Lifestyle adjustments of adults with long-term implantable left ventricular assist devices: A phenomenologic inquiry

Casida, Jesus; Marcuccilli, Linda; Peters, Rosalind M.; Wright, Susan

doi:10.1016/j.hrtlng.2011.05.002

Cited by 81 publications

(122 citation statements)

References 27 publications

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“…21,22 Some patients successfully coped with the reality of living with the LVAD, but other patients were anxious about adjusting to the device. 20, 21 Despite the remarkable advancements in LVAD technology, anxiety remains the most common distressing symptom contributing to poor QOL. 21,23 Although all of our patients received preoperative psychological care from liaison nurses, the results emphasize the need for postoperative psychological assessment and care to support patients after LVAD implantation.…”

Section: Study Limitationsmentioning

confidence: 99%

Quality of Life and Influential Factors in Patients Implanted With a Left Ventricular Assist Device

Kato

Okada

Imamura

et al. 2015

Circ J

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2186KATO NP et al. Circulation JournalOfficial Journal of the Japanese Circulation Society http://www. j-circ.or.jpMeanwhile, there are no studies evaluating the difference in QOL between implantable and extracorporeal LVAD patients. The 2 types of LVADs provide similar results in terms of systemic circulation assist and cardiac unloading effect, but the effect on patients' QOL may differ.It is important to understand the factors associated with patients' QOL in order to outline management strategies for LVAD patients that do not only focus on objective goals, but also on the patients' perceptions. Prior studies have shown limited associations between psychological distress and QOL, 1,7 suggesting that factors other than psychological problems may be important in determining QOL after LVAD implantation.The purpose of the present study was (1) to evaluate the effect of an having an implantable LVAD on patients' QOL, eft ventricular assist device (LVAD) therapy is expected to be increasingly indicated as a bridge to transplant or/and destination therapy. However, studies focusing on the effect of LVAD therapy on patients' quality of life (QOL) are limited. 1-3 In Japan, the number of LVAD patients has been increasing since implantation became covered by health insurance in 2011. It is important to know the effect of LVAD therapy from the patients' perspective.Comparison of the QOL of patients with an implantable LVAD and those in different stages of heart failure (HF) might help healthcare professionals to understand how much improvement in QOL can be expected from implantable LVADs. Several studies have shown that implantable LVAD patients have a better QOL than heart transplantation (HTx) patients. Minoru Ono, MD, PhD; Tiny Jaarsma, PhD; Koichiro Kinugawa, MD, PhDBackground: Improving quality of life (QOL) has become an important goal in left ventricular assist device (LVAD) therapy. We aimed (1) to assess the effect of an implantable LVAD on patients' QOL, (2) to compare LVAD patients' QOL to that of patients in different stages of heart failure (HF), and (3) to identify factors associated with patients' QOL.

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Section: Study Limitationsmentioning

confidence: 99%

Quality of Life and Influential Factors in Patients Implanted With a Left Ventricular Assist Device

Kato

Okada

Imamura

et al. 2015

Circ J

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“…The studies show that life on MCS required major adjustment for both patients and their caregivers, and that the early experience could be frightening and overwhelming. [28][29][30] Despite a new lease on life offered by the treatment, MCS affected multiple aspects of life, including hygiene, sleep, the environment, daily routines, and personal and intimate relationships. 28,31 An initial adjustment period of ≈3 months was difficult for both MCS recipients and informal caregivers.…”

Section: Expectations For Daily Lifementioning

confidence: 99%

“…[28][29][30] Despite a new lease on life offered by the treatment, MCS affected multiple aspects of life, including hygiene, sleep, the environment, daily routines, and personal and intimate relationships. 28,31 An initial adjustment period of ≈3 months was difficult for both MCS recipients and informal caregivers. 28,30 Informal caregivers, who described caregiving as a 24/7 responsibility, settled into their role and new lifestyle with time.…”

Section: Expectations For Daily Lifementioning

confidence: 99%

“…28,31 An initial adjustment period of ≈3 months was difficult for both MCS recipients and informal caregivers. 28,30 Informal caregivers, who described caregiving as a 24/7 responsibility, settled into their role and new lifestyle with time. 28,30 Most MCS recipients reported being satisfied with intimate relations after implantation, after various adaptations and self-care behaviors were undertaken although some of their partners were fearful of sexual activity.…”

Section: Expectations For Daily Lifementioning

confidence: 99%

“…28,30 Informal caregivers, who described caregiving as a 24/7 responsibility, settled into their role and new lifestyle with time. 28,30 Most MCS recipients reported being satisfied with intimate relations after implantation, after various adaptations and self-care behaviors were undertaken although some of their partners were fearful of sexual activity. 31 Sleep disturbances were common: in a study of 12 patients (25% DT), all displayed both short sleep duration (average 4.5 hours) and poor sleep quality at 6 months after implantation despite significant improvement in overall quality of life.…”

Section: Expectations For Daily Lifementioning

confidence: 99%

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Challenge of Informing Patient Decision Making

Boothroyd

Lambert

Ducharme

et al. 2014

Circ: Cardiovascular Quality and Outcomes

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Young adult patients’ experience of living with mechanical circulatory support: A phenomenological hermeneutical study

2019

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Aim To describe young adult patients’ experiences of living with a mechanical circulatory support (MSC) as a bridge to heart transplantation and impact of self‐efficacy. Design A qualitative and explorative interview study. Methods Eight interviews with adult participants were conducted and analysed using the phenomenological hermeneutical method. Results An overall theme, “Navigating from helplessness to feeling strong in the new reality,” and three themes were identified: “Feeling homeless in a changed reality” describes the experience of suddenly falling ill and the loneliness caused by the disease; “Finding my own inner resources” shows that the interviewees found the strength to fight for their lives and began to regain control of their situation; and “Adapting to my new reality” describes the importance of finding strength from others and being able to see MCS as a friend providing respite from the disease. Self‐efficacy beliefs play a significant role in the process that the participants went through.

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Lifestyle adjustments of adults with long-term implantable left ventricular assist devices: A phenomenologic inquiry

Cited by 81 publications

References 27 publications

Quality of Life and Influential Factors in Patients Implanted With a Left Ventricular Assist Device

Quality of Life and Influential Factors in Patients Implanted With a Left Ventricular Assist Device

Challenge of Informing Patient Decision Making

Young adult patients’ experience of living with mechanical circulatory support: A phenomenological hermeneutical study

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