Living, loving, dying: Insights into rural compassion

Marsh, Pauline; Thompson, Stephanie; Mond, Jonathan

doi:10.1111/ajr.12530

Cited by 7 publications

(44 citation statements)

References 21 publications

(31 reference statements)

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“…Indeed, hospice gardens have been likened to sanctuaries – places of refuge and beauty ( Worpole, 2009 ). Moreover, in other research people have turned to home gardens to (re)connect with people whom they have loved and who have died, experience comforting memories ( de Bell et al., 2020 ), a spatial-spiritual connection ( Marsh et al., 2019 ) and continuing bonds between living and dead ( Jonsson and Walter, 2017 ).…”

Section: Gardens and Greater Affectmentioning

confidence: 99%

Where birds felt louder: The garden as a refuge during COVID-19

Marsh¹,

Diekmann²,

Egerer³

et al. 2021

Wellbeing, Space and Society

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During the COVID-19 pandemic, many countries experienced something of a boom in interest in gardening. Gardens have long been considered as refuges into which we retreat to escape various struggles and challenges. In this study we examine the characteristics and functions of the garden as a refuge during the period of increased garden interest associated with the COVID-19 pandemic. Analysis of qualitative results about garden experiences from 3,743 survey respondents revealed intertwining garden and emotional geographies. Utilising non-representational and therapeutic landscape theories, we found multifarious and heightened experiences of non-material aspects of gardens; that is, the sensory and emotional aspects. People experienced, for example, a sense of joy, beauty, and reassurance, a greater attunement to the natural world and an increased sense of nature connection than they had at other times: birds felt louder. These heightened sensory and emotional experiences had therapeutic benefits, across age and geographical spectrums, during these difficult times. This research improves our understandings of the positive potential of non-material aspects of gardens in the creation of therapeutic landscapes in and beyond COVID-19.

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Section: Gardens and Greater Affectmentioning

confidence: 99%

Where birds felt louder: The garden as a refuge during COVID-19

Marsh¹,

Diekmann²,

Egerer³

et al. 2021

Wellbeing, Space and Society

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“…In the studies of Robinson et al [38] and Marsh et al [40], all care recipients had life-limiting diseases, while in Rainford et al's [41] study, most of the care recipients had cancer. A consultation with the first author of Marsh et al's [40] study revealed that not all family carers had known the care recipients' diagnoses, but at least seven care recipients had died of cancer. The findings in Robinson et al's [38] study revealed that many care recipients suffered from cancer.…”

Section: Resultsmentioning

confidence: 95%

“…Altogether, 240 family carers were included in the studies. Four articles included carers of either persons with cancer or those with other life-limiting illnesses [38][39][40][41].…”

Section: Resultsmentioning

confidence: 99%

Ambivalent and heavy burdened wanderers on a road less travelled: A meta- ethnography on end-of-life care experiences in rural areas

Breivik,

Ervik,

Kitzmüller

2023

Preprint

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Background: As the population ages, more people will be diagnosed with cancer, and they will live longer due to receiving better treatment and optimized palliative care. Family members will be expected to take on more responsibilities related to providing palliative care at home. Several countries have expressed their vision of making home death an option, but such a vision can be more challenging in rural areas. There is a lack of synthesized research providing an in-depth understanding of rural family caregiving for people with cancer at the end of life. Thus, the purpose of this study was to synthesize and reinterpret the findings from qualitative research on rural family caregivers of adult cancer patients in the final stages of life. Methods: We conducted a meta-ethnography following Noblit and Hare’s approach. A systematic literature search of four databases and extensive manual searches were completed in April 2022. The final sample included twelve studies from six different countries published in 2011-2022. Results: Based on the translation and synthesis of the included studies, four themes were developed (1) providing family care at the end of life in rural areas - a challenging endeavour; (2) the heavy responsibility of rural caregiving - a lonesome experience; (3) working on and behind the scenes; and (4) the strong and weak spots of community connectedness in rural areas. An overarching metaphor, namely, “ambivalent and heavy burdened wanderers on a road less travelled”, provides a deeper understanding of the meaning of rural family caregiving at the end of life. Conclusions: This study provides valuable insights into end-of-life cancer care for rural families. It is crucial to prepare family carers for the demanding role of palliative caregiving in rural areas. To address the long distances and poor access related to specialized health care services, outpatient palliative teams tailored to the families’ individual needs should be provided. In addition, more telehealth services, palliative units, or beds in local nursing facilities may reduce the number of exhausting trips that need to be made by caregivers and patients. The further education of health care workers providing palliative care in rural areas is needed. Trial registration: The study was registered in PROSPERO

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“…20,37-40 The general lack of qualified PC providers in rural areas made it fundamentally difficult for patients and families to access PC information. 18,25,38,41-43 Some patients and families found it hard to connect with their providers; some providers failed to recognize the PC needs of patients and families or failed to introduce PC timely. 25,38-40,44 Notably, poor health literacy and language barriers restricted the already limited communications.…”

Section: Resultsmentioning

confidence: 99%

“…27,28 Consequently, some providers failed to locate available and appropriate PC services and left patients with little or no information. 27,43…”

Section: Resultsmentioning

confidence: 99%

Examining Barriers and Facilitators to Palliative Care Access in Rural Areas: A Scoping Review

Cai

Lalani

2021

Am J Hosp Palliat Care

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Background: Despite the growth of palliative care (PC), access to PC remains challenging for rural Americans living with chronic diseases. Given the demand and benefits of PC, a comprehensive view of PC access would inform policymakers in developing PC services in rural areas. Objective: This scoping review aimed to understand the barriers and facilitators to PC access in rural areas from the voices of service users and service providers during the past decade. Methods: A scoping literature review was conducted from 2010 to 2020 using MEDLINE, CINAHL, and PsychINFO databases. Results: Twenty-eight studies met inclusion criteria. Barriers to PC access in rural areas mostly arose in structural issues: (1) the inadequate knowledge and awareness of PC among both service users and providers and (2) the poorly structured PC system. Other barriers included communication gaps/challenges between providers and patients/families and cultural barriers. The facilitators mainly originated in patients/families’ connectedness with local providers and with other social networks such as friends. Conclusions: These findings highlight the need for funding support to increase provider competency, service availability and accessibility, and the public knowledge and awareness of PC in rural areas. A holistic and tailored PC model that standardizes care delivery, referral and coordination, including family caregiver support programs, can improve care access. Future practice and research are warranted to implement and evaluate innovative approaches, such as a coordinated community-based approach, to the successful integration of PC in rural communities.

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Living, loving, dying: Insights into rural compassion

Cited by 7 publications

References 21 publications

Where birds felt louder: The garden as a refuge during COVID-19

Where birds felt louder: The garden as a refuge during COVID-19

Ambivalent and heavy burdened wanderers on a road less travelled: A meta- ethnography on end-of-life care experiences in rural areas

Examining Barriers and Facilitators to Palliative Care Access in Rural Areas: A Scoping Review

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