Living with home‐based haemodialysis: insights from older people

Abstract

Knowledge from the study may contribute to the development of patient-care partnerships that facilitate and promote independence for older people being treated for chronic illnesses.

Dialysis modality decision‐making for older adults with chronic kidney disease

“…Understanding these patient‐care partnerships is important for successful home‐dialysis in older adults (Namiki et al . ).…”

“…More research is needed to understand this difference and examine how the social roles influence modality decision-making and find methods which assist men with this decision-making. Understanding these patient-care partnerships is important for successful homedialysis in older adults (Namiki et al 2009).…”

How an ordeal becomes the norm: A qualitative exploration of experiences of self‐cannulation in male home haemodialysis patients

“…() patients also stated that HHD training time was important for building confidence and was maintained by the support patients received from their community dialysis nurses or primary caregivers (spouses). Other studies have highlighted the importance of strong, ongoing informal and formal support in maintaining patients’ confidence and adhering to treatment regimes in HHD (Namiki et al ., ) and more generally in HD (Gregory et al ., ), although these studies did not specifically discuss self‐cannulation.…”

“…HHD patients have reported an increased sense of well‐being (Wise, Schatell, Klicko, Burdan, & Showers, ) with greater control, freedom, and flexibility (Cases, Dempster, Davies, & Gamble, ; Courts, ; Lee, Gudex, Povlsen, Bonnevie, & Nielsen, ; Vestman, Hasselroth, & Berglund, ). HHD patients can adapt their treatment to suit themselves (Courts, ; Lee et al ., ; Namiki, Rowe, & Cooke, ; Rygh, Arild, Johnsen, & Rumpsfeld, ) and become active managers of their health (Cases et al ., ; Curtin, Mapes, Petillo, & Oberley, ; Majeed‐Ariss, Jayanti, Schulz, Wearden, & Mitra, ; Rygh et al ., ). However, despite the clear benefits of HHD, it remains an under‐utilized mode of treatment in the United Kingdom (MacNeill et al ., ).…”

Terapias de sustitución de la función Renal: Metaestudio y síntesis de evidencias cualitativas

“…Tanto pacientes como familiares dedican bastante tiempo a buscar información que les ayude a hacer llevadero el proceso; describen como fuentes: el equipo de salud (34,(70)(71)(72), internet, amigos cercanos, otros pacientes (73, 74) y, quizás la más relevante, el aprendizaje a partir de la propia experiencia (70,75). La comprensión de la enfermedad y el tratamiento emerge del tejido de discursos y concepciones (76,77), por un lado, la incorporación de lo biomédico al lenguaje propio y por otro, las explicaciones relacionadas con el contexto y la cultura (63,64,78). Con este tejido discursivo las personas fabrican autointerpretaciones y explicaciones sobre la enfermedad y el cuidado, facilitando el afrontamiento (27) y la adherencia (44,79).…”