‘Long COVID’ and seeing in the pandemic dark

Tronto, Joan C.; Fine, Michael

doi:10.1332/239788221x16383754538816

Cited by 3 publications

(3 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The qualitative data consistently highlighted the overarching theme of navigation difficulties within health and community systems. Family caregivers often find themselves becoming the de facto navigators in these systems [ 10 , 11 , 49 , 50 ]. Before the pandemic (2017), Taylor and Quesnel-Vallée estimated that family caregivers spend a significant portion of their time (15 to 50%) on the structural burden of care, which involves assessing and understanding needs, advocating for care, accessing services, and coordinating various aspects [ 37 ].…”

Section: Discussionmentioning

confidence: 99%

“…Notably, in June 2020 as they called for papers about the impact of the COVID-19 pandemic, Tronto and Fine suggested the pandemic had highlighted the importance of care and the need for greater public support for care workers and family carers [ 97 ]. By 2022 however, they were more pessimistic, suggesting a return to the pre-COVID cultural status quo [ 10 ]. They argued we should culturally recognize care as a social justice issue; then emphasized the importance of transforming toward a caring society based on democratic care practice, where all voices and perspectives are included and heard.…”

Section: Discussionmentioning

confidence: 99%

“…However, as the pandemic continued into 2022, public gratitude diminished because of lockdown fatigue, vaccine conspiracy theories, and disparagement of medical knowledge [ 8 ]. Providers faced insults, threats, and increased stress as the pandemic persisted, alongside extended work hours, and changes in care delivery methods [ 6 , 9 , 10 ]. A survey conducted from September to November 2021 revealed that 92% of nurses, 83.7% of physicians, and 83.0% of personal support workers/healthcare aides and other providers felt more stressed at work compared to pre-pandemic times [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Double-duty caregivers enduring COVID-19 pandemic to endemic: “It’s just wearing me down”

Parmar,

L’Heureux,

Lobchuk

et al. 2024

PLoS ONE

View full text Add to dashboard Cite

The COVID-19 pandemic has considerably strained health care providers and family caregivers. Double-duty caregivers give unpaid care at home and are employed as care providers. This sequential mixed-method study, a survey followed by qualitative interviews, aimed to comprehensively understand the experiences of these Canadian double-duty caregivers amidst the pandemic and the transition to the endemic phase. The multi-section survey included standardized assessments such as the Double-duty Caregiver Scale and the State Anxiety Scale, along with demographic, employment-related, and care work questions. Data analysis employed descriptive and linear regression modeling statistics, and content analysis of the qualitative data. Out of the 415 respondents, the majority were female (92.5%) and married (77.3%), with 54.9% aged 35 to 54 years and 29.2% 55 to 64 years. 68.9% reported mental health decline over the past year, while 60.7% noted physical health deteriorated. 75.9% of participants self-rated their anxiety as moderate to high. The final regression model explained 36.8% of the variance in participants’ anxiety levels. Factors contributing to lower anxiety included more personal supports, awareness of limits, younger age, and fewer weekly employment hours. Increased anxiety was linked to poorer self-rated health, and both perceptions and consequences of blurred boundaries. The eighteen interviewees highlighted the stress of managing additional work and home care during the pandemic. They highlighted the difficulty navigating systems and coordinating care. Double-duty caregivers form a significant portion of the healthcare workforce. Despite the spotlight on care and caregiving during the COVID-19 pandemic, the vital contributions and well-being of double-duty caregivers and family caregivers have remained unnoticed. Prioritizing their welfare is crucial for health systems as they make up the largest care workforce, particularly evident during the ongoing healthcare workforce shortage.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Double-duty caregivers enduring COVID-19 pandemic to endemic: “It’s just wearing me down”

Parmar,

L’Heureux,

Lobchuk

et al. 2024

PLoS ONE

View full text Add to dashboard Cite

show abstract

Accountability and neglect in UK social care innovation

O’Donovan

2023

International Journal of Care and Caring

View full text Add to dashboard Cite

Innovation alters who is accountable for social care and how they are held to account. This article shows how organisational, institutional and technological innovation in infrastructures of social care can reconfigure accountability instruments and propel change between distinct modes of accountability. However, innovation also sustains neglect, both in terms of issues, objects and subjects missing from research, and in terms of low levels of institutional reflexivity mobilised to evaluate and direct innovation’s impacts. Evidenced using two-level situational analysis – across a UK research portfolio and within a public robotics lab – we argue that confronting this neglect is critical for post-pandemic reform.

show abstract

“We Lost a Lot During COVID”: Migrant Women’s Reflections on Precarity, Work and COVID-19 in Cape Town, South Africa

Boonzaier,

Malinga,

Rustin

2023

SaHS

View full text Add to dashboard Cite

The restrictions and health impacts of the COVID-19 pandemic have amplified and intensified pre-existing inequalities on a global scale. In South Africa, as a result of the continuing legacies of apartheid, the healthcare and social sectors are frequently stretched and overburdened. Consequently, although care services are provided at public and private levels, much care work is unregulated and undertaken in an informal care economy by voluntary workers, community level healthcare workers, family and domestic workers. The women who undertake this labour are often the most marginalised with regard to access to resources and are likely Black women who are also poor. In addition, the context of increasing economic migration to South Africa from other parts of the continent is important for shaping the informal care economy and the precarious nature of the work. In this research brief, we analyse interviews that formed part of a larger South African and cross-national study on people’s resource constraints and strategies for living with HIV during COVID times. In our current reading of these data, we are interested in women’s experiences of informal work in South Africa and the ways in which these experiences have been shaped by the COVID-19 pandemic. We offer brief reflections on informal, precarious work undertaken by migrant women in South Africa.

show abstract

‘Long COVID’ and seeing in the pandemic dark

Cited by 3 publications

References 22 publications

Double-duty caregivers enduring COVID-19 pandemic to endemic: “It’s just wearing me down”

Double-duty caregivers enduring COVID-19 pandemic to endemic: “It’s just wearing me down”

Accountability and neglect in UK social care innovation

“We Lost a Lot During COVID”: Migrant Women’s Reflections on Precarity, Work and COVID-19 in Cape Town, South Africa

Contact Info

Product

Resources

About