Lived Experience of Parastomal Bulging: A Mixed Methods Study

Abstract

Aim:This United Kingdom study aimed to explore people’s experiences of living with, and self-managing parastomal bulging.Methods:Seventeen people were interviewed and 61 people completed an online survey.Results:Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.Conclusion:People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.