Living Disconnected: Building a Grounded Theory View of Bereavement for Adults with Intellectual Disabilities

Clute, Mary Ann

doi:10.1177/0030222815575017

Cited by 4 publications

(3 citation statements)

References 14 publications

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“…They have difficulties to deal with their losses in isolation and confusion. (4) Subtle variations in the experience of loss and grief appear to be driven by culture and beliefs about disability and protection for those with ID. (4) Circumstances that can predict complicated grief include a strong dependence on the close friend or family member before the death, the suddenness of the death, a lack of social support, and others.…”

Section: Psychogenic Polydipsia As a Manifestation Of Complicated Gri...mentioning

confidence: 99%

“…(4) Subtle variations in the experience of loss and grief appear to be driven by culture and beliefs about disability and protection for those with ID. (4) Circumstances that can predict complicated grief include a strong dependence on the close friend or family member before the death, the suddenness of the death, a lack of social support, and others. Concomitant factors like the loss of health, financial security, forced relocation, can complicate grief.…”

Section: Psychogenic Polydipsia As a Manifestation Of Complicated Gri...mentioning

confidence: 99%

“…As a whole, situational factors outweigh psychological factors in predicting prolonged, intensified grief in individuals with ID. (4)…”

Section: Psychogenic Polydipsia As a Manifestation Of Complicated Gri...mentioning

confidence: 99%

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Psychogenic Polydipsia as a Manifestation of Complicated Grief in a Patient With Intellectual Disability

Pereira¹,

Figueiredo²,

Fornelos³

2019

Preprint

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Section: Psychogenic Polydipsia As a Manifestation Of Complicated Gri...mentioning

confidence: 99%

Section: Psychogenic Polydipsia As a Manifestation Of Complicated Gri...mentioning

confidence: 99%

See 1 more Smart Citation

Psychogenic Polydipsia as a Manifestation of Complicated Grief in a Patient With Intellectual Disability

Pereira¹,

Figueiredo²,

Fornelos³

2019

Preprint

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Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers’ Experiences

Couvrette,

Milot,

Fortin

2024

Journal of Social Work in End-of-Life & Palliative Care

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A narrative review of cognitive behavioural therapy in supporting bereaved adults with intellectual disability

Lonergan

2020

Brit J Learn Disabil

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Accessible summary People with an intellectual disability may have feelings that are hard to manage when a loved one dies. People with an intellectual disability may not receive access to enough support to help them understand and manage difficult feelings when someone dies. Cognitive behavioural therapy is a therapy that can be adapted and may be useful to support people with intellectual disability when someone they love has died. AbstractBackgroundAs the life expectancy of adults with intellectual disability has increased, experience of familial bereavement is becoming more frequent. However, this group may not receive adequate information and support to enable them to understand and cope with the experience of loss.MethodThis narrative review examined the impact of bereavement, the ability to engage in cognitive behavioural therapy (CBT) and learn skills to understand and cope with bereavement, in an intellectual disability context.ResultsFindings indicated that the loss of someone close can render adults with intellectual disability at increased risk for additional mental health difficulties. Among variables associated with better death comprehension are higher levels of cognitive ability, adaptive behaviour skills and receptive language ability. However, research indicates that understanding the concept of death is not a requirement for experiencing the emotions associated with grieving. Findings indicated that the successful use of CBT for bereavement in people with intellectual disability requires adaptation, such as the use of visuals and preparatory training in relation to the CBT model.ConclusionsWith adaptation, CBT may be beneficial in supporting adults with intellectual disability to understand and cope with bereavement. The lack of controlled studies available for review exploring the impact of CBT on bereavement and the lack of standardised measures available in a population intellectual disability limit this review's findings. Controlled studies examining the effectiveness of adapted CBT for bereavement in a population with intellectual disability are recommended.

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Living Disconnected: Building a Grounded Theory View of Bereavement for Adults with Intellectual Disabilities

Cited by 4 publications

References 14 publications

Psychogenic Polydipsia as a Manifestation of Complicated Grief in a Patient With Intellectual Disability

Psychogenic Polydipsia as a Manifestation of Complicated Grief in a Patient With Intellectual Disability

Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers’ Experiences

A narrative review of cognitive behavioural therapy in supporting bereaved adults with intellectual disability

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