Living situation, subjective quality of life and social network among individuals with schizophrenia living in community settings

Hansson, Lars; Middelboe, Thomas; Sørgaard, Knut W.; Bengtsson‐Tops, Anita; Bjarnason, O; Merinder, Lars; Nilsson, Liselott; Sandlund, Mikael; Korkeila, Jyrki; Vinding, H R

doi:10.1034/j.1600-0447.2002.02346.x

Cited by 71 publications

(72 citation statements)

References 23 publications

(22 reference statements)

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“…For men, who constituted the majority of participants in our study, we concluded, in accordance with earlier studies (Hansson et al, 2002, Wheeler, 2007, that most of them lived alone, were neither married nor in a close relationship, had no daily occupation, and experienced a more unsatisfactory quality of life. The study also showed that people with SMI and psychiatric functional disabilities living in a community may require not only psychiatric care, but somatic, dental, and social services as well.…”

Section: Discussionsupporting

confidence: 91%

“…Indications of this comes from research documenting increased criminality, drug abuse, suicide, higher mortality, homelessness, isolation, lack of meaningful occupations and underutilization of social care and support systems in this population (Belfrage, 1994;Appleby, 1992;Wahlbeck et al, 2011;Scott, 1993: Beebe, 2010Evert et al, 2003, Hansson et al, 2002.…”

Section: Introductionmentioning

confidence: 99%

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People Living in Community with a Severe Mental Illness: Utilization and Satisfaction with Care and Support

Östman

Björkman²

2014

Community Ment Health J

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

People Living in Community with a Severe Mental Illness: Utilization and Satisfaction with Care and Support

Östman

Björkman²

2014

Community Ment Health J

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“…210 Studies that directly compare mental illness and general population networks also show smaller networks for people with mental illness. 45,109 Therefore, compared with the general population, the connections within this group were likely to be less 'diverse and active'.…”

Section: Data Limitationsmentioning

confidence: 99%

Improving community health networks for people with severe mental illness: a case study investigation

Pinfold

Sweet

Porter³

et al. 2015

Health Services and Delivery Research

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IntroductionPolicy drivers in mental health to address personal recovery, stigma and poor physical health indicate that new service solutions are required. This study aimed to understand how connections to people, places and activities were utilised by individuals with severe mental illness (SMI) to benefit health and wellbeing.MethodsA five-module mixed-methods design was undertaken in two study sites. Data were collected from 150 network-mapping interviews and 41 in-depth follow-up interviews with people with SMI; in-depth interviews with 30 organisation stakeholders and 12 organisation leaders; and 44 telephone interviews with practitioners. We undertook a three-stage synthesis process including independent lived experience feedback, and a patient and public involvement team participated in tool design, data collection, analysis and write-up.ResultsThree personal network types were found in our study using the community health network approach: diverse and active; family and stable; formal and sparse. Controlled for other factors we found only four variables significantly associated with which network type a participant had: living alone or not; housing status; formal education; long-term sickness or disability. Diagnosis was not a factor. These variables are challenging to address but they do point to potential for network change. The qualitative interviews with people with SMI provided further understanding of connection-building and resource utilisation. We explored individual agency across each network type, and identified recognition of the importance and value of social support and active connection management alongside the risks of isolation, even for those most affected by mental illness. We identified tensions in personal networks, be that relationships with practitioners or families, dealing with the impact of stigma, or frustrations of not being in employment, which all impact on network resources and well-being. The value of connectedness within personal networks of people, place and activity for supporting recovery was evident in shaping identity, providing meaning to life and sense of belonging, gaining access to new resources, structuring routines and helping individuals ‘move on’ in their recovery journey.Health-care practitioners recognised that social factors were important in recovery but reported system-level barriers (workload, administrative bureaucracy, limited contact time with clients) in addressing these issues fully. Even practitioners working in third-sector services whose remit involved increasing clients’ social connection faced restrictions due to being evaluated by outcome criteria that limited holistic recovery-focused practices. Service providers were keen to promote recovery-focused approaches. We found contrasts between recovery ideology within mental health policy and recovery practice on the ground. In particular, the social aspects of supporting people with SMI are often underprioritised in the health-care system. In a demanding and changing context, strategic multiagency working was seen as crucial but we found few examples of embedded multisector organisation partnerships.ConclusionWhile our exploratory study has limitations, findings suggest potential for people with SMI to be supported to become more active managers of their personal networks to support well-being regardless of current network type. The health and social care system does not currently deliver multiagency integrated solutions to support SMI and social recovery.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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“…Furthermore, housing is an important determinant of mental health for people with intellectual disabilities (McGlaughlin 2004). A number of studies have addressed the outcome of different types of housing for people with psychiatric disabilities (Hansson et al 2002;Kyle and Dunn 2008;Nelson et al 1998;Oliver and Mohamad 1992) and intellectual disabilities (Emerson 2004;McConkey 2007;Perry and Felce 2003;Young 2006). Studies indicate limitations in community-based housing opportunities for people with psychiatric disabilities and conclude that homelessness is all too commonly experienced by people discharged from hospital wards (Burt et al 2007;Forchuk et al 2006;Kuno et al 2000;Nordentoft et al 1997).…”

Section: Introductionmentioning

confidence: 99%

Support in Housing: A Comparison Between People with Psychiatric Disabilities and People with Intellectual Disabilities

Umb‐Carlsson

Jansson

2009

Community Ment Health J

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The primary objective of this study was to compare type of housing and support in housing in two groups (people with psychiatric disabilities and people with intellectual disabilities) typically dependent on support in everyday life. A second objective was to examine whether type of housing and support in housing were related to gender within the two groups. Information was obtained by available questionnaire reports provided by staff members. The results indicate unequal accessibility of support in housing in relation to the two groups. Moreover, the findings suggest that type of disability is a more determining factor than gender regarding support in housing.

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Living situation, subjective quality of life and social network among individuals with schizophrenia living in community settings

Abstract: People with schizophrenia with an independent housing situation have a better quality of life associated with more favorable perceptions of independence, influence, and privacy. Their social network is better irrespective of whether they live alone or not, or with family or not.

Cited by 71 publications

References 23 publications

People Living in Community with a Severe Mental Illness: Utilization and Satisfaction with Care and Support

People Living in Community with a Severe Mental Illness: Utilization and Satisfaction with Care and Support

Improving community health networks for people with severe mental illness: a case study investigation

Support in Housing: A Comparison Between People with Psychiatric Disabilities and People with Intellectual Disabilities

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