Living with multiple losses: Insights from patients living with pressure injury

Abstract

Background: Pressure injury is a common problem. Its prevention and treatment is predominantly focussed on views, perceptions and knowledge of healthcare staff rather than on patient experience, particularly those patients living in their own homes.Aim: This paper reports findings on patients experiences and perceptions of loss associated with PI.These findings are drawn from a larger study of pressure injury patients living and receiving care in the community.Methods: Qualitative interviews with 12 participants with pressure injury and five carers. Data was audio recorded and thematically analysed. The study is reported in accordance with the COREQ guidelines.Findings: Having a pressure injury negatively affected many aspects of life for our participants resulting in multiple losses. These losses included loss of mobility and independence, privacy and dignity, and social engagement and ability to engage in preferred activities.Discussion: Although the effects of a pressure injury may be similar for many people, the most important issues will differ from person-to-person thus treatment and prevention of pressure injury requires a multidisciplinary team having a holistic care approach. Some patients' pressure injury will never heal and it is increasingly important to involve the patient to find out what matters most to them and how their wound is impacting on them, to jointly develop a holistic, person-centred plan.Conclusion: Policy and practice should recognise and reflect that patients living with a pressure injury at home have different challenges and needs to those in acute or long term care. Pragmatic solutions in the delivery of pressure injury care are needed to compliment the drive to move healthcare from the hospital-to-home. 3 SUMMARY OF RELEVANCE: IssueLittle is known about the impact of pressure injuries on the lives of patients living in their own homes, especially from the patient's perspective.

Social participation of people with chronic wounds: A systematic review

“…The 42 articles included in this review present results of 40 studies and were published between 1986 and 2019 (Table 1). Of these, 24 were qualitative studies 25,30‐32,50‐69 . Of the quantitative studies, 13 were cross‐sectional 70‐82 (of which six had a comparative approach, eg, ulcer vs non‐ulcer participants) and two were cohort studies 83,84 .…”

“…Beyond that, social participation not only influences health, but the health status also influences social participation 27,28 . Accordingly, experiencing pain, having limited mobility, or feeling shame because of wound odour and wound exudate leads to patients' rejection or inability to socially participate 29‐32 …”

The effectiveness of multicomponent pressure injury prevention programs in adult intensive care patients: A systematic review

“…Pressure injuries can occur on various anatomical locations because of intense and/or prolonged pressure, or pressure in combination with shear and friction forces (Edsberg et al, 2016). Pressure injuries can have negative impacts on patients' physical, social, and psychological aspects of quality of life (Gorecki et al, 2009, Jackson et al, 2018, increase financial burden and hospital length of stay, and increase morbidity and mortality (Liu et al, 2019, Spetz et al, 2013, Theisen et al, 2012. A systematic review reported that costs related to the treatment of pressure injuries adds to the national annual budget from €121.44 million to €2.59 billion, with individual pressure injury treatment costs ranged from €15 to €69,472 in the USA, UK, the Netherlands, and Canada (currency was converted into Euros by the review authors) (Demarré et al, 2015).…”

Was können „intelligente“ Matratzen und Betten – und was nicht?

“…Einrichtungen und das Gesundheitssystem vor finanzielle und strukturelle Herausforderungen. Für den Patienten selbst geht ein Dekubitus oftmals mit einem verlängerten Aufenthalt, Komplikationen, Schmerzen oder einer verringerten Lebensqualität einher, zumal die Entstehung eines Dekubitus zum Teil vermeidbar ist [5].…”