Long-term burden of care and radiation exposure in survivors of esophageal atresia

Zamiara, Paul; Thomas, Karen E.; Connolly, Bairbre; Lane, Hillary; Marcon, Margaret; Chiu, Priscilla

doi:10.1016/j.jpedsurg.2015.05.006

Cited by 17 publications

(9 citation statements)

References 23 publications

(25 reference statements)

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“…The use of intralesional steroids has been reported with inconsistent improvement of anastomotic strictures. 28,31,32 Potential complications such as perforation, infection, pleural effusion, or adrenal suppression are well known. 1 Side effects have been reported neither for local nor for systemic shortterm steroid treatment.…”

Section: Discussionmentioning

confidence: 99%

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework

et al. 2019

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Introduction Improvements in care of patients with esophageal atresia (EA) and tracheoesophageal fistula (TEF) have shifted the focus from mortality to morbidity and quality-of-life. Long-term follow-up is essential, but evidence is limited and standardized protocols are scarce. Nineteen representatives of the European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) from nine European countries conducted a consensus conference on the surgical management of EA/TEF. Materials and Methods The conference was prepared by item generation (including items of surgical relevance from the European Society for Pediatric Gastroenterology Hepatology and Nutrition (ESPGHAN)-The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) guidelines on follow-up after EA repair), item prioritization, formulation of a final list containing the domains Follow-up and Framework, and literature review. Anonymous voting was conducted via an internet-based system. Consensus was defined as ≥75% of those voting with scores of 6 to 9. Results Twenty-five items were generated in the domain Follow-up of which 17 (68%) matched with corresponding ESPGHAN-NASPGHAN statements. Complete consensus (100%) was achieved on seven items (28%), such as the necessity of an interdisciplinary follow-up program. Consensus ≥75% was achieved on 18 items (72%), such as potential indications for fundoplication. There was an 82% concordance with the ESPGHAN-NASPGHAN recommendations. Four items were generated in the domain Framework, and complete consensus was achieved on all these items. Conclusion Participants of the first ERNICA conference reached significant consensus on the follow-up of patients with EA/TEF who undergo primary anastomosis. Fundamental statements regarding centralization, multidisciplinary approach, and involvement of patient organizations were formulated. These consensus statements will provide the cornerstone for uniform treatment protocols and resultant optimized patient care.

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Section: Discussionmentioning

confidence: 99%

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework

et al. 2019

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“…39 In general, patients with EA/TEF needed complex and frequent hospital-based care as recently also shown by a multidisciplinary team from Toronto. 40 If a revision of the accomplished esophagoesophagostomy unfortunately becomes necessary, one has to deal with very difficult and complex cases that may still require further surgical interventions to ultimately regain esophageal continuity. In comparison with other large series, 10, 41 replacement of native esophagus in our cohort was with 3% very low, which is probably associated with the high rate of delayed primary repair.…”

Section: Discussionmentioning

confidence: 99%

Postoperative Complications and Functional Outcome after Esophageal Atresia Repair: Results from Longitudinal Single-Center Follow-Up

Friedmacher

Kroneis

Huber-Zeyringer

et al. 2017

Journal of Gastrointestinal Surgery

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“…Corticosteroids. Use of intralesional triamcinolone acetonide injections has been reported, both in adults and children, with inconsistent improvement in AS (10,(116)(117)(118). Potential complications of esophageal injection(s) of steroids include perforation, intramural infection, candida infection, mediastinitis, and pleural effusion, as well as the potential for adrenal suppression from exogenous systemic steroid administration.…”

Section: Box 8)mentioning

confidence: 99%

ESPGHAN‐NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children With Esophageal Atresia‐Tracheoesophageal Fistula

Krishnan

Mousa

Dall’Oglio

et al. 2016

J. pediatr. gastroenterol. nutr.

299

431

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Thirty-six clinical questions addressing the diagnosis, treatment, and prognosis of the common GI complications in patients with EA were formulated. Questions on the diagnosis, and treatment of gastroesophageal reflux, management of "cyanotic spells," etiology, investigation and management of dysphagia, feeding difficulties, anastomotic strictures, congenital esophageal stenosis in EA patients were addressed. The importance of excluding eosinophilic esophagitis and associated GI anomalies in symptomatic patients with EA is discussed as is the quality of life of these patients and the importance of a systematic transition of care to adulthood. A systematic literature search was performed from inception to March 2014 using Embase, MEDLINE, the Cochrane Database of Systematic Reviews, Cochrane Central Register of Controlled Clinical Trials, and PsychInfo databases. The approach of the Grading of Recommendations Assessment, Development and Evaluation was applied to evaluate outcomes. During 2 consensus meetings, all recommendations were discussed and finalized. The group members voted on each recommendation, using the nominal voting technique. Expert opinion was used where no randomized controlled trials were available to support the recommendation.

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Long-term burden of care and radiation exposure in survivors of esophageal atresia

Cited by 17 publications

References 23 publications

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework

Postoperative Complications and Functional Outcome after Esophageal Atresia Repair: Results from Longitudinal Single-Center Follow-Up

ESPGHAN‐NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children With Esophageal Atresia‐Tracheoesophageal Fistula

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