Living an Everyday Life Through a Child’s Cancer Trajectory

Sundler, Annelie Johansson; Hallström, Inger; Hammarlund, Kina; Björk, Maria

doi:10.1177/1043454213513837

Cited by 15 publications

(3 citation statements)

References 24 publications

(64 reference statements)

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“…Increased school absenteeism after completion of treatment has been described for survivors as well as siblings (French et al, 2013 ). The families have been described as still vulnerable and in need of support for up to 7 years after the diagnosis (Sundler et al, 2013 ). Adult siblings of childhood cancer survivors have reported an increased incidence of risky alcohol consumption, associated with symptoms of depression, anxiety, and psychiatric distress (Lown et al, 2013 ).…”

Section: Introductionmentioning

confidence: 99%

Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective

Løkkeberg

Sollesnes

Hestvik

et al. 2020

International Journal of Qualitative Studies on Health and Well

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Purpose: To explore the experiences of adolescents with a sibling suffering from cancer from a salutogenic health promotion perspective. Methods: Seven female siblings aged 13-17 years were interviewed. The interviews were transcribed and subjected to qualitative content analysis. Results: The analysis findings adhered largely to one main theme: new challenges and needs in everyday life, consisting of the two domains cancer into life and helpful resources to cope. Categories related to the cancer into life domain were new routines and concerns, fear, loneliness, and growing up. Helpful resources to cope were categorized as support from others, understanding, faith and hope, and normal activities. Conclusion: Prominent in the siblings' descriptions were the challenging changes in everyday life including difficult feelings such as loneliness, and a need for understanding. Social support appeared as a crucial salutogenic coping resource to achieve understanding, faith and hope, and identity-crucial spheres to achieve meaning in life. This study has demonstrated the significance of salutogenesis in a new setting, and the findings could be of relevance to teachers and health professionals consulting with the siblings of children with cancer. Further research should be conducted to pinpoint concrete health-promoting measures that might benefit this group.

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Section: Introductionmentioning

confidence: 99%

Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective

Løkkeberg

Sollesnes

Hestvik

et al. 2020

International Journal of Qualitative Studies on Health and Well

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“…Parents whose children suffer from cancer describe the importance of support to ease their burden at the beginning of the diagnosis, during treatment, end of treatment, even after completing treatment. Adequate support can help families cope with various crises caused by the disease and its treatment (Björk et al, 2011;Björk et al, 2009;Earle et al, 2007;Sundler et al, 2013). Family, friends and significant others are the sources of support perceived by parents who have children with cancer (Altay et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Social Support of Parents of Children With Leukemia

Nursyamsiyah¹

2019

Belitung Nurs J

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Background: Leukemia in children is not only a stressor for children but also all family members, especially for parents. Caring for children with leukemia relies on the importance of social support to overcome various crises caused by the disease and its treatment. However, parents' perceptions of social support can be affected by several factors. Thus, assessment of factors that impact social support of parents of children with leukemia is needed.Objective: This study aimed to analyze the social support perceived by parents of children with leukemia and examine the relationship between perceived social support and characteristics of parents and children.Methods: A quantitative study with cross-sectional approach in 104 parents of children with leukemia aged 3-18 years. Social support was measured using Multidimensional Scale of Perceived Social Support (MSPSS) questionnaire. Data were analyzed using univariate analysis, Mann-Whitney U, Kruskal-Wallis, and Spearman Test.Results: Total scale score of the Multidimensional Scale of Perceived Social Support (MSPSS) of parents of children with leukemia was 5.74 ± 0.48. The highest subscale score was on family support (6.06 ± 0.46). There were statistically significant differences in MSPSS total scores based on parental education and family income (p <0.05). Conclusion: Nurses play an important role to provide support for parents who have children with leukemia, especially in risky families. Support that nurses can provide among parents of children with leukemia is by giving information about disease and care, empowering the family, and finding support outside the family, such as the source of financial support related to treatment, utilization of cancer foundations, and supporting group and others.

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“…30 Some healthy siblings in other studies have also demonstrated avoiding discussing the palliative conditions with their peers or at school due to the fear of not being understood or due to compartmentalisation of school and home. 54,61,62 This is related to the other negative psychological impacts experienced by the healthy siblings as highlighted by the studies included in this review 20,[30][31][32][33][34][36][37][38] which was due to uncertainty about the illness trajectory and in feeling isolated in their illness experience. This was congruent with previous studies on siblings of cancer patients.…”

Section: Discussionmentioning

confidence: 99%

Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis

Rajendran,

Jarasiunaite-Fedosejeva,

İsbir

et al. 2023

Palliat Med

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Background: Siblings of children requiring palliative care are often forgotten and overlooked, as the focus tends to be on the ill child and their parents. Limited knowledge of non-bereaved siblings’ perspectives makes it challenging to provide appropriate support for them. A review of existing literature is thus needed to better understand the experiences of these siblings and to identify research gaps that may require further examination. Aim: To consolidate the available qualitative evidence on the perspectives of non-bereaved healthy siblings regarding paediatric palliative care. Design: A qualitative systematic review using a meta-synthesis approach was conducted. Data sources: Six electronic databases (PubMed, CINAHL, PsycINFO, Embase, Scopus and ProQuest Dissertations and Theses Global) were searched from each database’s inception date until October 2022. The search included qualitative and mixed-method studies that reported the perceptions and associations of siblings of patients receiving paediatric palliative care. Data were synthesised using thematic analysis. Results: Eleven studies were included. The overarching theme of the review would be ‘A walking shadow: Living in the darkness shaped by the dying sibling’, and three key themes and nine subthemes were identified from the included articles: (1) Changing family dynamics; (2) Impact on school and socialisation and (3) Psychological impact and coping. Conclusion: Siblings demonstrated negative psychological impacts and were affected by changing family structure and relationships. However, socialisation with society, and varied coping skills such as cognitive coping and using distraction techniques, were significant for siblings to go through this journey and even led to some positive outcomes for them.

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Living an Everyday Life Through a Child’s Cancer Trajectory

Cited by 15 publications

References 24 publications

Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective

Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective

Social Support of Parents of Children With Leukemia

Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis

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