Looking inside the bag of tools: creating research encounters with parents with an intellectual disability

Munford, Robyn; Sanders, Jackie; Veitch, Brigit Mirfin; Conder, Jenny

doi:10.1080/09687590802038845

Cited by 17 publications

(15 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This led to concern at becoming another transient visitor in the lives of the participants, albeit over a 3‐year period. In recognition of this, Munford et al's () concept of a “bag of tricks” was adopted. Although originally used with physical objects for conducting research with parents with an intellectual disability and their children, the bag in this instance included pictures, a university identity card, a digital voice recorder (which was used to signify the start of the formal visit), and literally a bag—a handbag which Rose enjoyed for the tactile experience of emptying and touching the contents, something that she did at the start of each visit as will be explained in Case Descriptions.…”

Section: Methodsmentioning

confidence: 99%

Investigating the Lived Experience of People with Down Syndrome with Dementia: Overcoming Methodological and Ethical Challenges

Watchman

2016

Policy Practice Intel Disabi

View full text Add to dashboard Cite

Adults with Down syndrome are at increased risk of dementia at a significantly younger age and remain under-represented as participants in dementia-related research. Because little is known about their personal experiences either immediately postdiagnosis or as dementia progresses, there is little opportunity that shared individual experiences can shape future policy and practice. To remedy this omission, the author examined methodological and ethical challenges identified as part of a research study that included people with Down syndrome affected by dementia. It has been contended that traditional qualitative approaches are less effective when participants are affected by changing cognitive functioning and reduced verbal communication. To counteract this contention overt participant observation and an adapted narrative research method were used as part of a three-year longitudinal study to help better understand the lived experiences of three adults with Down syndrome affected by dementia. Methodological and ethical challenges were shown to collide, and factors contributing to this effect included identifying process consent, accurate representation of participants, the role of and relationship with the researcher, participants, lack of awareness of their diagnosis of dementia, and need to recognize the importance of social interaction while maintaining academic rigor. Reflections are proffered on two conceptual and practice issues, with a call for both to be recognized and addressed in terms of future policy and practice. First is a lack of awareness of a sense of “self” or identity, resulting in individuals with Down syndrome and dementia being defined by their situation rather than individual preference or need. Second is the lack of information postdiagnosis about dementia being shared with people who have Down syndrome

show abstract

Section: Methodsmentioning

confidence: 99%

Investigating the Lived Experience of People with Down Syndrome with Dementia: Overcoming Methodological and Ethical Challenges

Watchman

2016

Policy Practice Intel Disabi

View full text Add to dashboard Cite

show abstract

“…Work that has brought research participants' voices into research articles has often sampled or lifted their words instead of providing them a platform to address the dissemination readership directly (Goodley & Roets, 2008;Munford, Sanders, Mirfin, & Conder, 2008). We understand that there can be factors that lead to this compromise but wanted to push beyond this solution as far as possible to reconfigure the positions of power that are normative within academic publishing as our presentation goes through four iterations of revision.…”

Section: Assembling Space For Socially Just Dissemination Practicementioning

confidence: 99%

Platforms, Plateaus, and String

McFarlane¹,

Brookes²,

McInnes³

et al. 2013

Qualitative Inquiry

View full text Add to dashboard Cite

This article documents the process of attempting to challenge barriers that prevent disabled people with high levels of institutional intervention from taking part in research dissemination and its more elevated spaces of presentation, debate, and influence. We have sought to keep the disabled researchers on our team in the conversation throughout article production. Thus, the article is a series of dialogues conducted across the production process. These dialogues explore the embodied methodologies that made risk management policy more accessible to those whose views about it we wanted to hear. We also explore the spatial metaphors that arose as we reflected on research. This involves an engagement with Deleuze and Guattari's metaphor of plateau and an understanding of our work as a series of assemblages that are configured and reconfigured to adapt to changing opportunities.

show abstract

“…In using a teacher who had a positive relationship with the pupils enabled any sensitivity to be addressed. To assist with the research-relationship, a 'bag of tools' (Munford, Sanders, Mirfin-Veitch, & Conder, 2008) including an iPad and the emotive pictorial dictionary were utilised to act as a reminder to the pupils that the situation they were in, with their PE teacher, was that of a research situation.…”

Section: Methodsmentioning

confidence: 99%

Capturing the world of physical education through the eyes of children with autism spectrum disorders

Lamb

Firbank

Aldous

2014

Sport, Education and Society

View full text Add to dashboard Cite

The potential benefits of physical education (PE) are universal for all pupils. However, facilitating such benefits in children with autism spectrum disorders (ASD) requires careful planning. This paper reports on a small-scale case study at one school in eastern England, exploring physical education through the eyes of children (n = 5), aged 12-16, with autistic spectrum disorders. Photo-elicitation was adopted as the research tool to accord authority to the voices of the pupils, empowering them to share their feelings towards the subject by capturing significant aspects of physical education. The photographs provided prompts for greater exploration during unstructured interviews. Using the concepts of Bourdieu's reflexive sociology, the paper draws attention to how pupil's embodied dispositions interacted with what may be illustrated as the delimited spaces of the physical education field-physical education changing rooms, physical education corridors, the physical education teacher's office and physical education activities in the development of positive and negative positions and practices. The teacher's office was regarded positively as were activities that provided opportunities for engagement with peers. Opportunities to be heroic, such as scoring a goal for their team or being given an official role were important factors as was the opportunity to engage in some team sports. However, pupils' interaction with the changing rooms and physical education corridors were viewed with trepidation, worry and fear. The paper concludes by highlighting that both positive and negative interactions with the spaces of physical education develop forms of social and symbolic capital shaping the physical education experiences for pupils with ASD. Anticipating barriers presented within these integral fields of physical education space can help in preparing a rich and inclusive experience for pupils with ASD. Teachers may be better informed in providing strategies to facilitate communication and social interaction whilst allowing all pupils to engage positively with physical education.

show abstract

Looking inside the bag of tools: creating research encounters with parents with an intellectual disability

Cited by 17 publications

References 20 publications

Investigating the Lived Experience of People with Down Syndrome with Dementia: Overcoming Methodological and Ethical Challenges

Investigating the Lived Experience of People with Down Syndrome with Dementia: Overcoming Methodological and Ethical Challenges

Platforms, Plateaus, and String

Capturing the world of physical education through the eyes of children with autism spectrum disorders

Contact Info

Product

Resources

About