Lived Experience in Social Work: An Underutilised Expertise

Mackay, Tanya

doi:10.1093/bjsw/bcad028

Cited by 3 publications

(1 citation statement)

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“…This was a qualitative study using peer methods, 31 a participatory approach where people affected by the issues being researched directly and conduct the study 32 . It is a useful method for working closely with communities and individuals who can feel exploited and marginalised by research processes that lack cultural humility 33 .…”

Section: Methodsmentioning

confidence: 99%

Public perspectives on inequality and mental health: A peer research study

Pinfold,

Thompson,

Lewington

et al. 2023

Health Expectations

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IntroductionAssociations between structural inequalities and health are well established. However, there is limited work examining this link in relation to mental health, or that centres public perspectives. This study explores people's experience and sense‐making of inequality in their daily lives, with particular consideration of impacts on mental health.MethodsWe conducted a peer research study. Participants had to live in one of two London Boroughs and have an interest in inequalities and mental health. Using social media, newsletters, local organisations and our peer researchers' contacts, we recruited 30 participants who took photos representing their experience of inequality and discussed them during semi‐structured interviews. Data were analysed using reflexive thematic analysis.ResultsThree themes were identified in this study: (1) inequalities are unjust, multilayered and intertwined with mental health. Accounts demonstrated a deep understanding of inequalities and their link to mental health outcomes, describing inequalities as ‘suffering’ and ‘not good for anyone’. Financial, housing, immigration and healthcare problems exacerbated poor mental health, with racism, gender‐based violence and job loss also contributing factors for both poor mental health and experiences of inequality; (2) inequalities exclude and have far‐reaching mental health consequences, impacting personal sense of belonging and perceived societal value and (3) moving forwards—addressing long‐standing inequality and poor public mental health necessitated coping and resilience strategies that are often unacknowledged and undervalued by support systems.ConclusionLived experience expertise was central in this study, creating an innovative methodological approach. To improve public mental health, we must address the everyday, painful structural inequalities experienced by many as commonplace and unfair. New policies and strategies must be found that involve communities, redistributing resources and power, building on a collective knowledge base, to coproduce actions combatting inequalities and improving population mental health.Patient or Public ContributionThis study was peer‐led, designed and carried out by researchers who had experiences of poor mental health. Six authors of the paper worked as peer researchers on this study.

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Section: Methodsmentioning

confidence: 99%