Linking parents’ self-stigma to the adjustment of children with disabilities.

Li, Xiaomin; Lam, Chun Bun Ian; Chung, Kevin Kien Hoa; Leung, Cynthia

doi:10.1037/ort0000386

Cited by 18 publications

(14 citation statements)

References 74 publications

(139 reference statements)

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“…Kabiyea and Manor-Binyamini (2019) found a negative relationship between stigma and self-efficacy and a positive relationship between stigma and anxiety in parents of adolescents with developmental disabilities. The study of Li et al (2019) is the only one we have found that focuses on the self-stigma of caregivers of children with developmental disabilities. They found that parents’ self-stigma was linked to fewer prosocial behaviors and more externalizing and internalizing behaviors among children, but such links were partially alleviated by parenting self-efficacy.…”

Section: Perception Of Discrimination and Internalization Of Stigmamentioning

confidence: 99%

Perceived discrimination and emotional distress among family caregivers of children with physical disabilities: The mediational role of affiliate stigma and self-efficacy.

Recio¹,

Molero²,

Silván-Ferrero³

et al. 2021

American Journal of Orthopsychiatry

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The main objective of this research is to examine the consequences of perceived discrimination in family caregivers of people with physical disabilities. Through path analysis, we test the association between caregivers' perceived discrimination and their anxiety and depression and the mediating role that affiliate stigma and self-efficacy may play. We proposed a model that has not been tested previously in the literature on caregivers of people with physical disabilities. The sample includes 186 Spanish fathers (35%) or mothers (65%) raising children with physical disabilities. Descriptive statistics and Pearson's correlation coefficients were calculated and structural equation modeling was used to examine the mediating effect. Results show that caregivers' perceived discrimination is positively associated with their affiliate or internalized stigma that in turn is harmful to their anxiety and depression. However, caregivers' self-efficacy plays a mediating role in the relation between affiliate stigma and caregivers' anxiety and depression. These results may be useful for designing interventions to improve the psychological well-being of the parents of children with physical disabilities. Public Policy Relevance StatementChildren with physical disabilities and their family caregivers are discriminated in different aspects of their lives. Often caregivers assume or internalize the negatives stereotypes of their children's disability. This internalization receives the name of affiliate stigma and has very negative consequences for caregivers' emotional well-being. This study suggests that caregiver's self-efficacy contributes to reduce the negative effects of affiliate stigma. To maintain caregivers' emotional well-being it would be useful to design interventions aimed both, to prevent the arousing of affiliate stigma and to increase caregivers' self-esteem. aaa S tigmatized individuals are those who possess (or are believed to possess) some attribute or characteristic that conveys a social identity devaluated in some specific contexts (Crocker et al., 1998, p. 505). That is what happens when someone is tagged with the label of "disabled." Once this label is assigned, a series of phenomena, such as stereotyping, separation, status loss, and discrimination take place (Green et al., 2005;Link & Phelan, 2001). People with a physical disability and their family caregivers are discriminated against in different aspects of their lives (e.g., Krahé & Altwasser, 2006;Park et al., 2003). Discrimination may take the form of feelings of discomfort and anxiety during the interaction (Hebl et al., 2000) or it This document is copyrighted by the American Psychological Association or one of its allied publishers.This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

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Section: Perception Of Discrimination and Internalization Of Stigmamentioning

confidence: 99%

Perceived discrimination and emotional distress among family caregivers of children with physical disabilities: The mediational role of affiliate stigma and self-efficacy.

Recio¹,

Molero²,

Silván-Ferrero³

et al. 2021

American Journal of Orthopsychiatry

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“…In other words, children with SDD with higher importance (High PageRank) do not receive significant more caregiving than children with SDD with lower importance (Low PageRank). Our interpretation involves the caregivers' self-stigma that children with more severe DD are harder to care for than children with MND [68]. This self-stigma might then result in a self-fulfilling prophecy that children with SDD face more problems, which in turn exacerbates negative child outcomes.…”

Section: Discussionmentioning

confidence: 99%

“…Some examples of this self-stigma can manifest through caregivers' attitudes towards children with SDD. It has been found that parents and caregivers tend to have reservations towards including children with SDD in education programs [69], with parents tending to view children with disabilities as having lower socioemotional and behavioral skills [68,70]. While, in general, the importance of the child in the family affects the level of caregiving the child receives [62] as explained above, this self-stigma [68] might reduce or override this effect.…”

Section: Discussionmentioning

confidence: 99%

“…It has been found that parents and caregivers tend to have reservations towards including children with SDD in education programs [69], with parents tending to view children with disabilities as having lower socioemotional and behavioral skills [68,70]. While, in general, the importance of the child in the family affects the level of caregiving the child receives [62] as explained above, this self-stigma [68] might reduce or override this effect. However, additional studies are required to clarify the nature of this relation between child DD and importance in the family network: for instance, considering whether having more children serves as protective factor, and the role of siblings in the caregiving practices.…”

Section: Discussionmentioning

confidence: 99%

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The Role of the Family Network When Raising a Child with a Disability in Low- and Middle-Income Countries

Bizzego

Lim

Dimitriou³

et al. 2021

Disabilities

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Family plays a role in supporting child development, by facilitating caregiving and other parental practices. Low- and middle-income families typically have a complex structure with many relatives living together in the same household. The role of family and family complexity in the caregiving of children with disabilities is still unknown. In this study, we use data from N = 22,405 children with severe (N = 876) and mild or no disability (N = 21,529) from a large dataset collected in the 2005–2007 Multiple Indicator Cluster Survey. In particular, we adopt PageRank, a well-known algorithm used by search engines, to quantify the importance of each child in the family network. We then analyze the level of caregiving the child received in light of the child’s importance and developmental status, using a generalized linear model. Results show a main effect of child’s importance and of the interaction of child’s importance and developmental status. Post hoc analysis reveals that higher child importance is associated with a better caregiving outcome only for children with mild or no disability.

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“…When students leave school underprepared for postsecondary study or for the workplace, educators and schools have commonly been indicted as having failed those students (e.g., Anderson, 2011;DeWeese, 2007;Postal and Roth, 2011). Furthermore, one reason many students with disabilities face challenges may be due in part to secondary special education teachers' feeling unprepared to plan for and deliver transition services (Li et al, 2009). Effective preparations necessitate the provision of training on specific knowledge and competencies often beyond what is included in most special education teacher preparation programs (Anderson et al, 2003).…”

Section: Literature Reviewmentioning

confidence: 99%

The impact of COVID‐19 on teachers' transition practices for students with disabilities in Illinois, USA

ElSaheli‐Elhage

2022

Research in Spec Educ Needs

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Transition services are central in preparing youth with disabilities for opportunities in postsecondary education, employment and independent living. The life skills education acquired in school may be the only resources they receive to help them with this transition. With COVID-19, educational systems were interrupted, including the access of students with disabilities to service provision and transition services. This study aimed to investigate the impact of COVID-19 on teachers' transition practices for students with disabilities in the State of Illinois, United States and to identify factors associated with the differences in teachers' practices across eight domains of transition. Results indicated statistical significant differences in transition practices before and during COVID-19 in all eight domains. Gender, Race, School Closings & Type of School did not show significant associations with any of the eight domains. Emotional Disability was found to have a significant association with all eight domains, whereas Intellectual Disability did not show significant association with any of the eight domains. Grade level and teachers' educational level showed significant associations with certain domains. Future investigations into how COVID-19 changed teachers' transition practices for students with disabilities and the long-term impact that these changes will have on students' post-secondary outcomes are needed.

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Linking parents’ self-stigma to the adjustment of children with disabilities.

Cited by 18 publications

References 74 publications

Perceived discrimination and emotional distress among family caregivers of children with physical disabilities: The mediational role of affiliate stigma and self-efficacy.

Perceived discrimination and emotional distress among family caregivers of children with physical disabilities: The mediational role of affiliate stigma and self-efficacy.

The Role of the Family Network When Raising a Child with a Disability in Low- and Middle-Income Countries

The impact of COVID‐19 on teachers' transition practices for students with disabilities in Illinois, USA

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