Long‐term follow‐up of coeliac disease – what do coeliac patients want?

Bebb, James R.; Lawson, Adam; Knight, Thomas; Long, R. G.

doi:10.1111/j.1365-2036.2006.02824.x

Cited by 63 publications

(69 citation statements)

References 24 publications

(28 reference statements)

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“…Indeed, approximately 10% of CD patients diagnosed in c hildhood may develop c linic al toleranc e to gluten. In the United Kingdom, about one-third of CD subjec ts are under no ac tive follow-up [101] .…”

Section: Gluten Free Dietmentioning

confidence: 99%

Recent advances in celiac disease

Freeman

Chopra²,

Clandinin³

et al. 2011

WJG

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Celiac disease now affects about one person in a hundred in Europe and North America. In this review, we consider a number of important and exciting recent developments, such as clinical associations, HLA-DQ2 and HLA-DQ8 predispositions, the concept of potential celiac disease, the use of new imaging/endoscopy techniques, and the development of refractory disease. This review will be of use to all internists, pediatricians and gastroenterologists.

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Section: Gluten Free Dietmentioning

confidence: 99%

Recent advances in celiac disease

Freeman

Chopra²,

Clandinin³

et al. 2011

WJG

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show abstract

“…Treatment of celiac disease is primarily nutritional and the dietitian's role is therefore of paramount importance. In one survey, the preferred method of follow-up by most patients was to see a dietitian with a doctor being available (Bebb et al 2006).…”

Section: Who Should Provide Follow-up?mentioning

confidence: 99%

“…Hence, not all patients with celiac disease receive regular follow-up care. In a study of 126 adults with celiac disease in United Kingdom, only 62% were receiving formal follow-up care (Bebb et al, 2006). Of these, 92% were being followed at a hospital clinic and 8% by their general practitioner.…”

mentioning

confidence: 99%

Principles and Strategies for Monitoring Individuals with Celiac Disease

Rashid¹

2012

Celiac Disease - From Pathophysiology to Advanced Therapies

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“…There are some established dietitian-led clinics (20) with access to a gastroenterologist as necessary. Some patients prefer this management pathway (17) . A dietitian, expert in coeliac disease, can: check the nutritional status of the patient; check the nutritional adequacy of a GFD; assess the strictness of the GFD and compliance; provide prescription advice for gluten-free foods; provide labelling information; educate about gluten and the diet; help the family in the understanding of the diet and disease; provide reassurance and support.…”

Section: Follow-up Interventionsmentioning

confidence: 99%

“…These interventions can be undertaken by more than one healthcare professional, although there are strong recommendations that an expert dietitian should be involved (16)(17)(18)(19) . There are some established dietitian-led clinics (20) with access to a gastroenterologist as necessary.…”

Section: Follow-up Interventionsmentioning

confidence: 99%

Symposium 1: Joint BAPEN and British Society of Gastroenterology Symposium on ‘Coeliac disease: basics and controversies’ Dietitians are better than clinicians in following up coeliac disease

2009

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It seems obvious to healthcare professionals that patients with coeliac disease should receive regular follow-up. Surprisingly, there is little evidence that patients benefit in terms of reduced morbidity or mortality. However, several authoritative bodies have published guidelines on the management of coeliac disease that recommend regular follow-up. There is good evidence that compliance with a gluten-free diet reduces the risk of complications such as osteoporosis or small bowel lymphoma. Compliance is enhanced particularly by education about the disease and the gluten-free diet and by support from peers or professionals. Such input can be provided by regular follow-up, which thereby should improve compliance and hence long-term health. The consensus of the recommendations for follow-up suggests an annual review by a physician and dietitian. At annual follow-up the disease status can be checked and nutritional advice can be given, including checking the adequacy of, and the compliance with, the gluten-free diet. Complications and associated medical conditions can be sought, genetic risks explained and support and reassurance given. Specialist dietitians have particular expertise in relation to diet and nutritional management; specialist clinicians have a broader range of expertise in many aspects of management of the disease. A team approach for providing follow-up is the ideal, with a clinician and dietitian, both with expertise in coeliac disease, being involved. No one particular group of healthcare professionals is necessarily better than the other at providing follow-up.

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Long‐term follow‐up of coeliac disease – what do coeliac patients want?

Abstract: SUMMARY BackgroundCoeliac disease affects up to 1% of the population and the British Society of Gastroenterology recommends long-term follow-up of these patients, although the absolute risk of complications is small.

Cited by 63 publications

References 24 publications

Recent advances in celiac disease

Recent advances in celiac disease

Principles and Strategies for Monitoring Individuals with Celiac Disease

Symposium 1: Joint BAPEN and British Society of Gastroenterology Symposium on ‘Coeliac disease: basics and controversies’ Dietitians are better than clinicians in following up coeliac disease

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