Lived Experiences of a Sustained Mental Health Recovery Process Without Ongoing Medication Use

Lee, Mo Yee; Eads, Ray; Yates, Nancy; Liu, Chang

doi:10.1007/s10597-020-00680-x

Cited by 13 publications

(19 citation statements)

References 33 publications

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“…A positive sense of self was critical for recovery according to de Jager et al (2016). According to Lee et al (2020) other internal recovery processes included changes in how respondents viewed themselves as integrated with their mental health concerns. For example, some respondents recovered their self and perceived themselves to be a whole person, not a diagnosis.…”

Section: Thematic Classi Cationmentioning

confidence: 99%

“…For example, some respondents recovered their self and perceived themselves to be a whole person, not a diagnosis. Caring for self was important for the respondents in the work of Lee et al (2020), and exercise was seen as being extremely helpful. A sense of estrangement from the self was common for most respondents in their study.…”

Section: Thematic Classi Cationmentioning

confidence: 99%

“…The characteristics of this illness are disturbances of perception, thought, emotion and behaviour (Ko et al 2013). Mental health providers are increasingly tasked with providing recovery-oriented treatment (Lee et al 2020). Historically, education and training of mental health providers has tended to focus more on schizophrenia being a neurobiological, permanent condition where the person with this disability has little hope of returning to full functioning (Feiner and Frese 2009).…”

Section: Introductionmentioning

confidence: 99%

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Exploring lived experience of recovery processes in those with schizophrenia: A systematic review with thematic synthesis of qualitative evidence

Murray

Menadue

2022

Preprint

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The purpose of the study was to conduct a systematic review of literature which explores lived experiences of the manifestation, appearance of meaning, and interpretation of the recovery process in schizophrenia. Recovery as a lived experience in schizophrenia is an idiosyncratic and debated process that emerges from the perspectives of people who experience schizophrenia. Recovery literature is gained from qualitative accounts and synthesising these accounts provides an overview of the evidence base for recovery. A search of Medline, Emcare, Cinahl and Scopus databases discovered 11 studies that were published between 2016–2020 that met the scope of the review. Studies were included if they used qualitative methodology to explore how individuals with schizophrenia experience the process of recovery. Studies were subjected to quality assessment using the Critical Appraisal Skills Program (CASP) Qualitative Research Checklist. Several themes were identified during the qualitative analysis. These themes were linked by a common thread. This “meta-theme” is “connection.” Connection with individual sense of self and connecting with the social world. Connecting with self enhance the capacity of those with schizophrenia to be able to connect interpersonally and intersubjectively with the social world, which is seen to lead to recovery. The reviewed literature supported the theoretical approach that the person with schizophrenia needed to regain their lost self before taking further steps in the recovery process. Further research of schizophrenia as a self – disorder being phenomenologically designed would further highlight the necessity of this for the recovery process. Such research would illuminate recovery being about who you are and not about how sane or normal you are.

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Section: Thematic Classi Cationmentioning

confidence: 99%

Section: Thematic Classi Cationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Exploring lived experience of recovery processes in those with schizophrenia: A systematic review with thematic synthesis of qualitative evidence

Murray

Menadue

2022

Preprint

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“…Nxumalo Ngubane et al (40) presented being accepted and able to contribute to their family and community as an important part of recovery for Swazi women diagnosed with schizophrenia. The socially constructed nature of recovery was emphasized repeatedly, with social discrimination and experiences of stigma being perceived as the opposite of recovery in many of the studies (36,40,47,(49)(50)(51)(52). The definition and achievement of recovery was thought to be co-constructed in society and developed by engaging in honest and genuine mutuality (53).…”

Section: Theme 2: Social Recoverymentioning

confidence: 99%

Recovery From Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives

et al. 2021

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Introduction: The recovery approach aims to have users' perspectives at the heart of service development and research; it is a holistic perspective that considers social needs, personal growth and inclusion. In the last decade recovery-oriented research and practice has increased greatly, however, a comprehensive model of recovery considering exclusively the perspectives of people with lived experience has not been devised.Aims: This review aimed to develop a framework and contextualize service users' and informal caregivers' understanding of recovery from severe mental health problems.Methods: We systematically searched 6 databases including key terms related to knowledge, experience and narratives AND mental health AND personal recovery. The search was supplemented with reference sourcing through gray literature, reference tracking and expert consultation. Data analysis consisted of a qualitative meta-synthesis using constant comparative methods.Results: Sixty-two studies were analyzed. A pattern emerged regarding the recovery paradigms that the studies used to frame their findings. The resulting recovery framework included the domains Social recovery; Prosperity (Legal, political, and economic recovery); Individual Recovery; and Clinical Recovery Experience (SPICE). Service users' definitions of recovery tended to prioritize social aspects, particularly being accepted and connecting with others, while caregivers focused instead on clinical definitions of recovery such as symptom remission. Both groups emphasized individual aspects such as becoming self-sufficient and achieving personal goals, which was strongly linked with having economic means for independence.Conclusions: The recovery model provided by this review offers a template for further research in the field and a guide for policy and practice. Predominant definitions of recovery currently reflect understandings of mental health which focus on an individual perspective, while this review found an important emphasis on socio-political aspects. At the same time, only a small number of studies took place in low-income countries, focused on minoritized populations, or included caregivers' perspectives. These are important gaps in the literature that require further attention.Systematic Review Registration: The review protocol was registered on PROSPERO (CRD42017076450); https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=76450.

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“…Nxumalo Ngubane, McAndrew, & Collier, (2019) presented being accepted and able to contribute to their family and community as an important part of recovery for Swazi women diagnosed with schizophrenia. The socially constructed nature of recovery was emphasised repeatedly, with social discrimination and experiences of stigma being perceived as the opposite of recovery in many of the studies (Cárcamo Guzmán et al, 2019; Gopal et al, 2020; Lee et al, 2020; Nowak et al, 2017; Nxumalo Ngubane et al, 2019; Shepherd et al, 2017; Tofthagen et al, 2017). The definition and achievement of recovery was thought to be co-constructed in society and developed by engaging in honest and genuine mutuality (Kverme et al, 2019).…”

Section: Recovery Themesmentioning

confidence: 99%

Recovery from severe mental health problems: A systematic review of service user and informal caregiver perspectives

Juan

Gronholm

Heslin

et al. 2021

Preprint

View full text Add to dashboard Cite

Introduction: The recovery approach aims to have users′ perspectives at the heart of service development and research; it is a holistic perspective that considers social needs, personal growth and inclusion. In the last decade recovery-oriented research and practice has increased greatly, however, a comprehensive model of recovery considering exclusively the perspectives of people with lived experience has not been devised. Aims: This review aimed to develop a framework and contextualise service users′ and informal caregivers′ understanding of recovery from severe mental health problems. Methods: A systematic search of 6 databases including key terms related to knowledge, experience and narratives AND mental health AND personal recovery. The search was supplemented with reference sourcing through grey literature, reference tracking and expert consultation. Data analysis consisted of a qualitative meta-synthesis using constant comparative methods. Results: Sixty-two studies were analysed. A pattern emerged regarding the recovery paradigms that the studies used to frame their findings. Recovery domains included Legal, political and economic recovery; Social recovery; Individual recovery; and Clinical recovery experience. Service users′ definitions of recovery tended to prioritise social aspects, particularly being accepted and connecting with others, while caregivers focused instead on clinical definitions of recovery such as symptom remission. Both groups emphasised individual aspects such as becoming self-sufficient and achieving personal goals, which was strongly linked with having economic means for independence. Conclusions: The recovery model provided by this review offers a template for further research in the field and a guide for policy and practice. Predominant definitions of recovery currently reflect understandings of mental health which focus on an individual perspective, while this review found an important emphasis on socio-political aspects. At the same time, only a small number of studies took place in low-income countries, focused on minoritised populations, or included caregivers′ perspectives. These are important gaps in the literature that require further attention.

show abstract

Lived Experiences of a Sustained Mental Health Recovery Process Without Ongoing Medication Use

Cited by 13 publications

References 33 publications

Exploring lived experience of recovery processes in those with schizophrenia: A systematic review with thematic synthesis of qualitative evidence

Exploring lived experience of recovery processes in those with schizophrenia: A systematic review with thematic synthesis of qualitative evidence

Recovery From Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives

Recovery from severe mental health problems: A systematic review of service user and informal caregiver perspectives

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