Lived experience of State-sponsored intra-national overseas therapeutic mobility for stem cell transplantation

Franchina, Loreley; Sarradon-Eck, Aline; Arnault, Yolande; Corroller, Anne-Gaëlle Le; Zunic, Patricia; Marino, Patricia

doi:10.1016/j.socscimed.2022.114957

Cited by 3 publications

(4 citation statements)

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“…Apprehension of social isolation and geographical distance are other limiting factors, which were specific to our sample of people inhabiting an island located a long way from the transplant center. These factors have rarely been addressed in the literature, except for a Canadian 12 and an Australian 13 study, although they are experienced like a two‐fold ordeal by many overseas patients 17 . Geographical distance can also be expected to be a limiting factor in other situations, such as that of patients who need CART‐cell therapy or have to undergo a transplant for non‐malignant diseases such as sickle cell disease, or the problem of access to pediatric cancer care 31 for children living far from a treatment center.…”

Section: Discussionmentioning

confidence: 99%

“…These factors have rarely been addressed in the literature, except for a Canadian 12 and an Australian 13 study, although they are experienced like a two‐fold ordeal by many overseas patients. 17 Geographical distance can also be expected to be a limiting factor in other situations, such as that of patients who need CART‐cell therapy or have to undergo a transplant for non‐malignant diseases such as sickle cell disease, or the problem of access to pediatric cancer care 31 for children living far from a treatment center. Although consenting to allo‐HSCT was not actually enforced, patients from overseas territories and other very isolated regions felt that accepting the transplant treatment proposed was tantamount to submitting to enforced therapeutic mobility.…”

Section: Discussionmentioning

confidence: 99%

“…Although consenting to allo‐HSCT was not actually enforced, patients from overseas territories and other very isolated regions felt that accepting the transplant treatment proposed was tantamount to submitting to enforced therapeutic mobility. 17 …”

Section: Discussionmentioning

confidence: 99%

“…At the time of our study, the only transplant centers available were located in mainland France. In a previous article, 17 we described how overseas therapeutic mobility affects patients' and caregivers' experience of the transplantation. Here we focused on patients' decision to undergo allo‐HSCT and the main psychosocial, cultural, and geographical factors involved in this process.…”

Section: Introductionmentioning

confidence: 99%

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Consenting rather than choosing. A qualitative study on overseas patients' decision to undergo hematopoietic stem cell transplantation

Sarradon‐Eck,

Franchina,

Arnault

et al. 2024

Cancer Medicine

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ObjectiveReasons for patients' acceptance of the allogeneic hematopoietic stem cell transplantation (allo‐HSCT) proposed and how their decision may be affected by the long distances involved have not been sufficiently investigated so far. We therefore conducted a qualitative study to identify the factors involved in overseas patients' decision to accept allo‐HSCT.MethodsIn‐depth semi‐directive interviews were conducted with overseas allo‐grafted patients (n = 22), as well as one non‐consenting patient and their caregivers (n = 24). Interviews were analyzed taking an inductive thematic approach.ResultsRespondents stated that their decision to undergo the transplantation was constrained by their feeling of being in a therapeutic impasse, the need for a survival strategy, the need to survive for their family's sake, family and doctors' pressures, and the feeling of being managed. The following factors favoring patients' acceptance were the medical information received, their faith, having a family donor, peer testimonies, and positive representations of the transplantation. Factors against patients' acceptance were geographical distance from home to the transplant center, apprehension of protective isolation, fear of dying, and representations of the graft.ConclusionsThese factors, such as patient's personal values and representations, need to be weighed up in order to adapt the information exchanged accordingly. Efforts are required to relieve patients' social isolation and improve the means of providing family support.

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