Livelihood support for caregivers of children with developmental disabilities: findings from a scoping review and stakeholder survey

Loucaides, Eva M; Zuurmond, Maria; Nemerimana, Mathieu; Kirk, Catherine M.; Lassman, Rachel; Ndayisaba, Albert; Smythe, Tracey; Baganizi, Erick; Tann, Cally J

doi:10.1080/09638288.2022.2160018

Cited by 2 publications

(1 citation statement)

References 35 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This statement aligns with the concept of integrating the physical rehabilitation of children with the cognitive and economic empowerment of families to attain long-term sustainability. 50 The intervention arm had the lowest baseline values for monthly family income, which may have diluted the impact on the improvement of monthly family income. Furthermore, not all livelihood ventures can promise a substantial profit within a short period of time.…”

Section: Enabling and Partnershipmentioning

confidence: 99%

Effect of family-centered care interventions on well-being of caregivers of children with cerebral palsy: a systematic review

Poojari,

Umakanth,

Maiya

et al. 2024

F1000Res

View full text Add to dashboard Cite

Background Caring for a child with long-term functional limitations can have a negative impact on the physical and psychological well-being of the caregiver. Family-centered care (FCC) interventions have the potential to empower caregivers and contribute to their well-being. This systematic review aimed to synthesize existing evidence on the effectiveness of FCC interventions in improving the well-being of caregivers of children with cerebral palsy (CP), and identify the key components of such interventions that are most commonly practiced and deemed effective. Methods This review systematically searched seven databases for randomized controlled trials that evaluated the effectiveness of any FCC intervention on the well-being of caregivers of children with or at risk of CP. We used the Cochrane RoB 2.0 tool to assess risk of bias and Critical Appraisal Skills Programme (CASP) checklist for critical appraisal. Due to high heterogeneity of studies, narrative synthesis was used to summarize the data. Results The review consists of 11 studies which were categorized into five sections based on the components of FCC intervention provided in each individual study: 1. Information provision, and Enabling and partnership (n= 5); 2. Information provision, and Respectful and supportive care (n= 1); 3. Enabling and partnership (n= 2); 4. Enabling and partnership, and Respectful and supportive care (n= 2); 5. Information provision, Enabling and partnership and Respectful and supportive care (n= 1). Risk of bias was low in four studies, unclear in two studies, and high in five studies. Conclusion FCC interventions were found to be effective in improving caregivers’ satisfaction with attainment of child and caregiver goals. Evidence from multiple studies does not strongly support the effectiveness of FCC interventions on caregiver’s mental health, parenting and personal outcomes. Limited evidence precludes a conclusion on the effectiveness of the components of FCC on well-being of caregivers of children with CP.

show abstract

Section: Enabling and Partnershipmentioning

confidence: 99%