Abstract:Purpose
This paper aims to understand the lived experience of a person living with dementia in a care home during the COVID-19 pandemic. It responds to the absence in research of the voices of people with dementia living in care homes during the pandemic.
Design/methodology/approach
The paper adopts a single case study design applied thematic analysis to semi-structured interview data to discover the experiences of one person living with dementia in a care home during a period of lockdown.
Findings
Five th… Show more
“…The full text of all 33 remaining potentially eligible studies were retrieved, and 15 papers were excluded with reasons, leaving 18 studies included. The studies were published in a range of countries including: Spain (3) (Cortés Zamora et al, 2022; Pereiro et al, 2021; Pérez‐Rodríguez et al, 2021), Turkey (2) (Arpacıoğlu et al, 2021; Savci et al, 2021), United Kingdom (1) (Davies‐Abbott et al, 2021), New Zealand (1) (Cheung et al, 2021), Israel (1) (Ayalon & Avidor, 2021), France (1) (El Haj et al, 2020), China (1) (Ho et al, 2022), Switzerland (1) (Huber & Seifert, 2022), Canada (1) (Ickert et al, 2021), Belgium (1) (Kaelen et al, 2021), United States of America (1) (Levere et al, 2021), Sweden (1) (Lood et al, 2021), Ireland (1) (Murphy et al, 2022), Croatia (1) (Solić et al, 2021), and Thailand (1) (Srifuengfung et al, 2021). All studies were conducted during the COVID‐19 pandemic from early 2020 to mid‐2021.…”
Section: Resultsmentioning
confidence: 99%
“…Qualitative findings from various countries revealed that the pandemic evoked feelings of depression, fear, anxiety, and loneliness. Residents reported feelings of sadness and frustration, many stated they were depressed (Ayalon & Avidor, 2021; Davies‐Abbott et al, 2021; Ickert et al, 2021; Kaelen et al, 2021). I'm lonely here and sad, and as time goes on, its becoming, like there's a lot more people that's depressed, and I cry at night.…”
Section: Resultsmentioning
confidence: 99%
“…The experience of lockdown, isolation, and restriction was particularly traumatising for some residents, who likened the feelings they felt to those of when they experienced the Holocaust or World War II, but they still had their freedom (Ayalon & Avidor, 2021; Kaelen et al, 2021). Others expressed feelings of being claustrophobic, abandoned and described the lockdown periods as the most horrible period of their lives (Ayalon & Avidor, 2021; Davies‐Abbott et al, 2021; Kaelen et al, 2021). The pandemic created a disconnection from their families, and many felt vulnerable, lonely, and expressed that they lacked significance to others (Ho et al, 2022; Murphy et al, 2022).…”
Section: Resultsmentioning
confidence: 99%
“…Many spoke of losing friends and family members and not being able to leave to attend funerals or visit graves of loved ones (Ayalon & Avidor, 2021; Ickert et al, 2021; Kaelen et al, 2021; Murphy et al, 2022). Residents felt infantilised when they were not asked about their opinions and felt they were losing their autonomy and as the lockdown measures continued, many felt angry and stressed (Davies‐Abbott et al, 2021; Kaelen et al, 2021; Murphy et al, 2022).…”
IntroductionTo critically synthesise evidence in relation to the holistic care impacts (physical, psychological, social, spiritual, and environmental well‐being) among individuals living in residential aged care facilities (RACFs) with restrictions during the COVID‐19 pandemic.MethodsAn integrative systematic review followed a pre‐registered protocol and has been reported according to the Preferred Reporting Items for Systematic Reviews and Meta‐analysis (PRISMA) Guidelines. Electronic databases were searched from inception to June 2022. Qualitative, quantitative, and mixed methods studies were included. All articles were double screened according to a pre‐determined eligibility criterion. The review process was managed using Covidence systematic review software. Data from the studies were extracted, methodological quality appraisal conducted, and a narrative synthesis conducted.Results18 studies were included. The impact of restrictive practices and periods of lockdown impacted older people on all levels of individual quality‐of‐life. With or without COVID‐19, residents experienced functional decline and many experienced malnutrition, increased incontinence, increased pain, and poorer general health and significant psychological distress. Depression increased with reduced social contact, as did anxiety and loneliness. Some residents spoke of suicidal ideation.ConclusionIt is highly plausible that further outbreaks may prompt knee‐jerk reactions from public health departments and governing bodies to continue to restrict and lockdown facilities. Public health COVID‐19 outbreak policy for aged care across the globe will need to consider the benefits verses risk debate given the findings uncovered in this review. These findings showed that it is vital that policy considers quality‐of‐life domains not solely survival rates.
“…The full text of all 33 remaining potentially eligible studies were retrieved, and 15 papers were excluded with reasons, leaving 18 studies included. The studies were published in a range of countries including: Spain (3) (Cortés Zamora et al, 2022; Pereiro et al, 2021; Pérez‐Rodríguez et al, 2021), Turkey (2) (Arpacıoğlu et al, 2021; Savci et al, 2021), United Kingdom (1) (Davies‐Abbott et al, 2021), New Zealand (1) (Cheung et al, 2021), Israel (1) (Ayalon & Avidor, 2021), France (1) (El Haj et al, 2020), China (1) (Ho et al, 2022), Switzerland (1) (Huber & Seifert, 2022), Canada (1) (Ickert et al, 2021), Belgium (1) (Kaelen et al, 2021), United States of America (1) (Levere et al, 2021), Sweden (1) (Lood et al, 2021), Ireland (1) (Murphy et al, 2022), Croatia (1) (Solić et al, 2021), and Thailand (1) (Srifuengfung et al, 2021). All studies were conducted during the COVID‐19 pandemic from early 2020 to mid‐2021.…”
Section: Resultsmentioning
confidence: 99%
“…Qualitative findings from various countries revealed that the pandemic evoked feelings of depression, fear, anxiety, and loneliness. Residents reported feelings of sadness and frustration, many stated they were depressed (Ayalon & Avidor, 2021; Davies‐Abbott et al, 2021; Ickert et al, 2021; Kaelen et al, 2021). I'm lonely here and sad, and as time goes on, its becoming, like there's a lot more people that's depressed, and I cry at night.…”
Section: Resultsmentioning
confidence: 99%
“…The experience of lockdown, isolation, and restriction was particularly traumatising for some residents, who likened the feelings they felt to those of when they experienced the Holocaust or World War II, but they still had their freedom (Ayalon & Avidor, 2021; Kaelen et al, 2021). Others expressed feelings of being claustrophobic, abandoned and described the lockdown periods as the most horrible period of their lives (Ayalon & Avidor, 2021; Davies‐Abbott et al, 2021; Kaelen et al, 2021). The pandemic created a disconnection from their families, and many felt vulnerable, lonely, and expressed that they lacked significance to others (Ho et al, 2022; Murphy et al, 2022).…”
Section: Resultsmentioning
confidence: 99%
“…Many spoke of losing friends and family members and not being able to leave to attend funerals or visit graves of loved ones (Ayalon & Avidor, 2021; Ickert et al, 2021; Kaelen et al, 2021; Murphy et al, 2022). Residents felt infantilised when they were not asked about their opinions and felt they were losing their autonomy and as the lockdown measures continued, many felt angry and stressed (Davies‐Abbott et al, 2021; Kaelen et al, 2021; Murphy et al, 2022).…”
IntroductionTo critically synthesise evidence in relation to the holistic care impacts (physical, psychological, social, spiritual, and environmental well‐being) among individuals living in residential aged care facilities (RACFs) with restrictions during the COVID‐19 pandemic.MethodsAn integrative systematic review followed a pre‐registered protocol and has been reported according to the Preferred Reporting Items for Systematic Reviews and Meta‐analysis (PRISMA) Guidelines. Electronic databases were searched from inception to June 2022. Qualitative, quantitative, and mixed methods studies were included. All articles were double screened according to a pre‐determined eligibility criterion. The review process was managed using Covidence systematic review software. Data from the studies were extracted, methodological quality appraisal conducted, and a narrative synthesis conducted.Results18 studies were included. The impact of restrictive practices and periods of lockdown impacted older people on all levels of individual quality‐of‐life. With or without COVID‐19, residents experienced functional decline and many experienced malnutrition, increased incontinence, increased pain, and poorer general health and significant psychological distress. Depression increased with reduced social contact, as did anxiety and loneliness. Some residents spoke of suicidal ideation.ConclusionIt is highly plausible that further outbreaks may prompt knee‐jerk reactions from public health departments and governing bodies to continue to restrict and lockdown facilities. Public health COVID‐19 outbreak policy for aged care across the globe will need to consider the benefits verses risk debate given the findings uncovered in this review. These findings showed that it is vital that policy considers quality‐of‐life domains not solely survival rates.
“…Finally, further research is necessary to provide a stronger evidence base for the benefits of intergenerational practice and how to support children and adults who may find it more difficult to engage. New dialogic ways are needed to actively listen to the voices of young children and older adults in care to optimise opportunities for learning and development (Davies-Abbott et al, 2021 ; Murray, 2019 ). One way to address is taking a co-productive approach, doing research with [rather than on] children, older adults, practitioners to generate new knowledge and understandings (Clark, 2017 ).…”
Intergenerational practice, where children and older adults come together for shared activities, has grown in popularity in many Western countries. However, research about intergenerational practice, particularly in the UK, is limited. This paper reports on the findings from an exploratory case study about a small intergenerational project between a maintained nursery school and a residential care home for older adults with dementia in the South-East of England. The methodology was informed by a narrative dialogic approach drawing on the work of Bakhtin. Data was collected using naturalistic observations of children’s weekly visits to the care home and qualitative interviews with nursery school practitioners. The analysis explores how meaningful interactions were created between the children, the older adults, and the nursery school practitioners. Our findings suggest that singing, unstructured moments, continuity, context (open spaces/flexible sessions), and objects contribute to meaningful interactions between young children and older adults. The ability to be flexible and “go with the moment” were identified as key skills for practitioners supporting children and older adults. We conclude that intergenerational projects afford benefits not just for children and older adults, but also for practitioners in the form of “emotional rewards”. The importance of re-establishing intergenerational practice is recognised, as well as the ways in which barriers created by social distancing might safely be addressed through the use of outdoor spaces and digital technologies.
Supplementary Information
The online version contains supplementary material available at 10.1007/s10643-022-01330-5.
During the early stages of the COVID-19 pandemic, stringent measures were implemented in most countries to limit social contact between residents of long-term care facilities (LTCF) and visitors. The objective of this scoping review was to identify and map evidence of direct and indirect consequences of contact restrictions, guided by three conceptual perspectives: (1) stress and learned helplessness (i.e., failure to use coping behaviors even when they are available and actionalble); (2) social contact loss; and (3) ‘total institution’ (i.e., a facility operates following a fixed plan due to spelled-out rules and norms, controlled by institutional representatives). We used the framework for conducting a scoping review by Arksey and O'Malley; included were peer-reviewed manuscripts reporting on the outcomes of contact restrictions from the beginning of the pandemic until the end of 2020. After removing duplicates, 6,656 records were screened and 62 manuscripts included. Results pertaining to the stress and learned helplessness perspective primarily focused on depressive symptoms, showing substantial increases compared to the pre-pandemic period. Studies examining cognitive and functional decline, as well as non-COVID-19 related mortality, were limited in number and presented mixed findings. The majority of study outcomes related to the social contact loss perspective focused on loneliness, but the study designs did not adequately allow for comparisons with the pre-pandemic status. The evidence concerning outcomes related to the 'total Institution' perspective was inconclusive. Although detrimental effects of social isolation in the long-term care context found support particularly in the negative affect domain, other outcome areas did not allow for definitive conclusions due to considerable variations in findings and, in some cases, insufficient statistical power.
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