Listening to the Voices of Lesbians Diagnosed with Cancer

Barnoff, Lisa; Sinding, Christina; Grassau, Pamela

doi:10.1300/j041v18n01_03

Cited by 19 publications

(11 citation statements)

References 23 publications

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“…The articles uncovered as part of this review reveal that sexual minority individuals sometimes experience discriminatory attitudes from oncology health care workers [10,12,13,15,21,22]. The levels of discrimination experiences throughout the studies reviewed varies, but further studies conducted in the UK demonstrate that individuals who feel discriminated against experience social stressors, which in turn can increase their risk of experiencing mental health problems [9].…”

Section: Experiences Of Carementioning

confidence: 99%

“…A Canadian study found in this review recruited a cohort of twenty-six Sexual Minority Women (SMW) from Ontario to discuss their experiences of care after treatment for breast or gynaecological cancer [10]. The study aimed to interview participants face-to-face, but nine interviews were carried out over the phone indicating inconsistencies and possible limitations.…”

Section: Experiences Of Carementioning

confidence: 99%

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Sexual minority experiences of cancer care: A systematic review

Hill

Holborn

2015

Journal of Cancer Policy

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a b s t r a c tThere is a lack of published evidence from within the UK examining the needs of LGB cancer patients. A full systematic review of the worldwide literature was carried out with the aim to ascertain the experiences of sexual minority cancer patients and identify specific needs required.Key databases were searched with a variety of terms relating to the sexual minority cancer experience. Suitable literature was reviewed and references within all articles were search to ensure as inclusive a review as possible. Articles were subject to critical appraisal and scoring using The Support Unit for Research Evidence (SURE 2013) critical appraisal tools to assess eligibility for inclusion within the review. Twenty-five articles were selected for inclusion and were analysed. The papers were categorised into the emerging themes from the literature: Experiences of care (n = 6), Coping and Wellbeing (n = 6), Emotional Support (n = 4), Body Image (n = 3), and Sexual Function (n = 6). The data extraction revealed contrasting views and experiences of LGB individuals' experience of cancer care. Lesbian and gay individuals have different perspectives of cancer care and needs from heterosexuals. Discriminatory attitudes were found to be present in many studies as well as inequalities and gaps within care and support.There is evidence that supports the development of sexual minority specific cancer support groups. Further research of sexual minorities affected by cancer in the UK should be carried out to increase the evidence base and better identify the needs in this cultural group.

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Section: Experiences Of Carementioning

confidence: 99%

Section: Experiences Of Carementioning

confidence: 99%

Sexual minority experiences of cancer care: A systematic review

Hill

Holborn

2015

Journal of Cancer Policy

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“…5 Research conducted among sexual minority cancer survivors illustrates a recurring pattern of negative clinical experiences, indicative of healthcare providers' discriminatory attitudes and assumptions of heterosexuality. [6][7][8] Stigmatizing encounters or fears of expected bias and mistreatment have resulted in a certain unwillingness to disclose sexual orientation in healthcare settings. [9][10][11][12] Non-disclosure for LGB adults may, consequently, have significant health and mental health risks.…”

Section: Disclosure Of Sexual Orientation For Lgb Ayas In Healthcarementioning

confidence: 99%

Addressing Fertility Preservation for Lesbian, Gay, and Bisexual Adolescents and Young Adults with Cancer

Fantus

Gupta

Lorenzo

et al. 2015

Journal of Adolescent and Young Adult Oncology

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A dolescents and young adults (AYAs) with cancer are informed of their risk of sub-fertility and options for fertility preservation (FP) with the intention that, if possible, they are able to consider having biologically related children after treatment. Previous research indicates that assumptions of heterosexuality are a prevalent experience in healthcare among lesbian, gay, bisexual, and transgender (LGBT) populations. 1,2 Accordingly, pervasive heterosexual bias among providers may frame conversations on reproduction with AYAs with cancer, implying that fertility is only possible within a heteronormative cisgender (a person who identifies with their sex assigned at birth) opposite-sex relationship. 3 The purpose of this paper is to address the subpopulation of lesbian, gay, and bisexual (LGB) AYAs with cancer. The authors have intentionally chosen to focus on cisgender LGBs. Access to healthcare can be more stigmatizing and discriminatory for transgender populations than it is for cisgender sexual minorities 4 ; including transgender AYAs may indirectly promote comparisons to a cisgender norm. Thus, the unique experiences of the transgender community should be recognized independently. This paper will address issues of disclosure among LGB AYAs in healthcare and consider how providers can deliver informative FP options that are inclusive and respectful of LGB AYAs with cancer. The authors will draw on implications for healthcare practice and policy, and recommend strategies to enhance the applicability of educational materials and promote open and comprehensive practice.

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“…Lesbians have suggested that breast cancer information and care should consider lesbians' needs, to recognise them and their partners, and to consider the intersectionality of their gender, sexuality and cancer (e.g. Barnoff et al 2006). In Canada, lesbians have reported choosing not to join support groups for fear of experiencing heterosexism (Sinding et al, 2004), and some have found that support groups do not welcome female partners (Barnoff et al, 2006).…”

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confidence: 99%

Representations of women on Australian breast cancer websites: Cultural ‘inclusivity’ and marginalisation

Gibson

Lee

Crabb

2015

Journal of Sociology

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Despite 'cultural competence' rhetoric within health care, women's varied breast cancer experiences are often overlooked within the 'pink ribbon culture' of breast cancer, which focuses on white, heterosexual, middle-class women's accounts. We present a multimodal critical discourse analysis of four Australian breast cancer organisations' websites, which provide information and support to women. We examine how they represent the needs and experiences of women from minority groups, specifically lesbians, women from 'culturally and linguistically diverse' backgrounds, and women from Indigenous backgrounds. Through the two discursive themes: 'boys do cry' and 'being breast aware', we illustrate how women from these groups are sometimes included and at times marginalised on websites. We also identify a discourse of 'diversity', which seemingly supports 'cultural competence' but actually obscures the assumptions that underpin cancer care. We suggest that women who are not white, heterosexual or middle class could find available resources inappropriate, or experience barriers to access.

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Listening to the Voices of Lesbians Diagnosed with Cancer

Cited by 19 publications

References 23 publications

Sexual minority experiences of cancer care: A systematic review

Sexual minority experiences of cancer care: A systematic review

Addressing Fertility Preservation for Lesbian, Gay, and Bisexual Adolescents and Young Adults with Cancer

Representations of women on Australian breast cancer websites: Cultural ‘inclusivity’ and marginalisation

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