2018
DOI: 10.1111/jar.12542
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Living with support: Experiences of people with mild intellectual disability

Abstract: Background:To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks. Method:Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants' support experiences were established using Interpretative Phenomenological Analysis.Results: Three main themes were iden… Show more

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Cited by 42 publications
(37 citation statements)
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References 46 publications
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“…In line with previous studies (e.g. Giesbers et al, 2018; Rose et al., 2019), this study demonstrates the value of IPA in research on intellectual disabilities by providing rich data on their lived experiences. In this study, we subjected our findings to member checks with participants—an element that is increasingly being used for purposes of validation in IPA and other qualitative research methods (e.g.…”
Section: Discussionsupporting
confidence: 90%
“…In line with previous studies (e.g. Giesbers et al, 2018; Rose et al., 2019), this study demonstrates the value of IPA in research on intellectual disabilities by providing rich data on their lived experiences. In this study, we subjected our findings to member checks with participants—an element that is increasingly being used for purposes of validation in IPA and other qualitative research methods (e.g.…”
Section: Discussionsupporting
confidence: 90%
“…clusters including feelings of acknowledgement, being treated with sincere attention and a focus on a client's possibilities. This is in line with previous research amongst people with an ID, in which they indicate the wish to build good relationships and communicate with their direct support workers about their problems and feelings (Giesbers et al 2019, Heyvaert et al 2014. In addition, people with an ID highly value direct support workers' qualities such as respect, honesty, trust, and a caring, nurturing manner (Clarkson et al 2009, Roeleveld et al 2011.…”
Section: Discussionsupporting
confidence: 84%
“…This finding is specifically relevant, given the fact that people with an ID have reported experiences of over-protection, lack of recognition, and dependence on support as important expressions of stigmatizing treatment (e.g. Jahoda and Markova 2004, Jahoda et al 2010, Giesbers et al 2019. Possible indications of stigmatization regarding sexuality were found on issues related to parenthood, homosexual relationships, priority of supporting sexuality, sexuality-related privacy, and self-determination; these issues may warrant more research into possible support of structural stigma.…”
Section: Discussionmentioning
confidence: 88%
“…support staff) (Sanderson et al 2017) who fulfill a broad range of needs in the lives of people with ID. For example, care providers are a source of emotional and practical support (Giesbers et al 2019, Van Asselt-Goverts et al 2013, can increase possibilities for choice and independence (Channon 2014, Felce 1998, manage situations of social participation and social roles Wiesel 2015, Todd 2000), and expand and strengthen social networks of people with ID (Van Asselt-Goverts et al 2014). Thus, care providers are key agents in the lives of individuals with ID and the quality of the support they provide is important (Giesbers et al 2019).…”
mentioning
confidence: 99%