Long-Term Effects of the Booster-Enhanced READY-Girls Preconception Counseling Program on Intentions and Behaviors for Family Planning in Teens With Diabetes

Charron‐Prochownik, Denise; Sereika, Susan M.; Becker, Dorothy J.; White, Neil H.; Schmitt, Patricia; Powell, A. Blair; Diaz, Ana M.; Jones, J G; Herman, William H.; Fischl, Andrea F.; McEwen, Laura N.; DiNardo, Monica; Guo, Feng; Downs, Julie S.

doi:10.2337/dc13-0355

Cited by 75 publications

(97 citation statements)

References 10 publications

(22 reference statements)

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“…These questionnaires were given at baseline, pre and post at each intervention session (3 months and 6 months), and at the 12-month follow-up. The methods and sample for the RCT have been described in detail elsewhere [14]. Prior to randomization, all participants completed both open-ended items (understanding) and a close-ended measure (knowledge) about reproductive health concerning diabetes and pregnancy, diabetes and contraception, and PC.…”

Section: Methodsmentioning

confidence: 99%

“…Several of the successful components of teen pregnancy prevention programs (e.g., abstinence as one method of family planning/pregnancy prevention, delay of sexual initiation, improving communication, and skills building) [9,10] were also integrated into the READY-Girls program that was formatted as a multi-media awareness educational program [11]. The efficacy of READY-Girls has been validated through several randomized control trials (RCT) [12,13,14], and it was shown to be cost-effective [13].…”

Section: Introductionmentioning

confidence: 99%

“…A multi-site RCT was then conducted to evaluate the effects of the modified multi-media READY-Girls intervention (2 part DVD and book) on diabetes and reproductive health awareness, understanding, knowledge, attitudes, intention and actual behavior (e.g., using effective family planning, seeking PC, and initiating discussion with health professionals), and hemoglobin A1C [14]. Participants were randomized into either a treatment group who received the READY-Girls program (over 3 consecutive sessions) or a usual care group, stratified on sexual activity, age, and type of diabetes.…”

Section: Introductionmentioning

confidence: 99%

“…In preparation of the most recent RCT [14], which focused on minority teens with T1D and T2D, the READY-Girls program and questionnaires were modified using a mental models approach. Following the well-established mental models methodology [15], this research first used a formal model developed by health professionals [16] to identify the most critical relevant concepts, which were confirmed by the literature.…”

Section: Introductionmentioning

confidence: 99%

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Assessing Reproductive Health Knowledge in Female Adolescents with Diabetes

Charron‐Prochownik¹,

Fischl²,

Sereika³

et al. 2015

PLAID

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Objective: Women with diabetes have increased risks of pregnancy-related complications. Knowledge of preventing these risks can be helpful. This paper describes the understanding and knowledge of diabetes and reproductive health of adolescent females with type 1 diabetes (T1D). Research Design and Methods:For this secondary analysis, a descriptive mixed-method design was employed using baseline data from adolescents enrolled in a preconception counseling (PC) intervention study (READY-Girls program) targeting adolescent women with diabetes to enhance reproductive health awareness, knowledge, beliefs, decision-making skills, and behaviors. Participants (aged 13-20 yrs) were recruited from 2 university-based diabetes clinics. Content analysis was used to identify recurring themes on 3 open-ended computer-based questions regarding the understanding of diabetes and pregnancy, contraception, and PC; kappa coefficients were used to assess inter-coder agreement. Subscale scores from multiple-choice vignettes were computed in terms of 100% correctness (<70% indicated low levels) for knowledge of diabetes and pregnancy, contraception, and PC. Qualitative and quantitative results were compared.Results: Participants (n=101) were on average 15.8 yrs, 21% were sexually active with a mean age at sexual debut of 15.3yrs. Overarching themes from qualitative data were that participants knew "little or nothing" and had misconceptions regarding diabetes and pregnancy, contraception, and PC. Inter-coder agreement for content analysis was high. Knowledge scores were low (diabetes and pregnancy, 64.5%; diabetes and contraception, 79.8%; PC, 67.5%).Conclusion: Risky behavior and low knowledge scores confirmed their perceived lack of understanding from the open-ended questions regarding diabetes and pregnancy and PC. Teens had greater knowledge of contraception. Diabetes education should include PC and reproductive health for teens with diabetes.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Assessing Reproductive Health Knowledge in Female Adolescents with Diabetes

Charron‐Prochownik¹,

Fischl²,

Sereika³

et al. 2015

PLAID

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“…READY-Girls is a validated developmentally appropriate evidence-based educational PC intervention for adolescent girls starting at puberty [8][9][10]. Three randomized controlled trials (RCT) at multiple diabetes clinic sites using the READY-Girls intervention have been conducted (1999,2002, and 2005) on teens 13-20 years of age and results have been previously reported [11][12][13]. Along-term follow-up survey study was later conducted online with past READY-Girls participants regarding PC and pregnancy outcomes.…”

Section: Introductionmentioning

confidence: 99%

Agreement between Self-Reports and Medical Records in the Reporting of Pregnancy Outcomes in Women with Type 1 Diabetes

Fischl¹,

Charron‐Prochownik²,

Becker³

et al. 2017

Res J of Womens Health

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Background: Since previous studies have shown that self-reports may not be as accurate as medical record data, this secondary analysis investigated the agreement between maternal self-report (SR) and medical record (MR) documentation of pregnancy outcomes (e.g., length of hospitalization, neonatal birth weight, complications) in women with type 1 diabetes (T1D). Methods: An online SR follow-up study to evaluate long-term reproductive-health outcomes was conducted with women who previously participated in randomized controlled trials (RCT) to test a preconception counseling (PC) intervention (READY-Girls) as adolescents and included a matched comparison group of women with T1D who did not receive the PC intervention as teens. Data were collected from SR surveys and MR review. Agreement between SR and MR entries was assessed using kappa coefficients and intra-class correlation coefficients (ICC). Results: Of the 101 women with T1D (51 RCT, 50 matched controls) who were recruited for long-term follow-up (98.0% Caucasian, age range 18-34 years, 82.0% had some college, T1D duration range 0-30 years), 18 (17.8%) reported ever being pregnant and for 8 (47.1%) of these women access to MR was obtained for 14 pregnancies. These women had a mean±SD age of 28.57±1.91 years at entry and duration of T1D of 19.75±5.45 years. Perfect agreement (kappa=1.0) was observed between SR and MR for type of delivery and neonatal birth weight >9 pounds. Excellent agreement was observed for neonatal weight (ICC=.951). Lower levels of agreement were found between SR and MR for duration of post-delivery hospitalization [maternal (ICC=.269); neonatal (ICC=.657)] and maternal and neonatal complications (kappa=.639 and kappa=.025, respectively). Conclusion: There was excellent agreement for several pregnancy outcomes in these women with T1D. Self-report of pregnancy outcomes should be verified by medical record data, especially time-related variables which could be more difficult to recall, suggesting that method of reporting for these types of variables may not be interchangeable.

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