“Living together with dementia”: Training programme for family caregivers – A study protocol

Sousa, Lia; Sequeira, Carlos; Ferré-Grau, Carme; Neves, Pedro; Lleixà-Fortuño, Mar; Monteiro, Ana; Meireles, Joana; Pinto, Madalena; Gomes, Tiago

doi:10.1016/j.pbj.2017.04.003

Cited by 4 publications

(11 citation statements)

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“…This programme and all its characteristics were built and validated in a conceptual fashion by means of a focus group integrative literature review and a Delphi study (7)(8)(9). A randomised controlled trial protocol was developed (10) to address its experimental validation, after which a short-term efficacy study took place. The aims of the pilot study were to evaluate the effectiveness of the programme 'Living Together With Dementia' when compared to the usual nursing care provided to these caregivers and to evaluate coping/problem-solving strategies, the burden, satisfaction and complications of family caregivers after participation in the programme.…”

Section: Introductionmentioning

confidence: 99%

‘Living Together With Dementia’: preliminary results of a training programme for family caregivers

Sousa¹,

Sequeira

Ferré‐Grau

et al. 2020

Scandinavian Caring Sciences

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Living Together With Dementia': preliminary results of a training programme for family caregivers The aim of this article was to present the preliminary results of a training programme for family caregivers of people with dementia at an early to moderate stage living at home-'Living Together With Dementia'. In this randomised controlled trial, 27 family caregivers who met the inclusion criteria were recruited from the neurology outpatient consultation clinic of a hospital in the north of Portugal and randomised into two groups (control and experimental) between October 2015 and March 2016. The programme 'Living Together With Dementia' was applied to the participants of the experimental group. The strategies used, overload, difficulties and satisfaction of the caregivers were assessed at three different stages (at the beginning and end of the intervention, as well as at follow-up). For the data analysis, quantitative parametric measures were applied. The Health Ethical Commission of the Hospital Centre approved the study, and its protocol and Helsinki Declaration ethical principles were considered throughout the process. In the final assessment, an improvement in the overload and difficulties was confirmed, as was an increase in the caregivers' satisfaction level and an improvement in coping/problem-solving strategies. In the follow-up stage, the results tended to revert towards those of the initial assessment. The programme 'Living Together With Dementia' appeared to be a major contribution enabling family caregivers of people with dementia, although there is a need to develop an efficacy study using a more substantial sample. The programme contributed to a reduction in the overload and difficulties borne by the family caregivers of people with dementia at an early to moderate stage living at home and to increased caregiver satisfaction.

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Section: Introductionmentioning

confidence: 99%

‘Living Together With Dementia’: preliminary results of a training programme for family caregivers

Sousa¹,

Sequeira

Ferré‐Grau

et al. 2020

Scandinavian Caring Sciences

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“…Most studies focused on severe mental conditions; specifically, five focused on schizophrenia and/ psychosis (Balaji et al, 2012;Fiorillo, Bassi, De Girolamo, Catapano, & Romeo, 2011;Gutiérrez-Maldonado, Caqueo-Urízar, & Ferrer-García, 2009;Ngoc, Weiss, & Trung, 2016;Perlick et al, 2011) and two on dementia (Sousa et al, 2017;Tremont et al, 2015). The remaining two articles were more inclusive of other general psychiatric conditions: one focused on paediatric psychiatric disorders (Talbot & Malas, 2019); and the other covered multiple conditions (Shamsaei, Nazari, & Sadeghian, 2018).…”

Section: Content Of Stigma Reduction Interventionsmentioning

confidence: 99%

“…The content of reviewed interventions varied, with most including mental health literacy education (n = 8), coping strategies (n = 8), caregiver well-being (n = 7), and mental health stigma education (n = 3). Among these interventions, five included sessions on mental health literacy education, coping strategies, and caregiver well-being (Fiorillo et al, 2011;Gutiérrez-Maldonado et al, 2009;Shamsaei et al, 2018;Sousa et al, 2017;Tremont et al, 2015). Another five included sessions on caregiver well-being and coping strategies (Fiorillo et al, 2011;Gutiérrez-Maldonado et al, 2009;Shamsaei et al, 2018;Sousa et al, 2017;Tremont et al, 2015).…”

Section: Content Of Stigma Reduction Interventionsmentioning

confidence: 99%

“…Among these interventions, five included sessions on mental health literacy education, coping strategies, and caregiver well-being (Fiorillo et al, 2011;Gutiérrez-Maldonado et al, 2009;Shamsaei et al, 2018;Sousa et al, 2017;Tremont et al, 2015). Another five included sessions on caregiver well-being and coping strategies (Fiorillo et al, 2011;Gutiérrez-Maldonado et al, 2009;Shamsaei et al, 2018;Sousa et al, 2017;Tremont et al, 2015). Three included sessions on mental health literacy education and coping strategies (Balaji et al, 2012;Ngoc et al, 2016;Perlick et al, 2011).…”

Section: Content Of Stigma Reduction Interventionsmentioning

confidence: 99%

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Current strategies in the reduction of stigma among caregivers of patients with mental illness: a scoping review

Monnapula-Mazabane

Babatunde

Petersen

2021

South African Journal of Psychology

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Mental healthcare and wellness are a global concern and have increasingly become an essential service and priority from a human rights perspective. However, negative attitudes towards mental health, such as stigmatisation and discrimination from communities and family members, continue to pose challenges for deinstitutionalisation and home care of mentally ill persons. This study aimed to review the literature on the content and implementation methods of stigma reduction interventions for family/community caregivers of patients with mental illness to inform the development of an anti-stigma intervention for such caregivers in low- and middle-income countries like South Africa. A scoping literature review was conducted of English language studies published from 2008 to 2019 in peer-reviewed journals, using established guidelines for the study objectives. Primary interventions targeting caregivers of mental health patients were searched from PsycINFO, ScienceDirect, CINAHL, and Medline. In total, nine full-text articles were extracted for inclusion in the review, indicating a scarcity of literature on anti-stigma interventions aimed at primary caregivers of mental health patients. Interventions varied in terms of educational content, duration, delivery methods, and sample sizes. Intervention delivery was primarily through face-to-face, telephone, and online methods. Anti-stigma interventions for caregivers of patients with mental illness are varied and show positive short-term impacts on mental health stigma reduction among family caregivers. The evolution of health systems is a feasible approach towards integrating learning and trials that are needed to assess long-term impacts.

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“…[ 1 2 ] Studies regarding caregivers of patients with dementia, patients with pressure ulcers, and other chronic diseases indicate a significant level of intervention from caregivers. [ 3 4 5 6 ] However, due to the unique nature of this disease and its treatments, family caregivers of patients with cancer are different from other family caregivers. [ 7 ]…”

Section: Introductionmentioning

confidence: 99%

Comparing the effects of face-to-face and telenursing education on the quality of family caregivers caring in patients with cancer

Shohani

Mozafari

Khorshidi

et al. 2018

J Family Med Prim Care

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Background:Taking care of patients with cancer is often done at home and by family caregivers. However, these groups do not receive the necessary education regarding care at home.Objectives:The present study aimed to compare the effects of face-to-face and telenursing training methods on the quality of services provided by the family caregiver for patients with cancer.Materials and Methods:A total of 103 family caregivers of patients with cancer were randomly divided into 3 groups: control (N = 35), face to face (N = 34), and telenursing (N = 34). The control group only received the routine training, and the face-to-face and telenursing groups were trained for 12 weeks. Quality of care was measured using a questionnaire before and after intervention. Chi-square, Fisher's exact, and analysis of variance tests were used for data analysis.Results:After intervention, the average total quality score for the care of patients in face-to-face (166.13 ± 13.91) and telenursing (157.76 ± 17.24) groups was significantly higher than the control group (82.51 ± 16.84) (P < 0.001). In addition, the average psychosocial care score for face-to-face group (49.06 ± 6.05) was significantly higher than telenursing group (43.83 ± 6.15) (P < 0.001).Conclusion:The results of the study showed that the two methods of training were effective on the quality of care among family caregivers of patients with cancer to a similar extent.

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“Living together with dementia”: Training programme for family caregivers – A study protocol

Cited by 4 publications

References 3 publications

‘Living Together With Dementia’: preliminary results of a training programme for family caregivers

‘Living Together With Dementia’: preliminary results of a training programme for family caregivers

Current strategies in the reduction of stigma among caregivers of patients with mental illness: a scoping review

Comparing the effects of face-to-face and telenursing education on the quality of family caregivers caring in patients with cancer

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