Life satisfaction of people with intellectual disability living in community residences: perceptions of the residents, their parents and staff members

Schwartz, Chaya; Rabinovitz, Sharon

doi:10.1046/j.1365-2788.2003.00436.x

Cited by 82 publications

(84 citation statements)

References 20 publications

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“…Regarding the participants, it was observed that the majority (85%) of caregivers responsible to take care of children were females 12 and 80% were mothers; only two of them were fathers and one grandfather, corroborating data from other studies 21,22 . Concerning the occupation of mothers, 40% worked out and the remaining (40%) worked as teachers maids and industry workers.…”

Section: Discussionsupporting

confidence: 85%

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

et al. 2015

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OBJETIVO: avaliar a sobrecarga de familiares cuidadores de crianças com transtornos do espectro do autismo, segundo a percepção dos próprios cuidadores. MÉTODOS: participaram 20 sujeitos, de ambos os gêneros, com idades entre 22 e 60 anos (Média= 32,6), sendo dez familiares de crianças com transtornos do espectro do autismo e para compor o grupo controle dez familiares de crianças com transtornos de linguagem. As crianças apresentavam entre três e dez anos de idade (Média= 5,8). O grupo controle foi selecionado a partir do pareamento de idade, escolaridade e gênero das crianças. Todas as crianças encontravam-se em atendimento fonoaudiológico. Para avaliar a sobrecarga dos cuidadores foi utilizada a Escala Burden Interview e foram coletados dados sociodemográficos dos participantes. A análise estatística dos dados foi realizada a partir do teste de Mann-Whitney e da análise da Correlação Spearman (p< 0,05). RESULTADOS: a média do índice de sobrecarga do familiar cuidador de ambos os grupos foi 28, portanto, não foi observada diferença estaticamente significante e indicou que os G1 e G2 estavam moderadamente sobrecarregados. As características dos participantes também não foram significantes no índice de sobrecarga. CONCLUSÃO: cuidar de crianças com transtornos do espectro do autismo pode sobrecarregar seus familiares de modo semelhante ao de familiares de crianças com outros transtornos do desenvolvimento.

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Section: Discussionsupporting

confidence: 85%

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

et al. 2015

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“…A busca por esse tpo de população em ambentes escolares ou centros especalzados é a forma mas utlzada pelos pesqusadores que abordam o tema da deficênca mental (Emerson, Robertson & Wood, 2004;Gregory, Robertson, Kessssoglou, Emerson & Hatton, 2001;Kraemer, McIntyre & Blancher, 2003;Schwartzman, Martn, Yu & Whteley, 2004;Schwartz & Rabnovtz, 2003).…”

Section: Discussionunclassified

“…Foram encontrados, na lteratura, somente dos estudos em que os própros adultos deficentes mentas relataram sua satsfação com alguns aspectos de suas vdas (Gregory & cols., 2001;Schwartz & Rabnovtz, 2003). Nessas pesqusas, a população teve número equlbrado de partcpantes quanto ao sexo.…”

Section: Discussionunclassified

A qualidade de vida de pessoas com deficiência mental leve

Saviani-Zeoti

Petean

2008

Psic.: Teor. e Pesq.

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-People wth ntellectual dsablty are often neglected even though t s a queston of ther own qualty of lfe. Thus, ths study amed to know the opnon of 15 adults wth mld ntellectual dsablty related to ther qualty of lfe and the opnon of ther caregvers about t wth an nstrument that evaluates qualty of lfe (WHOQOL-Bref). The data were statstcally analyzed and compared. The results show that the dfference between the evaluatons was small n the questons concernng satsfacton wth the physcal, psychologcal, socal relaton and envronment welfares. People wth dsablty' evaluaton was few hgher than ther caregver's evaluaton. There weren't sgnficant statstcs dfference between evaluatons, so that we conclude that the people wth ntellectual dsablty are able to talk about ther own lves wth an optmstc vew and a very realstc way.

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“…Proxy reporting by direct caregivers has been implicated in substantial underreporting of problems, most dramatically for hearing and vision problems . Researchers have advocated for soliciting the input of people with ID [Koch et al, 2001] and several studies have looked at this specifically [Cea and Fisher, 2003;Schwartz and Rabinovitz, 2003]. These findings suggest that proxy reporting should only be used judiciously and with knowledge of its limitations.…”

Section: A Cascade Of Disparities For People With Intellectual Disabimentioning

confidence: 99%

A cascade of disparities: Health and health care access for people with intellectual disabilities

Krahn

Hammond

Turner

2006

Ment. Retard. Dev. Disabil. Res. Rev.

617

539

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People with ID represent approximately 2% of the population and, as a group, experience poorer health than the general population. This article presents recent conceptualizations that begin to disentangle health from disability, summarizes the literature from 1999 to 2005 in terms of the cascade of disparities, reviews intervention issues and promising practices, and provides recommendations for future action and research. The reconceptualization of health and disability examines health disparity in terms of the determinants of health (genetic, social circumstances, environment, individual behaviors, health care access) and types of health conditions (associated, comorbid, secondary). The literature is summarized in terms of a cascade of disparities experienced by people with ID, including a higher prevalence of adverse conditions, inadequate attention to care needs, inadequate focus on health promotion, and inadequate access to quality health care services. Promising practices are reviewed from the perspective of persons with ID, providers of care and services, and policies that influence systems of care. Recommendations across multiple countries and organizations are synthesized as guidelines to direct future action. They call for promoting principles of early identification, inclusion, and self-determination of people with ID; reducing the occurrence and impact of associated, comorbid, and secondary conditions; empowering caregivers and family members; promoting healthy behaviors in people with ID; and ensuring equitable access to quality health care by people with ID. Their broadscale implementations would begin to reduce the health disparity experienced by people with ID.

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Life satisfaction of people with intellectual disability living in community residences: perceptions of the residents, their parents and staff members

Cited by 82 publications

References 20 publications

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

A qualidade de vida de pessoas com deficiência mental leve

A cascade of disparities: Health and health care access for people with intellectual disabilities

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