Living with dementia from the perspective of older people: Is it a positive story?

Steeman, Els; Godderis, Jan; Grypdonck, Mieke; Bal, Nele De; Casterlé, Bernadette Dierckx de

doi:10.1080/13607860600963364

Cited by 100 publications

(95 citation statements)

References 24 publications

(26 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Similarly, as noted earlier [43] , our PMD study participants wanted to be regarded as themselves, not according to their condition. The results of our study support the findings of previous studies indicating that PMDs attempt to maintain their prior sense of self [20] , and remain valued and competent [44] , when managing changes in their self. In accordance with Steeman et al [44] , our results also indicate that others could foster the PMDs' experience of being valued by treating them as competent individuals and thus helping them maintain equilibrium.…”

Section: Discussionsupporting

confidence: 82%

“…The results of our study support the findings of previous studies indicating that PMDs attempt to maintain their prior sense of self [20] , and remain valued and competent [44] , when managing changes in their self. In accordance with Steeman et al [44] , our results also indicate that others could foster the PMDs' experience of being valued by treating them as competent individuals and thus helping them maintain equilibrium. Our study also indicated that reciprocity in relationships, and giving help to, as well as receiving it from, others was important for PMDs, representing their need to be valuable to others, as found in earlier studies [44] .…”

Section: Discussionsupporting

confidence: 82%

See 1 more Smart Citation

Managing life-altering situations: A qualitative longitudinal study of the experiences of people with memory disorders and their family caregivers

Pesonen

Remes

Isola

2014

JNEP

View full text Add to dashboard Cite

Objective: Diagnosis of a family member with a memory disorder creates significant psychosocial coping demands for the whole family. The aim of this study was to examine shared experiences of people with memory disorders and their family caregivers during the first years following diagnosis to construct a substantive theory. The study focused on factors related to mutual processes used for managing such life-altering situations. Methods:A qualitative longitudinal research design informed by grounded theory was used. Experiences shared by eight people with memory disorders and their closest family caregivers were determined using semi-structured interviews (n = 23) in their homes. The study participants were recruited from a memory clinic at a tertiary care hospital.Results: A core category, 'Process of accepting memory disorder as part of family life', and related categories and subcategories were formulated from the data. The subcategories 'Acknowledging available qualities and resources', 'Seeking meaningful social support', and 'Living for today', were mutual components of the categories 'Adjusting to altering self', and 'Adapting to a new caregiver role'. The contents of each subcategory comprise a continuum of positive and negative dimensions of adjustment and distress.Conclusions: Accepting a memory disorder as part of family life is a mutual process involving concurrent and specific requirements of both people with memory disorders and family caregivers. Acknowledging the potential of the person diagnosed, opportunities for social support, and living for today, reinforce the process of managing life after a memory disorder diagnosis.

show abstract

Section: Discussionsupporting

confidence: 82%

Section: Discussionsupporting

confidence: 82%

Managing life-altering situations: A qualitative longitudinal study of the experiences of people with memory disorders and their family caregivers

Pesonen

Remes

Isola

2014

JNEP

View full text Add to dashboard Cite

show abstract

“…5,[10][11][12][13][14][15][16][17] Het betreft onder meer problemen op de volgende aanpassingsterreinen:…”

Section: Inleidingunclassified

“…Denk aan ontkennen, vermijden van sociale contacten, confabuleren, een façade ophouden, externe attributie van problemen en gebruik van humor. 5,12,14,15,[18][19][20] Belangrijke vragen vanuit het psychosociale behandelperspectief zijn hoe mensen hun ziekte beleven en daarmee omgaan en hoe psychologische (persoonlijkheid, levensgeschiedenis), ziektegerelateerde, sociale en materiële omgevingsfactoren daarop van invloed zijn. Behandeling en begeleiding vanuit dit perspectief richten zich op het bijstaan van mensen met dementie en hun omgeving bij het omgaan met de gevolgen van dementie met als doel verbetering van hun kwaliteit van leven en voorkoming c.q.…”

Section: Inleidingunclassified

Meer kwaliteit van leven

Lange¹,

Dröes²,

Scheltens³

et al. 2018

View full text Add to dashboard Cite

show abstract

“…People in an early stage of dementia have described how they are constantly balancing their feelings of being valued and of worthlessness, as they struggle to remain someone of value [8]. In a review, Steeman and co-authors [9] stated that the necessity for better understanding of people in early stage of dementia is evident.…”

Section: Introductionmentioning

confidence: 99%

Professional caregivers’ perceptions on the prerequisites for and consequences of people with mild dementia using a digital photo diary

Harrefors¹,

Axelsson²,

Lundquist³

et al. 2013

OJN

View full text Add to dashboard Cite

Research is currently ongoing to investigate the use of assistive technology by people with mild dementia to support independent living at home. The aim of this study was to describe professional caregivers' perceptions on the prerequisites for and consequences of people with mild dementia using a digital photo diary to facilitate their talks about daily events with their family members. A questionnaire was sent out to 582 participants (response rate 70.1%) to elucidate the professional caregivers' perceptions on the use of the digital photo diary. The questionnaire contained both quantitative and qualitative data and was analyzed with descriptive statistics, factor analysis, multivariate analysis of covariance and qualitative content analysis. This study reports the results related to prerequisites and consequences of using the photo diary. The results from the factor analysis revealed four factors: Trust, Vulnerability, Dependency/Independency and Control. The qualitative content analysis resulted in five categories: Immediate implementation after receiving a diagnose is required, Relatives' participation is a necessity, Strengthened self-esteem and meaningful everyday life, Increased alienation and a feeling of isolation and Assistive digital devices provide opportunities. The theme was interpreted as: Personalization and the preservation of dignity. The conclusion that can be drawn from this study is that the participants had an overall positive view of the usage of this specific digital photo diary for people suffering from dementia, but rigorous considerations needs before implementation of the device and regularly follow ups if dignity is to be maintained for people with dementia.

show abstract

Living with dementia from the perspective of older people: Is it a positive story?

Cited by 100 publications

References 24 publications

Managing life-altering situations: A qualitative longitudinal study of the experiences of people with memory disorders and their family caregivers

Managing life-altering situations: A qualitative longitudinal study of the experiences of people with memory disorders and their family caregivers

Meer kwaliteit van leven

Professional caregivers’ perceptions on the prerequisites for and consequences of people with mild dementia using a digital photo diary

Contact Info

Product

Resources

About