Living with chronic renal failure: patients' experiences of their physical and functional capacity

Abstract

The results of the study will contribute to our understanding of how these patients experience their daily lives, and will help when meeting patients with chronic renal failure. This knowledge enables physiotherapists to focus rehabilitation training on problem areas that are important to patients themselves.

‘It's when you're not doing too much you feel tired’: A qualitative exploration of fatigue in end‐stage kidney disease

“…Although fatigue has emerged as a dominant theme across several qualitative studies on the experience of living with ESKD (e.g., Hagren, Pettersen, Severinsson, Lützén, & Clyne, 2001; Heiwe, Clyne, & Dahlgren, 2003), at present only four fatigue‐specific qualitative studies are available among dialysis patients (Horigan & Barroso, 2016; Horigan, Schneider, Docherty, & Barroso, 2013; Lee, Lin, Chaboyer, Chiang, & Hung, 2007; Yngman‐Uhlin, Friedrichsen, Gustavsson, Fernström, & Edéll‐Gustafsson, 2010). These studies offer valuable insights into the dominance of biomedical causal attributions for fatigue, the role of sleep quality in further exacerbating fatigue, and pervasiveness of passive fatigue management strategies (Horigan et al ., 2013; Lee et al ., 2007; Yngman‐Uhlin et al ., 2010).…”

Assessment of Health-Related Fitness in the Patients with End-Stage Renal Disease on Hemodialysis: Using Eurofit Test Battery

“…Complications such as uremia, anemia, myopathy, and neuropathy decrease muscular strength, cardio-pulmonary fitness, and quality of life, [14,15] which is why this population is seen more frequently in physiotherapy practice currently.…”

The Importance of Exercise Programs in Haemodialysis Patients

“…It has been shown that adults with CKD experience limitations in their daily life due to insufficient physical fitness. In a previous study (Heiwe et al 2003) it was shown that adult with CKD experience fatigue both mental and physical fatigue. This results in a reduced physical fitness and reduced physical functioning in terms of impact on performance and endurance.…”

“…Insulin-like growth factor (IGF-1) could also be produced locally in the muscle but the systemic effect is unclear. Kouidi et al 1998;Heiwe et al 2003;Johansen et al 2003;Heiwe et al 2005). It is declining from 70% of the expected norm in a pre-uremic phase to 50% of the expected norm when starting dialysis therapy (Painter et al 1986;Kettner-Melsheimer et al 1987;Brodin et al 2001).…”

“…They need more time to perform various activities, partly due to "internal demands", like the need for physical rest and partly due to their experiences of external demands as a result of all the medical appointments and other appointments. All these factors may have a negative impact on the patients' level of activity and participation as well as their social life (Heiwe et al 2003). It seems urgent to do something for these patients.…”