Lignes directrices simplifiées de PEER sur la douleur chronique

Korownyk, Christina; Montgomery, Lori; Young, Jennifer; Moore, Simon; Singer, Alexander; MacDougall, Peter; Darling, Sean; Ellis, Kira; Myers, Jacqueline; Rochford, Candice; Taillefer, Marie-Christine; Allan, G. Michael; Perry, Danielle; Moe, Samantha; Ton, Joey; Kolber, Michael R.; Kirkwood, Jessica; Thomas, Betsy; Garrison, Scott; McCormack, James; Falk, Jamie; Dugré, Nicolas; Sept, Logan; Turgeon, Ricky D.; Paige, Allison; Potter, Jen; Nickonchuk, Tony; Train, Anthony; Weresch, Justin; Chan, Karenn; Lindblad, Adrienne J.

doi:10.46747/cfp.6803e63

Cited by 3 publications

(2 citation statements)

References 15 publications

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“…La très grande majorité des cas de douleur chronique sont pris en charge en soins primaires 1 . Dans une revue exhaustive des meilleures données probantes accessibles, Korownyk et ses collègues ont reconnu qu'en dépit de la prévalence de la douleur chronique et de la recherche subséquente de thérapies efficaces, l'approche optimale de gestion en soins primaires demeure incertaine 2 . Et maintenant?…”

Section: Prochaines éTapesunclassified

Intégration des lignes directrices de pratique clinique sur la douleur chronique et des observations de la neuro-imagerie non invasive

Allen¹

2023

Can Fam Physician

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Section: Prochaines éTapesunclassified

Intégration des lignes directrices de pratique clinique sur la douleur chronique et des observations de la neuro-imagerie non invasive

Allen¹

2023

Can Fam Physician

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“…Interventions based on ACT seem to help improve QOL and self-management (22). Both physical activity and psychoeducation programs seem to help reduce distress in 24). In addition, programs comprised of multiple approaches have a positive but small effect on patients' distress and QOL.…”

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confidence: 99%

Connect-ROD – Development and Qualitative Evaluation of a Community-Based Group Intervention to Support Well-Being in Patients With a Rare or Orphan Disease

Bardon,

Rioux,

Rivard

et al. 2023

Preprint

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Background: Patients living with various rare or orphan diseases (ROD) experience common psychosocial difficulties for which they currently lack support. We developed, pilot-tested and evaluated acceptability, feasibility, implementation, and short-term effects of an online group intervention to support adult patients with a ROD (AP-ROD), which aims to improve coping mechanisms, reinforce sense of control and support personal goals of AP-ROD. A qualitative study comprised of in-depth pretests, post-test interviews and standardized questionnaires, was conducted with 14 participants in two groups. Results: The Connect-ROD intervention is strongly anchored in acceptance and commitment therapy as well as community psychology approaches. A pilot test allowed us to improve on the initial structure and to produce a manualized 10-week program delivered online, made up of 2-hour sessions comprising formal activities, exchanges and homework. The evaluation showed satisfactory acceptability and accessibility, compliant delivery by facilitators, and promising short-term effects on personal objectives, sense of control, coping mechanisms, symptom management, acceptance of the emotions associated with the disease, distress, self-efficacy, social support and connectedness. The program did not show short-term effects on overall quality of life. Conclusion: Connect-ROD should be evaluated on a larger scale, but seems promising to support various AP-ROD who live with the complex psychosocial consequences of their disease.

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Connect-ROD – development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease

Bardon,

Rioux,

Rivard

et al. 2024

Orphanet J Rare Dis

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Background Patients living with various rare or orphan diseases (ROD) experience common psychosocial difficulties. Those need emerge from a combination of factors, such as the large variety of patients and the rarity of resources, as well as concentrated efforts on physical health needs that yielded increases in life expectancy and quality in patients. A gap is therefore rising in the consideration of psychosocial needs of patients, such as coping with the impacts of physical limitations, reducing social isolation and distress. To contribute to address this gap, we developed, pilot-tested and evaluated the acceptability, feasibility, implementation, and short-term effects of Connect-ROD, an online group intervention to support adult patients with a ROD (AP-ROD), which aims to improve coping mechanisms, reinforce sense of control, and support personal goals of AP-ROD. A qualitative study comprising of in-depth pretests, post-test interviews and standardized questionnaires, was conducted with 14 participants in two consecutive intervention groups. Results The Connect-ROD intervention is strongly anchored in acceptance and commitment therapy as well as community psychology approaches. A pilot test allowed us to improve on the initial structure and to produce a manualized 10-week program delivered online, made up of 2-h sessions comprising formal activities, exchanges and homework. The evaluation showed satisfactory acceptability and accessibility, compliant delivery by facilitators, and promising short-term effects on personal objectives, sense of control, coping mechanisms, symptom management, acceptance of the emotions associated with the disease, distress, self-efficacy, social support and connectedness. The program did not show short-term effects on overall quality of life. Conclusion It is recommended that Connect-ROD is evaluated on a larger scale. It seems promising to support various AP-ROD who live with the complex psychosocial consequences of their disease.

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Lignes directrices simplifiées de PEER sur la douleur chronique

Abstract: Cet article donne droit à des crédits d'autoapprentissage certifiés Mainpro+. Pour obtenir des crédits, allez à https://www.cfp.ca et cliquez sur le lien vers Mainpro+. Cet article a fait l'objet d'une revision par des pairs.

Cited by 3 publications

References 15 publications

Intégration des lignes directrices de pratique clinique sur la douleur chronique et des observations de la neuro-imagerie non invasive

Intégration des lignes directrices de pratique clinique sur la douleur chronique et des observations de la neuro-imagerie non invasive

Connect-ROD – Development and Qualitative Evaluation of a Community-Based Group Intervention to Support Well-Being in Patients With a Rare or Orphan Disease

Connect-ROD – development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease

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