Life with chronic obstructive pulmonary disease: striving for ‘controlled co‐existence’

Cooney, Adeline; Mee, Lorraine; Casey, Dympna; Murphy, Kathy; Kirwan, Collette; Burke, Eimear; Conway, Yvonne; Healy, Denise; Mooney, Bróna; Murphy, Jill

doi:10.1111/j.1365-2702.2012.04285.x

Cited by 34 publications

(56 citation statements)

References 25 publications

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“…This is in line with the limiting and pacing strategies identified by Cooney et al (2013). The use of limiting strategies dominated in our study.…”

Section: Discussionsupporting

confidence: 90%

“…A passive strategy before a scheduled discharge was reflected in those patients who preferred to rest and prolong their stay at hospital, while an active strategy was reflected in those patients who took initiative and were engaged in physical activities. These different ways to approach the discharge situation are in line with another study, which showed that, depending on the severity of COPD, patients balanced their daily life with the illness by either battling with it or hiding it (Cooney et al, 2013). The battling methods were associated with pacing strategies to promote activity and with limiting strategies used to avoid breathlessness.…”

Section: Discussionsupporting

confidence: 72%

“…The battling methods were associated with pacing strategies to promote activity and with limiting strategies used to avoid breathlessness. In some situations, the latter-mentioned could lead to a restricted life, but in other situations could be useful to conserve energy for the most important actions (Cooney et al, 2013). When preparing for discharge, our study showed that patients used both types of strategy, although limiting strategies dominated the picture.…”

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

Andersen

Thomsen

Poul

et al. 2017

International Journal of Qualitative Studies on Health and Well

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Purpose: In healthcare related to hospital discharge and follow-up, it is acknowledged that patient participation can strengthen self-management in patients with chronic obstructive pulmonary disease. However, the meaning of participation in care following a severe acute exacerbation is less described. Therefore, the aim of this part of a larger study was to explore patients’ experiences of participating in their care around discharge and in their subsequent day-to-day care at home. Method: The study was designed as a qualitative, longitudinal study. Data were collected by repeated participant observations and in-depth interviews with 15 patients within a period of 18 months post-discharge. A phenomenological-hermeneutic approach was used to interpret the data. Results: Before discharge, the patients struggled to regain a sense of control in their efforts to build up strength, and acquire sufficient clarity and confidence to face self-management at home. At home, the patients strived to comply with advice and encouragement in a struggle to stay motivated and confident, and to ask for help. Conclusions: With more knowledge about patients’ participation in care, healthcare professionals can encounter patients in ways that are sensitive to their specific care and support needs and, thereby, contribute to the promotion of patients’ health and well‐being.

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“…This is in line with the limiting and pacing strategies identified by Cooney et al (2013). The use of limiting strategies dominated in our study.…”

Section: Discussionsupporting

confidence: 90%

Section: Discussionsupporting

confidence: 72%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

Andersen

Thomsen

Poul

et al. 2017

International Journal of Qualitative Studies on Health and Well

View full text Add to dashboard Cite

show abstract

“…32 To acknowledge that one has only oneself to blame for having developed COPD may be a painful experience. 10,33 In the initial stages of COPD, this feeling of self-blame may also prevent people from seeking professional help. 34,35 People may make many excuses to smoke just one more cigarette.…”

Section: Nicotine-activated Changes In Brain Functionmentioning

confidence: 99%

Smoking addiction in chronic obstructive pulmonary disease

Klinke

Jónsdóttir

2014

Chron Respir Dis

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The aim of this review is to extend professional understanding of the various mechanisms that make smoking cessation difficult for patients with chronic obstructive pulmonary disease (COPD). Smoking in people with COPD is a major challenge for health care today. In spite of significant advances in knowledge about the processes of nicotine addiction, current interventions to support smoking cessation in patients with COPD are less successful than hoped for. A wealth of literature has confirmed that nicotine addiction is a powerful force and that smoking is not simply an unhealthy lifestyle or destructive behavior. However, research based on this realization is still in its infancy. To increase understanding and to develop ways of enhancing smoking cessation in patients with COPD, we review and synthesize knowledge found in neurobiology and phenomenology. We use neurobiology to explain the neurochemical changes that take place in addiction in order to substantiate phenomenological perspectives of smoking in patients with COPD. We relate the smoking experience to the concept of ''affordances''-in this context ''smoking affordances''-to analyze how smoking affects action possibilities in individuals with COPD. Combining these perspectives helps to illuminate the manifold and unique issues related to smoking addiction in patients with COPD.

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“…They are characterized by breathlessness and a feeling of a burden or condition they coexist with and needs to have control over [1]. Increasing severity of COPD may result in a decreased level of activity, experience of isolation, increasing dependency of health professionals and development of distress and often result in co-morbidities such as anxiety and depression [2].…”

Section: Introductionmentioning

confidence: 99%

Relationship Between Patient-Reported Outcome Measures and the Severity of Chronic Obstructive Pulmonary Disease in the Context of an Innovative Digitally Supported 24-Hour Service: Longitudinal Study (Preprint)

Lindskrog¹,

Osborne²,

Vingtoft³

et al. 2018

Preprint

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Life with chronic obstructive pulmonary disease: striving for ‘controlled co‐existence’

Cited by 34 publications

References 25 publications

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

Smoking addiction in chronic obstructive pulmonary disease

Relationship Between Patient-Reported Outcome Measures and the Severity of Chronic Obstructive Pulmonary Disease in the Context of an Innovative Digitally Supported 24-Hour Service: Longitudinal Study (Preprint)

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