Loin des yeux, loin du cœur ?

Zufferey, Maria Caiata; Aceti, Mónica

doi:10.4000/socio-anthropologie.11762

Cited by 4 publications

(3 citation statements)

References 23 publications

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“…Moreover, the organization of focus groups with compatible individuals was difficult due to the geographical distance among centers from similar linguistic regions, and eventually the COVID-19 pandemic. The research team developed strategies to ensure data quality and comparability, paying attention to the advantages of each data collection technique, and facing the challenges of online data collection on sensitive topics [ 34 ].…”

Section: Methodsmentioning

confidence: 99%

The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer

Pedrazzani

Aceti

Schweighoffer

et al. 2022

JPM

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Low uptake of genetic services among members of families with hereditary breast and ovarian cancer (HBOC) suggests limitations of proband-mediated communication of genetic risk. This study explored how genetic information proceeds from healthcare providers to probands and from probands to relatives, from the probands’ perspectives. Using a grounded-theory approach, we analyzed narrative data collected with individual interviews and focus groups from a sample of 48 women identified as carriers of HBOC-associated pathogenic variants from three linguistic regions of Switzerland. The findings describe the “communication chain”, confirming the difficulties of proband-mediated communication. Provider–proband communication is impacted by a three-level complexity in the way information about family communication is approached by providers, received by probands, and followed-up by the healthcare system. Probands’ decisions regarding disclosure of genetic risk are governed by dynamic and often contradictory logics of action, interconnected with individual and family characteristics, eventually compelling probands to engage in an arbitrating process. The findings highlight the relevance of probands’ involvement in the communication of genetic risk to relatives, suggesting the need to support them in navigating the complexity of family communication rather than replacing them in this process. Concrete actions at the clinical and health system levels are needed to improve proband-mediated communication.

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Section: Methodsmentioning

confidence: 99%

The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer

Pedrazzani

Aceti

Schweighoffer

et al. 2022

JPM

Self Cite

View full text Add to dashboard Cite

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“…Adopting Braun and Clarke’s ( 33 ) thematic analysis approach, these transcripts were meticulously analyzed. To adhere to COVID-19 safety protocols, interviews were conducted online, incorporating strategies to enrich data quality as recommended by Caiata Zufferey and Aceti ( 40 ).…”

Section: Methodsmentioning

confidence: 99%

Crucial and fragile: a multi-methods and multi-disciplinary study of cooperation in the aftermath of the COVID-19 pandemic

Rotondi,

Babazadeh,

Landolfi

et al. 2024

Front. Public Health

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In addressing global pandemics, robust cooperation across nations, institutions, and individuals is paramount. However, navigating the complexities of individual versus collective interests, diverse group objectives, and varying societal norms and cultures makes fostering such cooperation challenging. This research delves deep into the dynamics of interpersonal cooperation during the COVID-19 pandemic in Canton Ticino, Switzerland, using an integrative approach that combines qualitative and experimental methodologies. Through a series of retrospective interviews and a lab-in-the-field experiment, we gained insights into the cooperation patterns of healthcare and manufacturing workers. Within healthcare, professionals grappled with escalating emergencies and deteriorating work conditions, resisting the “new normalcy” ushered in by the pandemic. Meanwhile, manufacturing workers adapted to the altered landscape, leveraging smart working strategies to carve out a fresh professional paradigm amidst novel challenges and opportunities. Across these contrasting narratives, the centrality of individual, institutional, and interpersonal factors in galvanizing cooperation was evident. Key drivers like established relational dynamics, mutual dependencies, and proactive leadership were particularly salient. Our experimental findings further reinforced some of these qualitative insights, underscoring the pivotal role of recognition and the detrimental effects of uncertainty on cooperative behaviors. While contextual and sample-related constraints exist, this study illuminates vital facets of cooperation during crises and lays the groundwork for future explorations into cooperative decision-making.

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“…Topics included the decision-making process regarding the vaccination and, in particular, key moments that shaped their choice; attitudes towards the vaccination with concerns and thoughts; motives and goals behind their decision; direct and indirect experiences with vaccination; social norms and social relationships involving colleagues, patient's and patient's family; the trust of sources regarding vaccination; risk management and finally suggestions for a communication intervention (see Appendix 1 ). The interviews were conducted by a trained, female research assistant, and two more senior qualitative researchers with experience in remote qualitative research on sensitive issues, including COVID-19 vaccination ( CaiataZufferey & Aceti, 2022 ). Regular feedback sessions took place among the interviewers shortly after the interviews.…”

Section: Methodsmentioning

confidence: 99%

Decision-making on COVID-19 vaccination: A qualitative study among health care and social workers caring for vulnerable individuals

Fadda

Bezani

Amati

et al. 2022

SSM - Qualitative Research in Health

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Loin des yeux, loin du cœur ?

Cited by 4 publications

References 23 publications

The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer

The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer

Crucial and fragile: a multi-methods and multi-disciplinary study of cooperation in the aftermath of the COVID-19 pandemic

Decision-making on COVID-19 vaccination: A qualitative study among health care and social workers caring for vulnerable individuals

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