Living positively with dementia: a systematic review and synthesis of the qualitative literature

Wolverson, Emma; Clarke, Chris; Moniz-Cook, Esmé

doi:10.1080/13607863.2015.1052777

Cited by 94 publications

(117 citation statements)

References 62 publications

(132 reference statements)

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“…Moving into the fourth age may be an acceptable post‐liminal state if people are able to review their lives and look back over a positive life (Wolverson et al . ). To ease the path along the journey to the fourth age there needs to be a realisation and imaginary of the fourth age as being not only a time of frailty, but also a time when some embodied agentic actions remain, even if it requires care workers to support such agency.…”

Section: Post‐liminal Destinationsmentioning

confidence: 97%

“…For some people, in some life stages moving to live 'in the shadow of the fourth age' can be a (destination) which is both realistic in accepting age-inherent physical challenges, while still offering opportunities for agentic actions. Moving into the fourth age may be an acceptable post-liminal state if people are able to review their lives and look back over a positive life (Wolverson et al 2015). To ease the path along the journey to the fourth age there needs to be a realisation and imaginary of the fourth age as being not only a time of frailty, but also a time when some embodied agentic actions remain, even if it requires care workers to support such agency.…”

Section: Rituals Of Becoming a Person With Dementiamentioning

confidence: 99%

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Shifting dementia discourses from deficit to active citizenship

Birt

Poland

Csipke

et al. 2017

Sociology Health & Illness

102

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Within western cultures, portrayals of dementia as 'a living death' are being challenged by people living with the diagnosis. Yet dementia remains one of the most feared conditions. The sociological lens of citizenship provides a conceptual framework for reviewing the role of society and culture in repositioning dementia away from deficit to a discourse of agency and interdependence. Awareness of cognitive change, and engaging with the diagnostic process, moves people into a transitional, or 'liminal' state of uncertainty. They are no longer able to return to their previous status, but may resist the unwanted status of 'person with dementia'. Drawing on qualitative studies on social participation by people with dementia, we suggest that whether people are able to move beyond the liminal phase depends on acceptance of the diagnosis, social capital, personal and cultural beliefs, the responses of others and comorbidities. Some people publicly embrace a new identity whereas others withdraw, or are withdrawn, from society to live in the shadow of the fourth age. We suggest narratives of deficit fail to reflect the agency people with dementia can enact to shape their social worlds in ways which enable them to establish post-liminal citizen roles. (A Virtual Abstract of this paper can be viewed at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA).

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Section: Post‐liminal Destinationsmentioning

confidence: 97%

Section: Rituals Of Becoming a Person With Dementiamentioning

confidence: 99%

Shifting dementia discourses from deficit to active citizenship

Birt

Poland

Csipke

et al. 2017

Sociology Health & Illness

102

View full text Add to dashboard Cite

show abstract

“…Generally, the experience of the quality of life is associated with the experience of social support and social interactions (Beerens et al, ; Wolverson, Clarke, & Moniz‐Cook, ). To prevent isolation and to maintain a meaningful life in the stages of mild and moderate dementia, many people with dementia emphasise the importance of having social relations with others in the same situation as achieved at day care (Eriksen et al, ).…”

Section: Introductionmentioning

confidence: 99%

“…Generally, the experience of the quality of life is associated with the experience of social support and social interactions (Beerens et al, 2018;Wolverson, Clarke, & Moniz-Cook, 2016).…”

Section: Introductionmentioning

confidence: 99%

People with dementia attending farm‐based day care in Norway – Individual and farm characteristics associated with participants’ quality of life

Ibsen

Kirkevold

Patil

et al. 2020

Health Soc Care Community

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Farm‐based day care for people with dementia is supposed to improve the participants quality of life by using activities and resources of the farm environment to promote mental and physical health. In this paper, we describe the characteristics of those attending farm‐based day care services in Norway and explore the association between individual and farm characteristics and the quality of life. A sample of 94 people with dementia who attended farm‐based day care was recruited from 25 farms between January 2017 and January 2018. The data collection was performed using standardized instruments. Information about the farms was retrieved from a former study. The association between the participants’ quality of life and their individual and/or farm characteristics was examined with a linear multilevel regression model. The participants had a mean age of 76 years, 62% were men, and 68% had additional education after primary school. Most of them had mild (54.3%) or questionable dementia (18.3%). A few participants used antipsychotics (3.7%), tranquilizers (9.9%) and painkillers (13.6%), while a higher number used antidepressants (30.9%). Quality of life was associated with the experience of having social support (p = .023), a low score on depressive symptoms (p < .001), and spending time outdoors at the farm (p < .001). The variation between the farm‐based day care services in the participants’ reported quality of life was related to time spent outdoors at the farm. In light of the present study, it seems as farm‐based day care is addressing people with dementia in an early stage, dominated by men, with quite good physical and medical condition. The strong association between quality of life and spending time outdoors underscores that facilitation for outdoor activity should be prioritized in all types of dementia care.

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“…More recently, a meta-synthesis of living positively with dementia was undertaken, which highlighted retained capacities to utilise character strengths and actively seek enjoyment and pleasure and provides a strong rationale for the development of PP outcome measures within dementia research [10]. …”

Section: Introductionmentioning

confidence: 99%

Review of Positive Psychology Outcome Measures for Chronic Illness, Traumatic Brain Injury and Older Adults: Adaptability in Dementia?

Stoner¹,

Orrell

Spector³

2015

Dement Geriatr Cogn Disord

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Background: Despite positive psychology being increasingly recognised as an important agent in well-being, there is a lack of standardised outcome measures for psychosocial dementia research. This review assessed positive psychology outcome measures using standardised criterion in populations that were identified as having shared characteristics. It aimed to identify robust measures that were suitable for potential adaption or use within a dementia population. Summary: The review identified 16 positive psychology outcome measures (and 8 further psychometric assessments of these) within the constructs of resilience, self-efficacy, religiousness/spirituality, life valuation, sense of coherence, autonomy, resourcefulness and a combined measure (CASP-19). Scale development studies were subject to a quality assessment, and most were found to be lacking information on reproducibility and responsiveness. Key Messages: A wide range of measures within the constructs of positive psychology was identified as having potential utility for psychosocial research within a dementia population. Examples included the CD-RISC, GSWB, SWLS, MPAQ, RSOA and CASP-19. It is recommended that such scales are further adapted or validated for people with dementia. Underreporting of appropriate psychometric analyses hampered this review, and it is recommended that future authors endeavour to report such analyses.

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Living positively with dementia: a systematic review and synthesis of the qualitative literature

Cited by 94 publications

References 62 publications

Shifting dementia discourses from deficit to active citizenship

Shifting dementia discourses from deficit to active citizenship

People with dementia attending farm‐based day care in Norway – Individual and farm characteristics associated with participants’ quality of life

Review of Positive Psychology Outcome Measures for Chronic Illness, Traumatic Brain Injury and Older Adults: Adaptability in Dementia?

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