2021
DOI: 10.12968/bjon.2021.30.17.s24
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Living with an MPN in Ireland: patients' and caregivers' perspectives

Abstract: Myeloproliferative neoplasms (MPNs) are associated with a high disease burden, reduced quality of life and shortened survival. The aim of this questionnaire was to gain patients' and caregivers' perspectives on the impact of living with an MPN in the Republic of Ireland. An Irish adaptation of the ‘Global MPN Landmark survey’ was conducted. Fifty-one patients and 44 caregivers completed the questionnaire. Patients reported a wide variety of symptoms at the time of questionnaire completion; fatigue, bone pain a… Show more

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“…A diagnosis of a rare type of cancer creates added stress for the patient and their caregivers and negatively affects their activities of daily living (Walpole et al, 2021). In this case study, both FC and her spouse expressed concerns about anxiety and depression.…”
Section: Validate Collaborate and Facilitatementioning
confidence: 99%
“…A diagnosis of a rare type of cancer creates added stress for the patient and their caregivers and negatively affects their activities of daily living (Walpole et al, 2021). In this case study, both FC and her spouse expressed concerns about anxiety and depression.…”
Section: Validate Collaborate and Facilitatementioning
confidence: 99%