Living kidney organ donation: experiences of spousal support of donors

Taylor, Laura A.; McMullen, Patricia C.

doi:10.1111/j.1365-2702.2007.02016.x

Cited by 13 publications

(24 citation statements)

References 41 publications

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“…However, male spouses and caregivers of living donors had all accessed the Internet seeking information about living kidney donation. 21 …”

Section: Development Of the Living Donor Information Network For Carementioning

confidence: 99%

“…In 2 studies 21,38 of living kidney donors, donors reported unexpected financial hardships related to the donation. In another pilot study, 24 35% (n=52) reported that recovery from surgery was more painful than they had anticipated.…”

Section: Development Of the Living Donor Information Network For Carementioning

confidence: 99%

“…19 Brennan 20 suggests that online support systems and educational offerings may make meeting the demands of ever-changing home care goals and make recovery information more accessible and efficient for an individual patient and family. Taylor and McMullen 21 report that living kidney donor candidates and their spouses experience a process of information gathering and decision making in which they feel confident and fully informed about the decision to donate. By using a variety of engaging and interactive methods, Internet-based resources can reach out to a more heterogeneous patient population, cross over generational barriers benefiting multiple learning styles.…”

Section: Introductionmentioning

confidence: 99%

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Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

et al. 2012

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Context Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap. Strategy Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented. Conclusions Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.

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“…However, male spouses and caregivers of living donors had all accessed the Internet seeking information about living kidney donation. 21 …”

Section: Development Of the Living Donor Information Network For Carementioning

confidence: 99%

Section: Development Of the Living Donor Information Network For Carementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

et al. 2012

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“…Patients suffering from chronic kidney disease who stand to benefit from transplantation have steadily risen over the last two decades and renal transplantation has long been considered an acceptable and popular operation as the "last" option for someone who is suffering from end-stage organ failure (Iglesia-Marquez, et al, 2001;Waterman, et al, 2004;Wright, Richardson & Grant, 2004;Stothers, Gourlay & Liu, 2005;Taylor & McMullen, 2007;Symvoulakis, Stavroulaki, Morgan & Jones, 2010). The numbers of transplants derived from living kidney donors is rising steadily (Horvat, 2009;VanGelder, et al, 2009;Excell, 2010;Transplant Living, 2010), but the thorny issue remains and it is unclear whether the conflict of benefiting one patient by potentially harming another has been fully rectified.…”

Section: Primum Non Nocere: First Do No Harmmentioning

confidence: 99%

The living donor study: the concepts and frames of living kidney donors

Cunningham¹,

Leach²,

Fawcett³

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This thesis explores the concepts and frames of living kidney donors through the use of recorded and transcribed conversations between living kidney donor patients and their transplant team. It offers insight into the expectations of living kidney donors as they prepare themselves to gift a kidney to someone they know.Living kidney donor frames are represented as particularly resilient and well-defined, shielding them from messages delivered by their transplant team. Those frames incorporate their acceptance as living kidney donors, the risk to themselves and their own personal definitions of autonomy and choice.With the intention of using phenomenological discourse analysis to examine the recorded and transcribed data, ten potential living kidney donors and their recipients were invited to take part in a PhD project entitled the Living Donor Study at the Princess Alexandra Hospital, in Queensland Australia. Transcriptions were analysed using line-by-line and axial coding and living donor transcripts were repeatedly compared with one another in order to reach an appropriate level of saturation and provide evidence of re-emerging concepts and frames.Data for the Living Donor Study were obtained during the living kidney donor's initial transplant assessment clinic visit. The purpose of this project was to examine prospective accounts of the living donation experience using conversations with their transplant team as opposed to using retrospective questionnaires and interviewing methods. By eliminating much of the subjectivity that is common in ex post facto interviews, I was able to identify many of the concepts that assist living kidney donors in framing their experience and how those frames impact upon their expectations of the transplant assessment clinic and their upcoming donation.

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“…2 Such information may help the healthcare team in obtaining informed consent from future donors, promoting the well being of donors and their families, and possibly infl uencing the decision of others considering kidney donation. The aim of this study was to determine the overall experience (assessment, procedure, and post-operative course) of kidney donors and to obtain their feedback about the service at our center.…”

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confidence: 99%

Donor perspectives in living kidney transplantation

Rana

Akoh

2010

Dialysis & Transplantation

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OBJECTIVEThe aim of this study was to determine the overall experience of living kidney donors.METHODSAll 80 kidney donors at a teaching hospital between 2003 and 2008 were sent a postal questionnaire to determine the level of satisfaction with the kidney donation process, including post‐operative pain and return to fitness after surgery.RESULTSA total of 56 donors returned the questionnaires. The average loss of earnings in 29 donors was £995.17 6 £297.03. A total of 52 donors (93%) rated their overall experience as excellent or good, 55 donors (98%) had no regrets about donation, and 26 donors (46%) would have considered altruistic donation if they were unable to donate to their intended recipient. Qualitative analysis of responses showed a positive attitude to organ donation, with a willingness to encourage others, a request for chat facilities on the unit's website, and a more regular follow‐up.DISCUSSIONLiving kidney donors were generally satisfied with the organ donation process and likely to recommend it to others. The issue of compensation for loss of earnings must be addressed in order to encourage other potential donors. Perhaps other potential donors withdrawing from the assessment process due to inability to donate to their intended recipient should be counseled about altruistic non‐directed donation.

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Living kidney organ donation: experiences of spousal support of donors

Cited by 13 publications

References 41 publications

Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

The living donor study: the concepts and frames of living kidney donors

Donor perspectives in living kidney transplantation

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