Living with incurable oesophageal cancer. A phenomenological hermeneutical interpretation of patient stories

Missel, Malene; Birkelund, Regner

doi:10.1016/j.ejon.2010.10.006

Cited by 44 publications

(86 citation statements)

References 10 publications

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“…In our study the nurses described the importance of being emotionally close and having the courage to open up to allow communication about death with patients and families. Having openness and encouraging patients' storytelling is of much importance as it is therapeutic, promotes coping strategies and connectedness as described in earlier studies (Pelusi and Krebs, 2005;Taylor, 1997) According to Missel and Birkelund (2011), existential phenomena may be exposed, which are, as Taylor (1997) describes, components of significance for spiritual health.…”

Section: Discussionmentioning

confidence: 99%

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Browall

Henoch

Melin‐Johansson

et al. 2014

European Journal of Oncology Nursing

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a b s t r a c tNurses working with cancer patients in end of life care need to be prepared to encounter patients' psychosocial and spiritual distress. Aim: The aim of this study was to describe nurses' experiences of existential situations when caring for patients severely affected by cancer. Methods and sample: Nurses (registered and enrolled) from three urban in-patient hospices, an oncology clinic and a surgery clinic and a palliative homecare team were, prior to the start of a training program, invited to write down their experiences of a critical incident (CI), in which existential issues were featured. Results: Eighty-eight CIs were written by 83 nurses. The CIs were analyzed with qualitative content analysis. Two main themes were found: Encounters with existential pain experiences, which concerned facing death and facing losses; and Encountering experiences of hope, which concerned balancing honesty, and desire to live. Conclusions: This study points out that health care professionals need to be aware of patients' feelings of abandonment in exposed situations such as patients' feelings of existential loneliness. That there are some patients that express a desire to die and this makes the nurses feel uncomfortable and difficult to confront these occurrences and its therefore important to listen to patients' stories, regardless of care organization, in order to gain access to patients' inner existential needs.

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Section: Discussionmentioning

confidence: 99%

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Browall

Henoch

Melin‐Johansson

et al. 2014

European Journal of Oncology Nursing

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“…These patients have different needs after facing the diagnosis of the disease (4). One of these needs is spiritual needs (5).…”

Section: Introductionmentioning

confidence: 99%

Development and Psychometrics of a ‘Spiritual Needs Assessment Scale of Patients with Cancer’: A mixed Exploratory Study

et al. 2018

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Background: The diagnosis of cancer can cause great spiritual crises in persons and affect various aspects of their lives. Objectives: This study was conducted to design a psychometric spiritual needs assessment scale of patients with cancer in Iran. Methods: This methodological research was conducted in 2 parts: qualitative and quantitative. Interviews were conducted with 18 patients with cancer who were referred to Imam Khomeini Hospital in Tehran with the maximum diversity of the patients occurring in the qualitative stage for explaining the spiritual needs of patients. The purposive sampling method was applied to this study. The interviews were analysed with the content analysis method, and eventually classes related to patients' spiritual needs were conducted. Also, the terms of the scale were designed in this way. In the quantitative stage, content validity, formal validity, structure validity (exploratory factor analysis), and convergent validity were evaluated with internal consistency and retests of the scale. Results: The 4 themes, Connection, Search for Peace, Find Meaning and Purpose, and Achieve Transcendence were extracted from the codes obtained. The intended scale was, then, designed. The content validity index and validity ratio of tools of content validity were determined. Content validity was applied during the assessment of face validity assessment of written comments of experts. In addition, 10 patients were examined on the scale. An exploratory factor analysis indicated the 5 factors of the designed scale. Finally, a scale was obtained with 38 terms in 5 subscales and its scoring was determined in a 6-episode Likert. Cronbach's alpha for the total scale was estimated 0.81; for the religious dimension, this was 0.88, for meaning and purpose 0.77, for peace 0.70, for connection 0.74, and for support and nationalism 0.67, respectively. The result of the retest was also estimated ICC = 0.89. Conclusions: The spiritual needs scale in patients with cancer can measure different aspects of spiritual needs and is reliable and valid. It is suggested that the spiritual needs assessment scale of patients with cancer be used in different populations of patients with cancer separated on the basis of sex, age, type of cancer, and stage of the cancer and the spiritual needs of these patients be determined. Also, the designed scale is validated in other places and with different cultural conditions.

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“…Gesamthaft geht es darum, in der neuen Realität weiterleben zu lernen (Corbin & Strauss, 2010). Solche Übergänge sind beispielsweise die Diagnosestellung, ein Therapieabbruch, zunehmende Hilfsbedürf-tigkeit und das Wahrnehmen des nahenden Todes (Boehmke & Dickerson, 2006;Drevdahl & Dorcy, 2012;Missel & Birkelund, 2011;Schumacher & Meleis, 1994). Aus diversen Studien geht hervor, dass PatientInnen und Angehörige durch belastende Symptome, Therapien und Ungewissheit hinsichtlich des Krankheitsverlaufs bis zum Tod Stress bewältigen müssen (Reeve, Lynch, Lloyd-Williams & Payne, 2012;Reinke et al, 2008;Schulman-Green et al, 2012).…”

Section: Introductionunclassified

«Die Welt nicht zu klein werden lassen»

Chabloz-Süssenbach

Schramm

Stoll

et al. 2016

Pflege

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Zusammenfassung:Hintergrund: Menschen mit einer Krebserkrankung und ihre Angehörigen erleben viele Übergänge in den letzten Lebensmonaten Schlüsselwörter: Krankheitsmanagement, fortgeschrittene onkologische Erkrankung, Übergang, Dyade, qualitative Forschung "Don't let the world become too small" -How patients with advanced cancer and their significant others cope with transitions during the last year of life. A qualitative study Abstract:Background: In the last year of life, persons with advanced cancer and their significant others are affected by several transitions. They perform psychological adjustment processes during transformation. This requires strategies for patients and their significant others. Research in German about this theme is missing. Aim: We explored the experiences with illness management during transitions in the last year of life of patients with advanced cancer and their significant others. Method: In this qualitative study, we conducted structured interviews with five dyads, consisting of persons with Karnofsky Index ≥ 60 % and life expectancy of six to twelve months as well as their significant others. To interpret the interviews, we used qualitative content analysis according to Mayring. Results: The main theme "Don't let the world become too small" expresses that limitations diminished the lifeworld and the participants struggled against this process. This is revealed in three categories: "Being shocked by diagnosis -realigning again", "Bearing limitations and loss -finding new ways in daily life", "Living in uncertainty -holding out together".

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Living with incurable oesophageal cancer. A phenomenological hermeneutical interpretation of patient stories

Cited by 44 publications

References 10 publications

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Development and Psychometrics of a ‘Spiritual Needs Assessment Scale of Patients with Cancer’: A mixed Exploratory Study

«Die Welt nicht zu klein werden lassen»

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