Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

Stuckey, Heather L.; Mullan-Jensen, Christine; Kalra, Sanjay; Reading, Jean M.; Wens, Johan; Vallis, Michael; Kokoszka, Andrzej; Malek, R.; Burns, Katharina Kovacs; Piana, Natalia; Skovlund, Søren E.; Peyrot, Mark

doi:10.1016/j.diabres.2016.04.028

Cited by 14 publications

(31 citation statements)

References 13 publications

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“…Patient adherence appeared to be directly influenced by the perceived level of health care professionals ability to motivate patients’ autonomy 10. Family support is another issue that can influence self-management, a study done in 17 countries showed the experiences of family members who support adults living with diabetes: worries about hypoglycemia, employment, how the diabetes negatively affects the relationship and the help of the family member to make positive life changes for their health 11,12…”

Section: Introductionmentioning

confidence: 99%

Understanding the physical, social, and emotional experiences of people with uncontrolled Type 2 diabetes: a qualitative study

Berenguera¹,

Molló-Inesta²,

Mata-Cases³

et al. 2016

PPA

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PurposeThe purpose of this study was to identify the perceptions, barriers, and facilitators of self-management of Type 2 diabetes mellitus (T2DM) to determine the factors to consider when developing and implementing a person-centered intervention in patients with poor glycemic control attending primary care.MethodsThis was a qualitative study conducted in 6 primary care health centers in Catalonia. Patients who had been diagnosed with T2DM and had glycated hemoglobin of 9% or more were included. The sampling method was opportunistic, accounting for gender, age, duration of diabetes, and type of treatment. Forty-three semi-structured interviews were conducted. Thematic content analysis was performed.ResultsThe patients perceived the diagnosis of T2DM as a threat to their health, and the diagnosis generated cognitive and emotional representations of T2DM. The emotions associated with the diagnosis included fear of the future, worry, denial, sadness, and dejection. The patients also wondered if there could have been an error in their test results because they did not present any symptoms. These representations, both cognitive and emotional, can produce specific effects in adaptation processes and require different approach strategies, specifically regarding diet, physical activity, and pharmacological treatment. Finally, specific aspects regarding the acceptability and adaptability of the implementation of a new intervention were expressed.ConclusionPatients with T2DM and very poor glycemic control expressed difficulty achieving a balance between the needs and demands of managing and controlling T2DM because they felt it strongly interfered in their daily lives.

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Section: Introductionmentioning

confidence: 99%

Understanding the physical, social, and emotional experiences of people with uncontrolled Type 2 diabetes: a qualitative study

Berenguera¹,

Molló-Inesta²,

Mata-Cases³

et al. 2016

PPA

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“… Study Title Participants Phenomena of interest Study Method Study Results 1 Stuckey, H., Mullan-Jensen,C., Kalra, S., Reading, J., Wens, J., Vallis, M., Kokoszka, A., Malek,R., Kovacs Burns, K., Piana, N., Skovlund,S. and Peyrot, M. ( 2016 ) Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study 2057 adult family members Mean age: 46 years Study carried out over 17 countries: Algeria, Canada, China, Denmark, France, Germany, India, Italy, Japan, Mexico, The Netherlands, Poland, Russia, Spain, Turkey, United Kingdom (UK) and United States of America (USA). Minimum of 120 participants per country Lived experiences of those living with an adult who has diabetes Qualitative: Phenomenological approach SO wanted to help the with diabetes management.…”

Section: Resultsmentioning

confidence: 99%

“…Available at: http://www.casp-uk.net/aboutus . CASP Question Number 1 2 3 4 5 6 7 8 9 10 Yes: No: Can't Tell Judgement of quality (Good/Average/Poor) 1 Stuckey et al. (2016) ✓ ✓ ✓ ✓ ✓ ✗ ✓ ✓ ✓ ✓ 9:1:0 Good 2 Latwon et al.…”

Section: Resultsmentioning

confidence: 99%

Hypoglycaemic unawareness: A systematic review of qualitative studies of significant others' (SO) supportive interventions for patients with diabetes mellitus

Hartill

Gillis

Jiwani

et al. 2018

Heliyon

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BackgroundHypoglycemia unawareness (HU) has been attributed to both a downward shift in central nervous system (CNS)-triggered sympatho-adrenal responses to low glycaemic thresholds and a subsequent loss of adrenergic symptoms, which, in addition, to cerebral cortex adaptations permit normal function under hypoglycaemic conditions. Both of these mechanisms are brought about by recurring hypoglycemic events (hypoglycemia-associate autonomic failure, HAAF). This can contribute to repetitive cycles of increasingly severe hypoglycaemia, the consequences of which have considerable impact on relatives and significant others (SO) when providing care to patients with diabetes.MethodsA Systematic Review (SR) of 639 qualitative studies was carried out in accordance with the Preferred Reporting Items for Systematic Review (PRISMA) principles. The search strategy was developed using MeSH terms for a range of electronic databases: CINAHL, Pubmed, EMBASE, Medline, AMED and ASSIA were systematically searched in order to identify a variety of literature relevant to the review topic. Four duplicate studies were removed and a further 630 studies were excluded due to being irrelevant. Five qualitative studies were retained and analysed.ResultsThe three resultant findings from the literature appraised were i) Experiences and views of Significant Others' (SO) with adult relatives that have HU ii) Support needs of SO and iii) Health professionals interventions to address SO support needs and improve overall HU care. A clear finding was that SO experience difficulties managing HU and this can impact on the relationships that SO and HU patients have. Support needs of SO highlighted were both educational and psychological in nature, with there being a requirement for additional raised awareness within the wider community.ConclusionIt is essential that healthcare professionals offer support, such as teaching and support groups. In addition, providing interventions into improving family knowledge of diabetes and support with regard to psychosocial, behavioural and practical support for the person with diabetes. Moreover, improving resources for families to improve diabetes care. However, as the literature was of a qualitative nature, future recommendations would be quantitative research into these suggested nursing implementations to quantitatively assess their usefulness in practice.

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“…El Conocimiento, decisiones y aceptación de la DMT2, se relaciona con automanejo de la DMT2. Al respecto se conoce que las personas con mayor nivel de conocimientos muestran mejor asertividad para realizar acciones que permiten adaptarse a las manifestaciones clínicas y de forma consciente realizar actividades de control ante las demandas del tratamiento de la DMT2 17,18,28 .…”

Section: Proposiciones De La Trm: Procesos Familiares E Individuales unclassified

“…Éstas se definen como los patrones de comportamiento que los integrantes de la familia han decidido adoptar en función del apoyo requerido por el familiar con DMT2; ello implica reorganizar y coordinar las actividades de la vida diaria en forma diferente a como lo hacían cuando no se tenía un miembro con enfermedad crónica 6 . Las rutinas familiares son desarrolladas para enfrentar la DMT2, están vinculadas a una salud positiva y contribuyen a la adaptación a nuevos roles funcionales del integrante enfermo como aceptar formas diferentes de alimentación, ajustar recursos económicos, favorecer lazos de unión y afecto entre los miembros de la familia 6,12,28 .…”

Section: Introductionunclassified

Teoría de rango medio: procesos familiares que predicen el descontrol glucémico en diabetes mellitus 2

et al. 2018

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Teoría de rango medio: procesos familiares que predicen el descontrol glucémico en diabetes mellitus 2 Middle range theory: family processes predicting glycemic uncontrolled in diabetes mellitus 2 Teoria de médio alcance: processos familiares que predizem o descontrole glicêmico no diabetes mellitus 2 RESUMEN Objetivo: describir el desarrollo de una teoría de rango medio que contribuya en el abordaje de las perspectivas tanto del individuo como de los integrantes de la familia considerando las relaciones e interacciones que surgen en la dinámica de la vida diaria al experimentar una situación de cronicidad. Método: la teoría fue desarrollada deductivamente del modelo de la organización sistémica, un modelo empleado en la investigación y en la disciplina de enfermería para el abordaje del sistema familiar e individual. Los vínculos entre los conceptos de la teoría se desarrollan bajo los niveles de abstracción planteados por Smith y Liehr. Resultados: el desarrollo de la teoría procesos familiares e individuales y descontrol glucémico en adultos con diabetes mellitus 2 sirve para construir la ciencia de enfermería mediante la integración de la teoría de enfermería existente y el conocimiento empírico. Conclusión: esta teoría ayuda a comprender de mejor forma como se percibe y otorga el apoyo al interior de la familia y la influencia con el automanejo del integrante con diabetes mellitus 2 reflejado en el control glucémico.

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Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

Cited by 14 publications

References 13 publications

Understanding the physical, social, and emotional experiences of people with uncontrolled Type 2 diabetes: a qualitative study

Understanding the physical, social, and emotional experiences of people with uncontrolled Type 2 diabetes: a qualitative study

Hypoglycaemic unawareness: A systematic review of qualitative studies of significant others' (SO) supportive interventions for patients with diabetes mellitus

Teoría de rango medio: procesos familiares que predicen el descontrol glucémico en diabetes mellitus 2

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