Living with coeliac disease

Bramall, Jo

doi:10.1136/bmj.321.7269.1165

Cited by 3 publications

(2 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The method chosen for this descriptive study is based upon phenomenography (9, 12). It is the empirical study of the qualitatively different ways in which various phenomena in the world around us are experienced, conceptualized, understood, perceived and apprehended (13).…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Perceptions of health‐related quality of life of men and women living with coeliac disease

Hallert

Sandlund

Broqvist

2003

Scandinavian Caring Sciences

107

View full text Add to dashboard Cite

Women with long-standing coeliac disease express poorer health-related quality of life (HRQoL) than men do for unclear reasons. This led us to explore differences in their understanding of HRQoL using a phenomenographic approach. We interviewed 10 coeliac subjects (mean age 57 years, range 35-73) who had been on a gluten-free diet for 10 years and had scored either high or low in the Short Form 36 Health Survey (SF-36) General Health and Vitality scales. Three dimensions were revealed that pertained to their perception of HRQoL: bodily sensations, social consequences and coping strategies. Within these, the women experienced more bowel symptoms than men did, despite keeping to a strict diet. This item was the only one predicting the SF-36 scores. The women also described more distress caused by the restrictions in daily life, closely related to their controlling of food contents. The coeliac men took advantage of using a problem-oriented coping approach while the women seeking an emotionally oriented strategy showed less satisfaction with the outcome. We conclude that the intriguing difference in HRQoL between coeliac men and women may have some of its origin in the way living with the disorder is conceptualized and coped with. The results imply that in the management of coeliac patients, gender-related aspects need to be taken into account to improve treatment outcome.

show abstract

Section: Methodsmentioning

confidence: 99%

“…1). Hence, from a patient's perspective, living with coeliac disease may be far from simply excluding gluten from the diet (9, 10).…”

Section: Introductionmentioning

confidence: 99%