, can improve patient and caregiver outcomes. Models of integrated working in COPD could include: services triggered by troublesome symptoms such as refractory breathlessness; short-term palliative care; and, in settings with limited access to palliative care, consultation only in specific circumstances or for the most complex patients.

show abstract

Section: Common Experiences Of Advanced Copdmentioning

confidence: 99%

Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

et al. 2017

View full text Add to dashboard Cite

show abstract

“…27 In one study, about 13% of patients with severe COPD reported a loss of dignity that was correlated with anxiety and depression but not lung function. 25 Community dwelling palliative home care patients experiencing dyspnea were more likely to show overall signs of distress. 2 Dyspnea appears to be directly related to anxiety and depression, because by improving symptoms of shortness of breath, rates of anxiety and depression also improved in the same patient.…”

Section: Chronic Obstructive Pulmonary Disease (Copd)mentioning

confidence: 98%

A Review of Non-Pharmacological Pulmonary Rehabilitation for Patients Receiving Palliative Care

Dawson¹,

Freeman²,

Adam³

2017

Pulm Res Respir Med Open J

View full text Add to dashboard Cite

Introduction: Dyspnea is common in patients experiencing chronic and malignant lung conditions. It is a very distressing symptom that often results in anxiety and depression. Pulmonary rehabilitation together with palliative care can provide physical, psychological, and quality of life (QoL) improvements in patients that receive it. Methods: This literature review examined articles published in the last 5 years to give a current summary of the scientific literature regarding pulmonary rehabilitation for persons receiving palliative care treatment. Focus was placed on patients with chronic obstructive pulmonary disease, cancer, interstitial lung disease, and Huntington's disease. From an initial 218 articles, 56 met the inclusion criteria for this review. Results: Prominent themes that emerged were the beneficial effects of pulmonary rehabilitation, even in late stages of lung disease, and the positive impact palliative care can have on the patient. Simultaneously, there were considerable barriers to access mentioned throughout the literature, which prevents patients from receiving either pulmonary rehabilitation and/or palliative care at the end-of life. Educating health care providers on the benefits of pulmonary rehabilitation, and providing timely referrals to pulmonary rehabilitation and palliative care is important. Understanding factors which may prompt a patient to attend and complete, or discontinue, pulmonary rehabilitation treatment is important. Conclusion: Although, pulmonary rehabilitation itself is beneficial, meeting the patient where they are at and pairing rehabilitation with patient empowerment and motivating therapies such as mindfulness-based therapy may improve the patient's QoL and care at the end-of-life. Most pulmonary rehabilitation programs are focused and tailored to patients with chronic obstructive pulmonary disease. Exploring how tailored pulmonary rehabilitation programs may be effective in other populations, such as patients with interstitial lung disease, Huntington's disease, and end-stage cancer, is warranted.

show abstract

“…Multilayered distress exemplifies the complex presence of physical, psychological and existential distress (Albers et al, 2013;Chochinov et al, 2016;Solomon et al, 2016), stemming from loss of the sense of self (Monaro et al, 2014), bodily changes evident to others, and changes in one's appearance (Olsson et al, 2008;Solomon et al, 2016). These individuals also reported feeling ashamed, degraded, or embarrassed because of the stigma from their medical problems (Solomon et al, 2016).…”

Section: Multilayered Distressmentioning

confidence: 99%

“…Negotiating mutual understanding (Sellars et al, 2018), approaching patients as wholly worthwhile individuals (van Gennip et al, 2015), encouraging autonomy and its interplay (van Gennip et al, 2015) and providing respectful and attentive communication (Tong et al, 2014) brought about a continuation of reciprocal relations. Continuation of social support occurred by assisting individuals with chronic progressive diseases: (a) to encourage patients to participate in family and social activities to fight isolation and loneliness (Skuladottir & Halldorsdottir, 2011); (b) through facilitating participation in support groups for patients and families (Monaro et al, 2014); (c) to establish appropriate interdisciplinary care (Solomon et al, 2016) and (d) through providing good professional care and social support (Oosterveld-Vlug et al, 2014). Continuation of individualized care was fostered by: (a) being attentive, proactive and taking the individual seriously (van Gennip et al, 2015); (b) supporting adjustment to their new way of life (Monaro et al, 2014), and (c) continuing to maximize function and independence (Reuben et al, 2013).…”

Section: Continued Relationshipmentioning

confidence: 99%

Concept analysis of dignity‐centered care for people with chronic progressive disease

Igai

2019

Japan Journal Nursing Sci

View full text Add to dashboard Cite

Aim This concept analysis describes attributes, antecedents, and consequences of dignity‐centered care for people with chronic progressive disease. Methods Rodgers' method of concept analysis was used to clarify the concept's defining attributes. Databases searched were PubMed, MEDLINE, EMBASE, CINAHL, and Ichushi‐Web by NPO Japan Medical Abstracts Society, in English and Japanese, from 1976 to 2017. The combination of MESH and keywords used were (dignity), and (care), and (chronic disease) or (chronic illness). Results Three antecedents were identified: loss of physical function and reduced psychological capacity, independence and role; living with uncertainty of illness; and multi‐faceted distress. There were four attributes identified: bolstering self‐esteem, reducing multi‐faceted distress, continued relationship, and protecting individual's rights. Four consequences were identified: improved self‐esteem, relief from multi‐faceted distress, deepening the purpose and meaning of life, and maintaining and/or improving the quality of life. Conclusion Dignity‐centered care is defined as: care that results in improvement of self‐esteem, deepens purpose and meaning of life, maintains and improves quality of life and provides relief from multi‐faceted distress. This happens through protecting the individual's rights, bolstering self‐esteem and reducing multi‐faceted distress through continued relationships with family, friends, and providers. There is a need for continued involvement with those individuals who have lost physical function, psychological capacity, autonomy, and role. They live with uncertainty of illness and exhibit multi‐faceted distress. This concept is a fulcrum for patient and nurse reciprocity enabling both to realize greater integrity and respect, and is useful for nursing practice and research.

show abstract

Loss of Dignity in Severe Chronic Obstructive Pulmonary Disease

Cited by 18 publications

References 58 publications

Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

A Review of Non-Pharmacological Pulmonary Rehabilitation for Patients Receiving Palliative Care

Concept analysis of dignity‐centered care for people with chronic progressive disease

Contact Info

Product

Resources

About