Long-term follow-up on continuous intrathecal Baclofen therapy in non-ambulant children with intractable spastic Cerebral Palsy

Vles, Georges; Soudant, Dan; Hoving, Marjanke A.; Vermeulen, R. Jeroen; Bonouvrié, Laura A.; Oostenbrugge, Robert J. van; Vles, Johan S.H.

doi:10.1016/j.ejpn.2013.06.003

Cited by 34 publications

(49 citation statements)

References 19 publications

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“…Unfortunately, children with CP in South Africa often had to wait very long periods for medical appointments, and they lacked medical treatment in terms of evidence-based medicine, such as BoNT-A (Williams et al, 2013) and CITB (Vles et al, 2013). Our study showed that it was a challenge to access this kind of medication, mostly due to financial constraints.…”

Section: Contextual Factorsmentioning

confidence: 85%

“…BoNT-A and CITB are examples of treatments that evidently reduce pain in children (Pin, Elmasry, & Lewis, 2013;Vles et al, 2013). Unfortunately, children with CP in South Africa often had to wait very long periods for medical appointments, and they lacked medical treatment in terms of evidence-based medicine, such as BoNT-A (Williams et al, 2013) and CITB (Vles et al, 2013).…”

Section: Contextual Factorsmentioning

confidence: 99%

“…As orally administered medication does not always reduce pain in children with CP, alternatives could be implemented with other types of medication, such as continuous intrathecal baclofen (CITB) therapy (Vles et al, 2013) or botulinum toxin type-A (BoNT-A; Williams et al, 2013). Examples of complementary methods that could be implemented are strength training to manage spasticity and muscle weakness (Williams et al, 2013), massage therapy (Nilsson, Johansson, Enskär, & Himmelmann, 2011), selective dorsal rhizotomy for reducing muscle spasticity, casting for improving and maintaining ankle range of motion, and neurodevelopmental treatment (NDT), also known as the Bobath concept.…”

Section: Literature Reviewmentioning

confidence: 99%

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Professionals’ Perceptions about the Need for Pain Management Interventions for Children with Cerebral Palsy in South African School Settings

Nilsson

Johnson

Adolfsson

2016

Pain Management Nursing

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Background: Pain is common in children with cerebral palsy (CP) and may have negative consequences for children's success in their studies. Research has shown that pain in childhood negatively influences individuals' participation and quality of life in later years.Aim: This study investigated how professionals in South African school settings respond to children's need for pain management in an attempt to enable the children to be active participants in school activities, despite their pain. Design:The study was descriptive and followed a qualitative design, i.e. focus group interviews with semi structured questions and a conventional content analysis. Data, in terms of professional statements on the topic, were collected from five focus group sessions conducted during one week. Qualitative content analysis was used to analyze the data. Similar statements were combined, coded, and sorted into main categories and subcategories.Results: The analysis identified three main categories for pain management: environmental, treatment, and support strategies. In addition, four groups of statements emerged on how contextual factors might affect pain in children with CP and their participation in school settings.

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Section: Contextual Factorsmentioning

confidence: 85%

Section: Contextual Factorsmentioning

confidence: 99%

Section: Literature Reviewmentioning

confidence: 99%

See 1 more Smart Citation

Professionals’ Perceptions about the Need for Pain Management Interventions for Children with Cerebral Palsy in South African School Settings

Nilsson

Johnson

Adolfsson

2016

Pain Management Nursing

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“…Orthopedic surgery can produce a decrease in pain associated with musculoskeletal deformities (Hasler 2013;Vles et al 2013). Multimodal analgesia and epidural analgesia associated with surgery have been shown to be effective to control perioperative pain in children with CP , as well as local analgesic products used during the injections of botulinum toxin (Brochard et al 2011).…”

Section: Pain Managementmentioning

confidence: 99%

Comorbid Conditions in Individuals with Intellectual Disabilities

Matson¹,

Matson²

2015

Autism and Child Psychopathology Series

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“…In long-term follow-up studies, the benefit has proved to be sustainable over time [8][9][10][11], with many individuals demonstrating high levels of satisfaction and continuing to benefit following a pump replacement once the battery life of the original pump has been depleted.…”

Section: Introductionmentioning

confidence: 99%

Troubleshooting Complications of Intrathecal Baclofen Therapy

Stevenson¹

2017

Phys Med Rehabil Int

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Intrathecal baclofen (ITB) is a well-recognised treatment for severe spasticity refractory to oral medications. However it is known to have a significant complication rate with serious potentially fatal consequences of baclofen overdose or withdrawal. It is therefore essential that patients receiving ITB therapy are managed by responsive, accessible multidisciplinary services with a systematic and timely approach to troubleshooting complications when they occur. A troubleshooting algorithm is presented here to facilitate prompt and effective investigations and treatment; this tool can be adapted by individual services to suit their own particular patient cohort and healthcare setting.

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Long-term follow-up on continuous intrathecal Baclofen therapy in non-ambulant children with intractable spastic Cerebral Palsy

Cited by 34 publications

References 19 publications

Professionals’ Perceptions about the Need for Pain Management Interventions for Children with Cerebral Palsy in South African School Settings

Professionals’ Perceptions about the Need for Pain Management Interventions for Children with Cerebral Palsy in South African School Settings

Comorbid Conditions in Individuals with Intellectual Disabilities

Troubleshooting Complications of Intrathecal Baclofen Therapy

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