Objective: Electronic health records (EHRs) are used for both clinical practice and research. Because mental health service users are underrepresented when seeking perspectives on EHR use, the authors examined service users' awareness, attitudes, and opinions about EHR data storage and sharing.Methods: A mixed-methods, cross-sectional design was used to examine 253 Norwegian mental health service users who were recruited online to complete a quantitative and qualitative (free-text) survey about EHR utilization.Results: Most participants were aware that EHRs were stored (95%) and shared (58%). Most thought that patients benefited from storing EHRs (84%), trusted authorities about EHR sharing (71%), were willing to share records to help others (75%), felt they benefited from sharing (75%), and thought EHR sharing was ethical for health care and research (71%). Fewer were aware of record sharing for research (36%), and 62% were aware that shared data were anonymized. Of the participants, 69% recognized privacy risks associated with sharing. Lack of transparency and skepticism about anonymization as well as misuse of data were concerns and perceived risks. Overall, mental health service users thought that EHRs should be shared for policy development (81%), education and training (85%), improving care quality (89%), research (91%), and clinical decision support (81%).
Highlights• Health care authorities use electronic health records (EHRs) for clinical practice and research, including enhancing quality of care, improving access to care, providing more efficient service delivery, and producing better clinical outcomes.• Mental health service users are underrepresented in providing their perspectives on EHR use, and information about their opinions toward EHR use is limited.• Knowledge about service users' awareness and attitudes toward EHR use should be a part of clinical practice and research planning.• This study's findings indicate that mental health service users support EHR use for improving patient care and research.