Lifestyle Interference And Emotional Distress In Family Caregivers Of Advanced Cancer Patients

Cameron, Jill I.; Tranche, Renee-Louise; Cheung, Angela M.; Stewart, Donna E.

doi:10.1037/e322352004-261

Cited by 117 publications

(193 citation statements)

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“…In addition, our findings underscore the need for healthcare professionals to emphasize psychologic care for family caregivers, especially during the stable phase of home care, as has been suggested by previous studies. [27][28][29][30][31][32][33][34] The current study also identified an additional significant factor among the family caregiver-related variables-namely, the family caregiver's expression of desire for home palliative care. This finding is consistent with the results of previous studies (as summarized in recent reviews 2,3 ) concerning place of death for terminally ill patients with malignant disease, Overall, our model allowed accurate prediction of 94% of all documented places of death.…”

Section: Discussionmentioning

confidence: 67%

Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

Fukui

Kawagoe

2004

Cancer

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BACKGROUNDAlthough the place of death for patients with advanced malignancy is influenced by multiple factors, few studies have systematically investigated the determinants of place of death. The objective of the current retrospective study was to clarify the predictors of home death throughout the duration of home palliative care for Japanese patients with advanced malignant disease.METHODSIn the current nationwide survey, the authors investigated predictors involving patient demographics and clinical profiles, the roles and status of family caregivers, and the support provided by the healthcare system in the introductory phase (during the first week of home care), the stable phase (between the introductory and dying phases), and the dying phase (during the final week before death) of home care service in Japan.RESULTSMultivariate logistic regression models clarified that 1) patient‐related clinical variables (e.g., functional status and rehospitalization); 2) the support of the healthcare system (e.g., provision of information on the dying process and visitation by home care nurses); and 3) the status and roles of family caregivers (e.g., psychologic distress levels, assistance with patient evacuation, etc.) have an effect on place of death throughout all three phases of home palliative care. Overall, the model used in the current study was able to predict 94% of home deaths accurately.CONCLUSIONSA clearer understanding of factors that may influence place of death for patients with advanced‐stage malignant disease would allow healthcare professionals to modify healthcare systems and tailor effective interventions to help patients die in their preferred location. Cancer 2004. © 2004 American Cancer Society.

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Section: Discussionmentioning

confidence: 67%

Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

Fukui

Kawagoe

2004

Cancer

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“…As the number of people with cancer living their lives as patients demonstrate an upward trend each day globally, the number of family members who take care of them and live with them rises (Cameron et al, 2002).…”

Section: Introductionmentioning

confidence: 99%

Caregiver Burden and Perceived Social Support among Caregivers of Patients with Cancer

Kahriman¹,

Zaybak²

2015

Asian Pacific Journal of Cancer Prevention

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The purpose of this study is to describe the relationship between caregiver burden and perceived social support among caregivers of patients with cancer. The research was conducted in a university hospital in İzmir, Turkey. Eighty patient relatives who provided care service to patients with cancer who were admitted at hematology and oncology clinics participated in the study. The findings indicated that the care burden score was mild level. The mean of the perceived social support score was 58.4±21.0 supporting the conclusion that there is a weak and negative-direct relation between caregiver and perceived social support and that as the perceived social support increased, conversely, care burden decreased.

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“…the amount of time or nature of tasks fulfilled; (5) to evaluate caregivers' assessment or beliefs about their caregiving skills or performance; (6) for use in a non-English-speaking population and for which an English version was not available; (7) for use by patients rather than caregivers (e.g. patient estimates of the impact of their illness on the caregiver); and/or (8) to measure caregiver bereavement.…”

Section: Study Selection Criteriamentioning

confidence: 99%

“…The activities associated with informal caregiving incorporate a range of tasks affecting different aspects of the life of the caregiver and the whole family [25,26]. The impact of caregiving will vary depending not only on the patient's situation but also on family make-up, in terms of other caregiving responsibilities, financial and occupation role responsibilities and time of life [6,27,28]. Impact is also likely affected by the number of other social roles, such as employment and other caregiving responsibilities that the caregiver has [3].…”

Section: Family Membersmentioning

confidence: 99%

“…As such, there is a growing recognition that broader aspects of their lives and those of the family are affected across the disease trajectory [5]. Informal caregivers could be viewed as ''second-order patients in their own right'' [6]; consequently, a well-validated measure to assess the impact of disease and treatment on their lives and overall well-being is crucial.…”

Section: Introductionmentioning

confidence: 99%

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1715 Patient reported outcome measures for cancer caregivers: A systematic review

Shilling¹,

Matthews²,

Jenkins³

et al. 2015

European Journal of Cancer

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Purpose Informal caregivers provide invaluable help and support to people with cancer. As treatments extend survival and the potential burdens on carers increase, there is a need to assess the impact of the role. This systematic review identified instruments that measure the impact of caregiving, evaluated their psychometric performance specifically in cancer and appraised the content. Methods A two-stage search strategy was employed to:(1) identify instruments that measure the impact of caregiving, and (2) run individual searches on each measure to identify publications evaluating psychometric performance in the target population. Searches were conducted in MEDLINE, EMBASE, CINAHL and PsycINFO and restricted to English for instrument used and article language. Psychometric performance was evaluated for content and construct validity, internal consistency, test-retest reliability, precision, responsiveness and acceptability. Individual scale items were extracted and systematically categorised into conceptual domains. Results Ten papers were included reporting on the psychometric properties of eight measures. Although construct validity and internal consistency were most frequently evaluated, no study comprehensively evaluated all relevant properties. Few studies met our inclusion criteria so it was not possible to consider the psychometric performance of the measures across a group of studies. Content analysis resulted in 16 domains with 5 overarching themes: lifestyle disruption; well-being; health of the caregiver; managing the situation and relationships. Conclusions Few measures of caregiver impact have been subject to psychometric evaluation in cancer caregivers. Those that have do not capture well changes in roles and responsibilities within the family and career, indicating the need for a new instrument.

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Lifestyle Interference And Emotional Distress In Family Caregivers Of Advanced Cancer Patients

Cited by 117 publications

References 0 publications

Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

Caregiver Burden and Perceived Social Support among Caregivers of Patients with Cancer

1715 Patient reported outcome measures for cancer caregivers: A systematic review

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