Living Kidney Donation Stories and Advice Shared Through a Digital Storytelling Library: A Qualitative Thematic Analysis

Davis, LaShara A.; Iraheta, Yaquelin Arevalo; Ho, Erica W.; Murillo, Ariana L.; Feinsinger, Ashley; Waterman, Amy D.

doi:10.1016/j.xkme.2022.100486

Cited by 7 publications

(6 citation statements)

References 40 publications

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“…Therefore, immigrant and racialized patients may benefit from strategies to support their communication with potential LD candidates. 46 , 82 , 84 , 91 , 92 , 93 …”

Section: Discussionmentioning

confidence: 99%

Racialized and Immigrant Status and the Pursuit of Living Donor Kidney Transplant - a Canadian Cohort Study

Lui,

Gill,

Hamid

et al. 2024

Kidney International Reports

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“…Therefore, immigrant and racialized patients may benefit from strategies to support their communication with potential LD candidates. 46 , 82 , 84 , 91 , 92 , 93 …”

Section: Discussionmentioning

confidence: 99%

Racialized and Immigrant Status and the Pursuit of Living Donor Kidney Transplant - a Canadian Cohort Study

Lui,

Gill,

Hamid

et al. 2024

Kidney International Reports

Self Cite

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“…2. Explore ways in which the experience of other people with AKD can be used in educational events and platforms [55][56][57] to improve understanding and health literacy without biasing people's decision making [58]. 3.…”

Section: Discussionmentioning

confidence: 99%

“…The need to implement the use of these resources was advocated by participants in this study. This has already been recognised nationally with inclusion of resources in the NHS Blood and Transplant “Transplant TV” series [ 55 ], the National Black, Asian and minority ethnic (BAME) Transplant Alliance initiative [ 63 ], and other projects that support LDKT decision making [ 56 , 57 ]. Recent guidance on the inclusion of narratives in patient decision aids interventions, suggest that whilst they may be beneficial to help people understand others experiences of the process with which a decision was made, they may also bias people’s decision making [ 58 ].…”

Section: Discussionmentioning

confidence: 99%

Decisional Needs of People From Minority Ethnic Groups Around Living Donor Kidney Transplantation: A UK Healthcare Professionals’ Perspective

Ahmed

Winterbottom

Ahmed³

et al. 2023

Transpl Int

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Despite improved patient and clinical outcomes, living donor kidney transplantation is underutilized in the United Kingdom, particularly among minority ethnic groups, compared to deceased donor kidney transplantation. This may in part be due to the way in which kidney services present information about treatment options. With a focus on ethnicity, semi structured interviews captured the views of 19 kidney healthcare professionals from two renal centres in West Yorkshire, about the decisional needs and context within which people with advanced kidney disease make transplant decisions. Data were analysed using thematic analysis. Themes were categorized into three groups: 1) Kidney healthcare professionals: language, cultural awareness, trusted personnel, and staff diversity, 2) Patient information resources: timing and setting of education and suitability of patient-facing information and, 3) People with advanced kidney disease: knowledge, risk perception, and cultural/religious beliefs. To our knowledge, this is the first study in the United Kingdom to investigate in depth, healthcare professionals’ views on living donor kidney transplantation decision making. Six recommendations for service improvement/delivery to support decision making around living donor kidney transplantation among minority ethnic groups are described.

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“…Objective [1], [13], [52], [55] Story screening [3], [5], [13], [15], [17], [19], [20], [21], [22], [24], [25], [26], [27], [28], [30], [32], [34], [35], [37], [38], [51], [53] Content analysis [17], [22], [24], [33], [34], [37], [43], [52], [53] Health information story [1], [2], [3], [26], [27], [28], [30], [32], [33], [34], [35], [39], [40], [42], [43],…”

Section: Story Informationmentioning

confidence: 99%

“…How to tell a story [1], [5], [18], [24], [27], [34], [37], [41], [44], [46], [51], [52], [53], [55] Narrator/ listener/actor [1], [5], [13], [19], [20], [22], [24], [25], [27], [28], [32], [37], [39], [41], [44], [46], [49], [50] Narration [2], [3], [13], [17], [22], [29], [37], [39], [50], [52], [53], [55] Creative text [1], [2], [3], [13], [26], [28],…”

Section: Characteristics Of the Speaker/listenermentioning

confidence: 99%

A Systematic Review of the Intelligent Digital Storytelling Process in Disseminating Health Information

Eumbunnapong

Nilsook²,

Wannapiroon³

2023

Int. J. Onl. Eng.

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Digital storytelling is a new concept in education that involves creating meaning. It is a tool with great potential, but in Thailand, it is currently not very popular in terms of sharing stories about disease. This review analyzes the components and processes of intelligent digital storytelling to aid the development of an intelligent digital storytelling platform for disseminating health information. Based on the synthesis of relevant documents, the research process involves 9 main steps: 1) identifying the review objectives, 2) reviewing research questions, 3) determining inclusion criteria, 4) finding relevant studies, 5) selecting documents, 6) data extraction, 7) arriving at a conclusion, 8) document synthesis and 9) discussion of the results. A study of articles from the PRISMA Checklist published between 2017 and 2022 revealed that ultimately only 47 articles met the inclusion criteria. From the analysis of the data, it was found that there are four main elements and 16 sub-components of intelligent digital storytelling. There are 12 steps in the process of intelligent digital storytelling with regard to health information dissemination. The optimal length of an intelligent digital narrative video clip relating to health information dissemination is approximately 2-5 minutes when it comes to achieving the best knowledge of health information.

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Living Kidney Donation Stories and Advice Shared Through a Digital Storytelling Library: A Qualitative Thematic Analysis

Cited by 7 publications

References 40 publications

Racialized and Immigrant Status and the Pursuit of Living Donor Kidney Transplant - a Canadian Cohort Study

Racialized and Immigrant Status and the Pursuit of Living Donor Kidney Transplant - a Canadian Cohort Study

Decisional Needs of People From Minority Ethnic Groups Around Living Donor Kidney Transplantation: A UK Healthcare Professionals’ Perspective

A Systematic Review of the Intelligent Digital Storytelling Process in Disseminating Health Information

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