Living with schizophrenia: Health‐related quality of life among primary family caregivers

Hsiao, Chiu‐Yueh; Lee, Chun-Te; Lu, Huei‐Lan; Tsai, Yun‐Fang

doi:10.1111/jocn.14063

Cited by 12 publications

(15 citation statements)

References 39 publications

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“…The Chinese version of the Measure of Process of Care for Adults (MPOC‐A; Hsiao, Lee, Lu, & Tsai, ) was designed to assess patients' and families' perceptions of the extent of FCC provided by healthcare professionals. The 34‐item MPOC‐A includes five subscales: (a) enabling and partnership (nine items), (b) provision of general information (five items), (c) provision of specific information (five items), (d) coordinated and comprehensive care (nine items) and (e) respectful and supportive care (six items).…”

Section: Methodsmentioning

confidence: 99%

“…Higher scores reflect more positive perceptions of FCC received from health care professionals from the perspectives of the patients and caregivers. Cronbach's alphas of the MPOC‐A subscales ranged from .91 to .95 in Taiwanese family caregivers of patients living with schizophrenia (Hsiao et al, ). For this study, Cronbach's alphas of subscales varied from .87 to .94 for patients with schizophrenia and from .91 to .96 for primary family caregivers.…”

Section: Methodsmentioning

confidence: 99%

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Factors associated with family functioning among people with a diagnosis of schizophrenia and primary family caregivers

Hsiao

Tsai

2020

Psychiatric Ment Health Nurs

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Accessible summary What is known on the subject? Families act not only as the primary support for people with a diagnosis of schizophrenia but also as partners in the healthcare system. Families who have members with mental disorders, particularly schizophrenia, experience challenges in family functioning. Research on families in relation to schizophrenia primarily focuses on the determinants that affect family functioning from primary family caregivers' perspectives. What does the paper add to existing knowledge? This report provides evidence that there is a concordance between family functioning and inpatient psychiatric rehabilitation facilities for the patient–caregiver dyad; both care‐receivers and primary family caregivers considered family functioning as poor. Care‐receivers with lower education levels, increased number of previous hospitalizations and poor quality of family‐centred care experienced unhealthy family functioning. Primary family caregivers and care‐receivers with higher education levels, lower suicidality and greater quality of family‐centred care experienced healthier family functioning. What are the implications for practice? Understanding the degree of family functioning, particularly its concordance and correlates as perceived by patients and primary family caregivers, may serve as a platform for inculcating assessment of family functioning to achieve holistic patient care. Open dialogue in family‐focused care planning is essential to facilitate collaborative partnerships and improve family functioning among people with a diagnosis of schizophrenia and their primary family caregivers. Further research on culturally relevant, evidence‐based family interventions to enhance the functioning of affected families is warranted, especially for families with members in inpatient psychiatric rehabilitation facilities. Abstract IntroductionFamilies provide frontline caregiving support for people with a diagnosis of schizophrenia. However, research primarily addresses correlates of family functioning from primary family caregivers' perspectives. AimTo examine perceived family functioning, particularly its concordance within patient–caregiver dyads and associated factors in families of people living with schizophrenia. MethodsA cross‐sectional, descriptive correlational design was used. A total of 133 dyads of patients and primary family caregivers from inpatient psychiatric rehabilitation services participated. Descriptive statistics, independent‐sample t test, one‐way ANOVA, Pearson's correlation coefficients, intraclass correlation coefficient and stepwise multiple linear regression analyses were applied. ResultsFamily functioning was perceived as impaired by patient–caregiver dyads, and there existed a concordance in this regard. Patients' and family caregivers' education levels, patients' suicidality, number of previous hospitalizations and quality of family‐centred care correlated with patients' and primary family caregivers' family functioning. DiscussionFindings highlight the impo...

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Factors associated with family functioning among people with a diagnosis of schizophrenia and primary family caregivers

Hsiao

Tsai

2020

Psychiatric Ment Health Nurs

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View full text Add to dashboard Cite

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“…The Chinese version of the 34‐item Measure of Process of Care for Adults (Hsiao, Lee, Lu, & Tsai, ) was designed to assess the extent to which primary family caregivers perceived quality of FCC from healthcare providers (i.e., MHNs) along five dimensions: (a) enabling and partnership, (b) provision of general information, (c) provision of specific information, (d) coordinated and comprehensive care, and (e) respectful and supportive care. Each domain score, ranging from 1 to 7, was calculated as a mean score.…”

Section: Methodsmentioning

confidence: 99%

“…Higher scores denoted greater perceptions of FCC. The CVI was 0.92 and Cronbach’s alphas were 0.91 to 0.95 for its subscales (Hsiao et al, ). In this study, Cronbach’s alphas of subscales of the Measure of Process of Care for Adults varied from 0.88 to 0.94.…”

Section: Methodsmentioning

confidence: 99%

Factors Associated With Primary Family Caregivers’ Perceptions on Quality of Family‐Centered Care in Mental Health Practice

Hsiao

Tsai

2019

J of Nursing Scholarship

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Key wordsAttitudes toward the importance of families in nursing care, nurse's attitudes toward schizophrenia, primary family caregiver, quality of family-centered care, schizophrenia Correspondence AbstractPurpose: This study aimed to examine the quality of family-centered care perceived by primary family caregivers and its influencing factors in mental healthcare practice. Design: A cross-sectional, correlational study. Methods: A convenience sample of 121 mental health nurses and 164 primary family caregivers of patients with schizophrenia was recruited from acute psychiatric wards and chronic psychiatric rehabilitation wards in three psychiatric hospitals in Taiwan. Structured questionnaires for mental health nurses were designed to examine nurses' attitudes toward schizophrenia and the importance of families in nursing care. Primary family caregivers were assessed to determine their perceptions of quality of family-centered care. At least one primary family caregiver of patients was matched to a nurse who took major responsibility for the patient during the hospitalization. Data were analyzed with descriptive statistics, Pearson's productmoment correlations, independent t-test, one-way analysis of variance, and stepwise regression analyses. Results: Quality of family-centered care perceived by primary family caregivers regarding the provision of general and specific information, as compared to enabling and partnership, coordinated and comprehensive care, and respectful and supportive care, was relatively inadequate. Younger and more educated primary family caregivers, having relatives with schizophrenia in acute wards, less supportive nurses' attitudes toward schizophrenia, and the importance of family in nursing care were correlated with poor primary family caregivers' perceptions of quality of family-centered care. Nurses' supportive attitudes toward schizophrenia and chronic psychiatric rehabilitation wards where patients received care were key factors in determining better quality of family-centered care.

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“…These findings suggest that family psychoeducation may not appeal, or be consistently offered, or be appropriately tailored for non-Hispanic Blacks and other racial and ethnic minorities. Lower levels of family engagement are associated with poorer long-term outcomes (32–35). Although there is considerable amount of literature that has examined barriers to family engagement and family experiences among non-Hispanic Blacks (36–42), less research has focused on understanding the benefits of culturally-tailored family psychoeducation and enhancements to existing engagement strategies to address these barriers.…”

Section: Discussionmentioning

confidence: 99%

Racial-Ethnic Disparities in First-Episode Psychosis Treatment Outcomes From the RAISE-ETP Study

Oluwoye

Stiles

Monroe-DeVita

et al. 2018

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Living with schizophrenia: Health‐related quality of life among primary family caregivers

Abstract: Findings may assist in the development of culturally integrated rehabilitation programmes to decrease affiliate stigma and increase family engagement as a means of promoting quality of life for primary family caregivers living with people who have schizophrenia.

Cited by 12 publications

References 39 publications

Factors associated with family functioning among people with a diagnosis of schizophrenia and primary family caregivers

Factors associated with family functioning among people with a diagnosis of schizophrenia and primary family caregivers

Factors Associated With Primary Family Caregivers’ Perceptions on Quality of Family‐Centered Care in Mental Health Practice

Racial-Ethnic Disparities in First-Episode Psychosis Treatment Outcomes From the RAISE-ETP Study

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